newbie mom -Child dx with crohns disease, he is in the hospital now

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karen r
New Member

Date Joined Oct 2008
Total Posts : 4
   Posted 10/25/2008 6:35 AM (GMT -7)   
I'm new to this site and  from ireland
well i am eoghans mother and this is his story so far.
he was diagnosed with Charon's in January this year
he is 9 years old since April.
eoghan started complaining in Oct 07 of constipation cramps
weight loss it was put down to chronic constipation
in November he had a rental pro lapse .
December went to see surgery team at hospital they still said it was constipation
that same month eoghan went down hill
he was skin and bone couldn't eat he was fading away in front of me
he started getting soars on his mouth got antibiotics off doctor
the 2nd of Jan 08 i went to hospital he couldn't even walk at this stage
he was admitted
he whole body was down
he received blood transfusion once somebody knew what they were doing
he was very very sick
eoghan got great treatment once they knew what was wrong
i was devastated to hear that eoghan had chrons but relieved at the same time
for months i kept looking at my child getting sicker and sicker and was told it was in his head
was he been bullied was he worried ,stressed etc
eoghan was treated on flagyl  steroids, and pentasa and 6mp, losec mups
he received upper and lower endoscopy .
the surgeon said after that it was the worst he had ever seen
he couldn't go up far in case he nip ed him
eoghan was doing really well on his meds
he ended up just on 6mp
eoghan started getting eye pain ,could last 20 min
my GP said migraine or it could be the 6mp
the GI team said no it wasn't the tablets . i had read on this site about photo phobia .
so i got eoghan checked by an optician .he found traces of photo phobia and inflammation of the eye so waiting to see opthamologist to sort that .
eoghan stomach was feeling bit off and with the eye the GI nurse along with one of the doctors prescribed eoghan with flagyl and increased his 6mp
this is the good bit eoghan was taking half a tablet of 6mp there 50mg tabs. so the letter i got out from the hospital was for eoghan to take 1 tab one day and 2 tabs the next alternating tabs 2/1 every other day.
i should have known better
eoghan took this amount until he was admitted to hospital last week for a fistulas. eoghan had bloods taken and given flagyl and ciprofloxacin .then the questions of the 6mp came up he was getting too much for his weight the nurse that sent me out the letter her face said it all .it was a mistake by her and i do take blame too for not been more award of the dosage .
tabs got sorted he was put on 50mg a day which is one tab a day
the bloods eoghan had done on the day he was admitted Saturday showed up fine  but when bloods were done again Tuesday his white blood cells were way down 1.0 i think he was taken off the 6mp for that day and bloods repeated again wednesday still very low so his off the 6mp bloods done again yeserday and its up to 1.1 going back next Thursday for bloods and to discuss what to do about the 6mp
i think the tablets had something to do with his white bloods cells going down but what i cant understand is why his bloods were OK when he was admitted and than went so bad? 
the fistulas is ok now..

Post Edited By Moderator (MMMNAVY) : 10/25/2008 7:50:29 AM (GMT-6)

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 10/25/2008 6:49 AM (GMT -7)   
I no idea why his blood went down so fast (it can happen with this darn disease, eye problems can also happen with this disease), except just in passing experience with children who have had injuries they compensate extremely well, then when they no longer can compensate they go down hard and it takes alot to get them back up again. It could also be time to switch medications.  Also you might want to think about switching GI docs too?  Do you have access to a pedicatric gastroenterologist?  Perferably one that specializes in IBD (crohns or UC).

Anyways welcome to the board and I hope you don't mind that I adjusted your title.

I am sure more Crohnie Moms will be along as well. 

Plus there is a site just for parents too:


Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 10/25/2008 7:56:50 AM (GMT-6)

karen r
New Member

Date Joined Oct 2008
Total Posts : 4
   Posted 10/25/2008 6:58 AM (GMT -7)   
thank you mmmnavy

Regular Member

Date Joined Oct 2008
Total Posts : 245
   Posted 10/25/2008 8:12 AM (GMT -7)   
Karen, I am so sorry your little one has gone through so much. What courage both of you have shown. I will keep him in my prayers. ny advise that you need you will find it on this board. Alot of the people on here are quite amazing. They know alot about Chropns and have helped me alot.

God Bless you and our family, and please stay focused.

Regular Member

Date Joined Oct 2008
Total Posts : 245
   Posted 10/25/2008 8:13 AM (GMT -7)   
PS Karen, I am fro the north of Ireland.

Regular Member

Date Joined Sep 2008
Total Posts : 76
   Posted 10/25/2008 9:37 AM (GMT -7)   
Hi Karen,
Im also from Ireland and find this site amazing. Its better than going to the doctor sometimes.
Im sure your son will be fine, but I do feel for you. It is an awful worry.  I have crohns for the last 30 years but thank god none of my children have it.  Best of luck and I will say a prayer for Eoghan.  God Bless :-)

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 10/25/2008 4:18 PM (GMT -7)   
Hi I hope your son gets to feeling better soon. Lots of us people with crohn's take B-12 shots myself included. I also follow low roughage diet that helps. Hope he gets good care in the hospital. I have not been on that med so not much help. Let us know how he is doing I have had fistula's too there not much fun. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still gail

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