'cured' during pregnancy

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Regular Member

Date Joined Feb 2008
Total Posts : 88
   Posted 10/19/2008 2:23 AM (GMT -7)   
Hi all,
Im 20 weeks pregnant. I was warned that i might get better, worse or stayed the same but i can honestly say that i feel 'cured'. My system has completely changed:im eating salad and orange juice with ZERO problems, im going to the toilet once a day and my stools are completely 'normal', not just normal for me but normal for someone without crohn's. I've got no pain, no bloating, mimimal gas, no urges to go, no D. While i should be really enjoying all of this, i feel like my body is teasing me-it's given me a glimmer of how easy and comfortable my life could be and while i can't wait to be a mummy, it's making me want to stay pregnant forever!
I know this is all only temporary but i wondered if anyone experience something similar. I've literally NEVER felt this good, my skin is pink for the first time in 10 years! Did you find your symptoms can back immediately? Were they better or worse than before you got pregnant? Did breastfeeding help delay things?
Does anyone know if there is any drug out there that can recreate pregnancy hormones? Immunosuppressants have never worked for me so im wondering if it's just the hormones that are making me feel so good? Im just confussed as to what's going on. My body IS capable of succesful digestion under certain circumstances whereas before i felt it was just completely broken. Sorry for all the questions.
27 years old, diagnosed 1998
mercaptopurine, prednisolone, azathiaprine, actonol
currently on pentasa, calcium and folic acid

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 10/19/2008 4:49 AM (GMT -7)   
Hi Cain't give you much advice here but I felt great when I was preg. too and remember the nice pink glow. Glad to see you are feeling so good. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 10/19/2008 8:02 AM (GMT -7)   
WOW that is wonderful!!!!!!!!!!!!!!!!!!!!!!!!
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 10/19/2008 8:23 AM (GMT -7)   
I too felt great during both of my pregnancy's, CD wise anyway. One before diagnosis and one after. My Mom wasn't diagnosed until after I was born, I'm her only biological child. And that was one of the questions the doctor asked to help determine if it was CD. Did your symptoms go away while you were pregnant? Of course, I am almost 44 and there wasn't a lot of info about CD back then, but the basic understanding at the time was that most people's disease went into remission when they were pregnant.

As far as it coming back afterward. Both my Mom and I were hit hard a year after each pregnancy. She didn't breastfeed, I only breastfed for a short time with each of mine due to complications. So I don't know if that would help. Just be very aware of what your body is telling you and seek out help at the first sign of trouble. Remember, you can't take care of your baby if you are sick. So taking care of YOU is also taking care of the baby.

And I just want to add, I don't care what CD throws at me, I would still have gone through every miserable thing the hormones brought out because being a MOM is the BEST.

I hope you continue to enjoy your pregnancy and CD doesn't come back to bite you in the butt!

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Regular Member

Date Joined Feb 2008
Total Posts : 88
   Posted 10/19/2008 10:33 AM (GMT -7)   
Thankyou for your replies. Zanne-i've got an appointment booked to see my consultant a few weeks after the birth and he's given me the number for his 'hotline' so i can see him sooner if need be, so im braced for the worst! I'm just wondering if i should see him sooner just so he can explain what's going on to me but i don't suppose they really know!
I've had a thought which has made me feel better today. Most people feel great in the second trimester, im sure that by the end of the pregnancy i'll be heavy, uncomfortable and desperate to give birth and have my baby-i wont go from feeling as good as i do now to suddenly flaring so hopefully it'll be a gradual process.
I just wish i could bottle whatever it is that's 'cured' me and keep taking it! I've been in remission for a good few years now but was still struggling on a daily basis.
27 years old, diagnosed 1998
mercaptopurine, prednisolone, azathiaprine, actonol
currently on pentasa, calcium and folic acid

Veteran Member

Date Joined Nov 2005
Total Posts : 1340
   Posted 10/19/2008 11:41 AM (GMT -7)   
I had my first baby just about 7 weeks ago. I also felt great while pregnant. I LOVED being pregnant. I'm still feeling great (and I dropped all my meds to breast feed maybe a stupid risk but it's okay for now). I am still breast feeding and plan to for 6 mo- 1 year. I was doing pretty well before the pregnancy, but it just made things better. Hope things last for you.

Congrats on your pregnancy!

Currently in remission!

