I'm 27 which is why I take the prenatal. It's OTC, and its basically a good multi-vitamin (so says every doctor I've asked about it). Visited a doc and here's the update on it: she was an RN who listened. She put me on steroids and tramadol for pain. She took blood before I left so she could check for all kinds of ANA levels and such. She told me that the ER doc shouldn't have said I had myalgia in my arm without having taken blood to verify it since an X-ray isn't conclusive. I've noticed that the lower the dosage of prednisolone (or whatever its called) the more pain I've had in my arm. My thumb is basically continually numb in a sort of sore way. I can get it to tingle and I work that so that I know blood flow is good. I have to go back to the RN soon. She was really good. She listened to me for a half hour...and she spent time working my arm, feeling for what is and isn't movable, workable, touchable on it. It was a great visit. Haven't had someone listen to my concerns and give me answers in over five years. Since my first few surgeries.
Just giving you all an update on it. Oh, she also wanted to put me on antidepressants but I want to see if working with the pain management can help. And it does to an extent. I'm supposed to go back in a few weeks and when I do, we'll see where I am mentally from there. Although, I may have to ask to be put back on the steroids because my arm does better on the 'roids. It helps with mobility and sensation. The lower the dose, the worst the pain can't be controlled and the number my thumb and pointer finger get. So, I'm in a safer mental area as well. The flare's gone down to nothing but I'm still "Ensure"ing two of my small meals a day to help keep things easy in my gut (I eat usually four or five).
My grandpa's been gone for over a week now. It's surreal still. It was very sad, they gave him a 3 shot salute. I made cupcakes. I tend to deal with stress by baking. It's a precise sort of science. I haven't meant to be so absent...I've just been sleeping a lot and working and it can be weird to type with a few numb fingers. I have been feeling my hips and knee a bit (apparently not hurting in the arm means I can feel the owies everywhere else). We'll just have to see where it all goes. It hurts a lot when I realized my mom (we're all sure she's paranoid schizophrenic and no joke) believes that I'm cured. She won't listen when I say the word "chronic". She calls me a miracle when I'm not flared. When I was sick all the last two weeks, she was saying she couldn't understand it. Its just another way that she takes something that has nothing to do with her or her religious beliefs and makes them all about her world. Makes me hate her...a lot. Then, I'm always trying to deal with how I feel about my mother. I pity my father, wish he'd divorce her and leave her to try to survive. Then she'd at least try to pretend that she gives a hoot about him. That's all neither here nor there.
So, there's an update. Oh, as a pick me up, I bought two loverly (yes, I spelled that right :-P) Victoria's Secret sweaters (gift certificate). I needed to have something nice for work and warm. Since I can't find any of my really warm sweaters and I just moved from L.A. to K.C...YAY. I'm overly excited about them, but hey, its getting cold as heck here and I have two sweaters in two separate shades of green. I'm trying to be positive and I'm excited about sweaters...you take the little things and smile about them.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)