Drugs... Crohns...This and that...

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Regular Member

Date Joined Feb 2004
Total Posts : 106
   Posted 10/23/2008 8:55 PM (GMT -7)   
So.... updates for those of you who know me, and those of you who read this.
My Crohn's is....well, it is. The Dr's are raising me up to 75mg of Purinethol. Still on 3g of Pentasa and 40mg Nexium. Fissure keeps opening here and there, but it's to be expected when I ride horses all the time. Heh. nono
Still taking Vicodin for pain -- 7.5/325 (Hydrocodone/APAP). The relevance of that is well... I don't know. Confusion is another WONDERFUL attibute of this whole thing, right?
I REALLY hate being 22 and having to take 4-5 Vicodin a day so I can function. I really hate the other pills too, but I have to be ok with them so I can, well.... live I guess. Something like that. I don't know. rolleyes
OH, and I read that CINNAMON is used as a digestive aid, can promote good circulation, so on and so fourth. Going to look into it more, considering...
I'm going to go to Pharmacy School, I think. I know I would be good at it, and I know that there is a very good program here in NM. With the credits I have now, and everything that is required, I think I'm looking at about 6 years total. I'm currently on SSDI/SSI due to CD. Going to talk with Disabled Vocational Rehab ASAP. Wish me luck.
Hope all of you are well, hope everything is working out.

Hi Sonia I just had to edit your post a little. Please note:

1. No discussion of any illegal activity or threats of violence. (ie. illicit drug use, including medical marijuana use, threats of suicide or self-injury, or threatened or intended physical harm).  Discussions of suicide or self-harm that are deemed negative and therefore potentially injurious to others are also not permitted.

Thanks, Meg


Post Edited By Moderator (nervymeg) : 10/24/2008 12:12:38 AM (GMT-6)

Veteran Member

Date Joined Jul 2006
Total Posts : 2721
   Posted 10/23/2008 11:19 PM (GMT -7)   

Hi Sonia,

I use cinnamon to calm down my digestive system and it really works and tastes nice to boot. I often have it on toast with sugar, or in a mug with honey, or add it to hot chocolate. If you like the taste it's worth a try.


Co-moderator Anxiety/Panic
Panic Attack Survivor

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 10/24/2008 3:51 AM (GMT -7)   
Also bear in mind that cinnamon can also hurt, so please just be very careful when using it.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Texan with Crohn's
Regular Member

Date Joined Dec 2007
Total Posts : 362
   Posted 10/24/2008 4:18 AM (GMT -7)   
Hey, Sonia.

Saw that you ride and thought to pop in and ask you about that part of your post. :) Horses are my happy place. So what type of horse(s) do you own or ride? I own and ride a wonderful paint mare out of Two-eyed Jack blood line. CD can make it a bit difficult at times but I sure do love it.

As for pills, ((sigh))... I hear ya. Wish they weren't necessary, but we gotta do what we gotta do. I call them cronie balonie survival aid. I am now part of the bottle recycler program with my pharmacy. They laugh when I show up with a bag of empty containers, but that's better than chunking them in the trash to become part of a landfill. :)

Hang in there, Sonia.


Leslie a/k/a Texan with Crohn's

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 10/24/2008 5:23 AM (GMT -7)   
Hi and good luck on your course. Meds are a needed thing sometimes that's for sure. Give your horse a carrot for us. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

Regular Member

Date Joined Feb 2004
Total Posts : 106
   Posted 10/24/2008 1:37 PM (GMT -7)   
Stating to ask me about my horse is a bad idea, LOL....I'll go on for HOURS!
I bought a  3/4 Percheron, 1/4 Paint Mare in 04. She was a yearling then, and on 160 acres for the majority of her life. She didn't trust anyone or anything at the time I found her.
She is my everything. I have done all of her training BY MYSELF. I am NOT a horse "trainer", nor do I take lessons or anything. I don't follow any programs but my own.
She's just over 5 now, and we ride where we want to. She trusts me for everything. She is my happy place, my love, my....well.. you get it.
She is under saddle with both Western and Dressage/English. I ride her mostly bareback because of the comfort and ease. She is carrying a bit (has been since she was 3). She was 2007 High Point winner for Halter and Sport Horse. Again, all on my OWN!!! With Crohn's! (yay for me!).
At any rate I try to see her as much as possible because she is so wonderful. I am getting as many people into horses as possible. Hmm.... I might start this as a new topic actually...
Take care, off to ride!

Post Edited By Moderator (Ides) : 10/24/2008 10:12:05 PM (GMT-6)

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 10/24/2008 3:27 PM (GMT -7)   
Sonia, could you please edit your sig so it is less than ten lines long? Thanks.
Co-Moderator Crohn's Forum.

Veteran Member

Date Joined Mar 2006
Total Posts : 1034
   Posted 10/24/2008 9:31 PM (GMT -7)   
cinnamon is great to lower the insulin response to grains/sugars. i use it with any thing grain related.

peppermint and ginger are great digestive aids too. if i have a tummy ache i like to drink a peppermint or ginger tea and that helps a lot.

turmeric is also a good spice to use.
Crazy Harry

Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07

Texan with Crohn's
Regular Member

Date Joined Dec 2007
Total Posts : 362
   Posted 10/25/2008 5:27 PM (GMT -7)   
Hey, sleepy. :)

... and back to horses (yes, I too could go on for hours on this topic). My mare I purchased as a two-year old that had never been saddled... probably not the best choice for my first adult-horse. I too have done all the training on her. I watched many hours of Clinton Anderson and followed his technique. This actually worked well. She is now five and responds very well working off mainly my legs. I have started her on neck reigning... a work in progress, but I don't ride as much since CD started, oh, about a 1.5 years ago (??). I trail ride and that's about it. Dressage... now, that's control. It takes a very long time and a great animal to do such beautiful movements. :)

Well, I am off to my second job. Meant to check back in earlier; however, since I started my new job (long story there) I have been putting in waaaaay too many hours.

Take care and shout at me anytime you wanna talk horses.



Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 10/25/2008 6:56 PM (GMT -7)   
Riding horses..I am jealous!! I used to help on a horse farm when I was younger and I miss it so much. They really are amazing animals!!!

That's great about the pharmacy school!! I was considering it, but, as much as I love chemistry and some math, I really don't want to go through the higher chemistry classes and calculus...so I am doing social work and psychology right now instead.

Update us on that though!! I am extremely interested to hear about it.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.

Regular Member

Date Joined Jun 2008
Total Posts : 54
   Posted 10/25/2008 7:41 PM (GMT -7)   
I understand you there I am only 20 taking 4-5 percoset a day just to function along with about 5 other pills and remicade infusions. oh to be young !
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