Regular Member

Date Joined Feb 2008
Total Posts : 88
   Posted 10/19/2008 11:52 AM (GMT -7)   
Thanks inflamed, that's given me some hope that i might have a few healthy months with our baby, i'm going to try very hard to stick with the breastfeeding. Things never turn out how you imagine do they! I was so scared to get pregnant, i was having visions of morning sickness/crohn's sickness/upset stomachs/pain/weight loss, generally a nightmare but so far, i've been great-haven't even had a hint of sickness!

Congrats to you too! I think we should be very proud of ourselves!
27 years old, diagnosed 1998
mercaptopurine, prednisolone, azathiaprine, actonol
currently on pentasa, calcium and folic acid

Veteran Member

Date Joined Feb 2003
Total Posts : 1811
   Posted 10/19/2008 4:29 PM (GMT -7)   
I felt AWESOME during my first pregnancy - I could eat ANYTHING. However, about 3 months after baby was born, I started to flare. I do think that breastfeeding helped the hormones drop more slowly, but eventually they did go away and I was back to my "old" self. When I was pregnant with baby #2, I was in remission before I got pregnant, did well throughout the pregnancy and stayed well for about a year after baby was born. So, that was a completely different experience. Now I am pregnant with baby #3, I was flaring when I got pregnant and I've been semi-stable, but nowhere near as great as the other 2 pregnancies. I'd venture to say that my 3x's go like this: 1-improved, 2-stayed the same, and 3-stayed the same.

My advice to you- eat everything you can and beef up - give yourself some good leeway to lose weight on IN CASE you flare. That way you have a cushion that will keep you from getting to skinny/sick too quickly. AND- I loved breastfeeding, it was such a great experience, but I learned the hard way the first time - I had to wean my baby FAST and she HATED the formula and it was a hard transition. SO, with baby #2, and this time around - I will give one or two formula bottles a week just to get baby used to the taste IN CASE I flare and need to wean quickly. That way baby isn't traumatized and my health is protected. You don't have to do that. It's just what works for me.

I'm glad you're feeling so great. To my knowldege there is no chemical or synthetic substitute. It's kind of like God's miracle. Enjoy it as long as you can!!!!

New Member

Date Joined Jun 2008
Total Posts : 11
   Posted 10/19/2008 5:59 PM (GMT -7)   

I was exactly the same way!!! I felt unreal during my 1st pregnancy and am 18 weeks preggers w/ #2 and despite a stricture that my doc wanted to operate on, I feel amazing once again! I WISH they could clone the hormones and make some sort of medicine that we could take. My husband and I joke that I should be a surrogate mother!

My remission lasted about a yr or so...and then symptoms came back with a vengeance. I went off azathioprine 3 mths beofre trying to conceive and only stayed on Asacol throughout the pregnancy. I was feeling so good that I decided not to go on anything else. My body wasn't happy with me. I was a mess! Really bad tummy and horrible arthritis. I went back on the azathioprine and stayed on it until we wanted to try for another baby. Luckily my pregnancies have mirrored eachother thus far and I am feeling awesome.

FYI I have heard that breast feeding can induce a flair due to the extra hormones and the stress of it on your body. I chose not to...mostly cause I was on the asacol. It was the right choice for me and I will be doing it again with this baby.

Just keep a close eye on yourself and listen to your body. The faster you get under a docs care when you start not to feel good the better. It is easy to lose sight of yourself when you have a new baby...but without you being healthy the baby is worse off! Ask for help and try to get as much rest as you can. GOOD LUCK!!!

Regular Member

Date Joined Oct 2008
Total Posts : 63
   Posted 10/19/2008 7:36 PM (GMT -7)   
I have a friend who is in medical school and she has heard that they are actually trying to "clone" whatever it is about being pregnant that stops the crohns. It would be some type of drug that would essentially "trick" the body into thinking it's pregnant. It's like if there is something to protect, the immune system stops attacking the body. I wonder if/when these drugs will become available and if men would be able to take them too. Very interesting to me...

Regular Member

Date Joined Sep 2006
Total Posts : 96
   Posted 10/19/2008 8:16 PM (GMT -7)   
I had my son 8 months ago. I felt great during my pregnancy and for about 5 months afterwards. Then my hair started getting brittle and my skin started breaking out and I knew the crohns was back. I stayed on 6mp and pentasa for the whole pregnancy too. I wish we could always feel that great. Hopefully you will. Make sure you see a high risk obstetrician since you have crohns disease.

Regular Member

Date Joined Feb 2008
Total Posts : 132
   Posted 10/19/2008 8:32 PM (GMT -7)   
It is great to hear how good you feel and Congrats on having a baby! I don't have CD but UC and my symptoms completely disappeared throughout pregnancy and breastfeeding. I breastfed for 15 months so it was a total of 2 fantastic yrs!!!!!! Best wishes to you, just watch for symptoms and don't ignore any.
Dx w/UC in 2001 - controlled by diet.
Mother to 15 yr old daughter dx w/CD 9/07-  she had surgery for abcesses 11/07.  She is taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa  500mg-x5, prednisone 10mg-x6, 6 mp 50mg-x3, Flagyl 250mg-x3

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 10/19/2008 8:43 PM (GMT -7)   
Aren't birth control pills supposed to mimic pregnancy?
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 10/19/2008 11:12 PM (GMT -7)   
I was the same - four pregnancies and breastfeeding kept me in remission for years. I too wish they could make a 'pregnancy pill' Im not surviving on the immuno's either. Good luck with your pregnancy and keep us updated.

Regular Member

Date Joined Feb 2008
Total Posts : 88
   Posted 10/20/2008 5:27 AM (GMT -7)   
Thankyou so much for sharing your experiences with me, i've taken everything you all said on bored.

stef17-i'll definately have some fat stores in reserve by march and im going to try to get the baby used to a rubber teet so that i can express. Once i've done that, i'll try a formula bottle once a week as suggested, thanks for telling me about that!

Makiesmama-i think following stef's advice above will help me to switch to bottle if breastfeeding is too difficult. I think 'normal' people find breastfeeding hard due to lack of sleep and stress on the body so i'll bare in mind that if i do flare switching may help me get better quicker. It goes completely against natural instinct to put your own needs before that of the baby but i realise that im no use to anyone if im ill.

I'd be fascinated to know what research they're doing into this-it seems like a magic cure and you'd think they'd be able to mimic the pregnancy hormones. The mechanisms of immunosuppression that our bodies go through are probably very complex but i wonder if they've even tried synthesising the hormones? Fitzy-i was also wondering about the birth control pills, i'm going to ask my consultant but i've got a feeling that if it were that simple we'd all be given them straight away , nevermind-we can dream! Surrogacy suddenly sounds like a great idea!!xx
27 years old, diagnosed 1998
mercaptopurine, prednisolone, azathiaprine, actonol
currently on pentasa, calcium and folic acid

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 10/20/2008 6:19 AM (GMT -7)   
Yeah, I'm sure it is beyond bc pills. I take them and I think they help but are not a cure. I'm sure pregnancy hormones are much higher than bc pills. They try to keep bc pills as low a dose as possible to avoid side effects.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 10/20/2008 7:32 AM (GMT -7)   
I was diagnosed before I ever had my 3 kids. I did take BC pills beforehand/afterwards too. The only time I flared was about 9 mos after baby #2, and what was amazing to me, was I then went into a 20 year remission after that. I wonder though if the BC pills helped me.

This would be great if they could clone this stuff to help folks reach remission. But what about the guys? Eeek! LOL

I am glad to hear you are feeling so good. And congrats on your upcoming little one!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined Dec 2005
Total Posts : 267
   Posted 10/20/2008 8:04 AM (GMT -7)   
They found out the hormon is estradiol, I believe. It's in clinical trials for MS right now. Hopefully Crohn's is next.

Regular Member

Date Joined Feb 2004
Total Posts : 437
   Posted 10/20/2008 8:19 AM (GMT -7)   
I have to say, I too had this. Pregnancy was awesome for my CD. If only we could stay preggers forever....at least trick the body to thinking we are preggers. I remember talking to my Mid-Wife saying 'I'm only having one bowel movement a day, is there something wrong?' she laughed at me and said that this is what it's like having a normal system. :)
The only real troubles i had during pregnancy that could be related to cd was the swelling and the protein in my urine. i started swelling at 25 weeks and it was terrible! I was induced because of the protein with the first child and the second one i went on bedrest at 38 wks so that i could avoid it. i drank lots and lots of water (more than recomended) and kept my feet up.

Breastfeeding- I b/f my first child till he was 9 months and enjoyed the same 'cured' feeling. however, my second child i'm still b/f and he's 15 months now. my cd is back with avengence, started to come back in january but i didn't want to see the doc for fear i would have to wean to go on meds. Now that i'm getting really bad i went to the doc. So, now i have to wean....which sux, cuz he's not emotionally ready.
So, there's my story, hope u have a great birth and wonderful b/f experience!

Regular Member

Date Joined Apr 2007
Total Posts : 345
   Posted 10/20/2008 10:48 AM (GMT -7)   
I'm trying to get pregnant now.   I'm so happy to hear all these responses.
Nanners, what brand of pill are you on?  I might have to go on that afterwards.
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 

Regular Member

Date Joined Nov 2004
Total Posts : 158
   Posted 10/20/2008 8:14 PM (GMT -7)   
My OB always says I should be a surrogate because I feel so awesome while pregnant. But boy have I flared HORRIBLY about 3-7 days after giving birth every time. I have only taken asacol while pregnant and 6mp is what seems to work for me so I don't know if that would have made a difference. For how quick and fierce my flares have come on I really doubt it. I nursed my first son for 5 weeks before I knew I had crohns and then went in the hospital for 2 weeks and almost died from what I didn't know was IBD at the time. He took a bottle right in the hospital room like a champ. I nursed my 2nd son for a year and well gave him a bottle at 4 weeks and well he was a stinker and never would drink a bottle. I think part of the problem was that I never gave him the bottle because it was easier to just to nurse. And the twins will drink a bottle if they are truly hungry otherwise one of them literally throws it across the room. I haven't found breastfeeding to be any better or worse for my crohns. But I did flare really bad again after weaning my second son, hopefully that doesn't happen with the twins. I wish you the best with breastfeeding and always remember that even a few weeks is better than nothing. I don't know about the hormones helping the crohns but nursing really helped me to not have any post partum depression or baby blues.
I have just had the Mirena inserted and I think that was the cause of this last flare but none of my doctors will admit it. I am doing well now with entocort, canasa and cortifoam. It is different from the pill as there is no estrogen in it and I am hoping that over time it will help.

Enjoy your pregnancy and being able to eat and drink what you want. I have to laugh because I always say how much I loved being pregnant because I could drink orange juice and eat lettuce. Which are two things that even when I am not flaring just don't seem to agree with me. Hee hee!

Congratulations and I wish you a healthy time after your little one is born.
Diagnosed with UC in July of 2003 then diagnosed with Crohns in August of 2006.

Veteran Member

Date Joined Jan 2004
Total Posts : 598
   Posted 10/21/2008 9:21 AM (GMT -7)   
When you are pregnant you are immunosuppressed so that might be the reason for feeling so good in the case of CD and other diseases like that where the immune system is too active.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin,levothyroxine, sertraline, lyrica, methotrexate, down to 2.5mg prednisone and miserable.     

Veteran Member

Date Joined Mar 2007
Total Posts : 1653
   Posted 10/21/2008 12:28 PM (GMT -7)   

That's right, rootsmith.

This is a big oversimplification, but think of it this way:

When you're pregnant, there's basically a semi-foreign body growing inside you.  Under normal circumstances, your immune system would not tolerate the fetus and would attack it.  One of the many functions of the hormonal changes during pregnancy is to suppress the immune response so that it doesn't go after the growing fetus.

It has been shown that during pregnancy, cortisol levels, along with lots of other hormones, increase.  Cortisol, as you may know, is the naturally occurring hormone produced by the adrenal glands that regulates metabolism and immune function (inflammation).  Now if that sounds a lot like prednisone, you're on the right track:  Prednisone is a synthetic mimic of cortisol.  When you take prednisone, it's the same as increasing your levels of cortisol.  So if you have increased levels of cortisol while pregnant, it's like being on prednisone.

Like I said, that's a huge oversimplification, and there are lots of other things happening simultaneously, but it gives you an idea what's going on.

Regular Member

Date Joined Jul 2007
Total Posts : 239
   Posted 10/21/2008 1:38 PM (GMT -7)   
I used to get horrible migraines, on the floor in the dark closet every afternoon. Then I was pregnant with my second child and the migraines stopped completely. My doc said the hormones caused arteries, veins, and capillaries to open which lessened the pain. That was 12 years ago and I have about 2 migraines a year now. But as soon as he was born I had gallstones and had to have my gallbladder removed when he was a couple of weeks old. I started having cramping and d sometimes. Fast forward 10 years and I'm dx with crohn's. Isn't it strange how the body just doesn't make any sense sometimes? My theory is that I carried stress in my head and got migraines, and then the stress transferred to my guts because of the pregnancy. I'm not having anymore babies, but congratulations to you Pippy!
diagnosed w/Crohn's 11/06. 34f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bentyl, entocort, vicodin as needed, metoprolol for orthostatic hypotension and heart palpitations. Bowel resection 9/07. Active disease back, darn it 8/08. 11 year old son with IBS-C, on Bentyl.

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