Hello New 2 Here but Yall are more help than Drs.

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New Member

Date Joined Oct 2008
Total Posts : 11
   Posted 10/26/2008 2:55 PM (GMT -7)   
I have been diagnosed with crohn's since 1998. 5 years ago a different GI dr said i had IBS not crohn's. Of course, after I cussed him out and told him i had crohn's longer than he had been studing it. I said i need to find a way to Just deal with it. I haven't seen a GI dr in 4 1/2 years. Now I am 195 lbs. I have always been under 150. I having alot of problems: i look like i'm 7 months pregnant. I have a 6 year old daughter who is the greatest. She told my mamaw yesterday that she was tired of mom always being sick!! That was 2 sad for me. That's all she's ever known is me sick. When she was 3, she would hold my hair when i was throwing up and get me a cool towel. Now, she wants to go and do and all i can do is sit on the toliet or stand over it. I'm feeling worse than I ever have. No, no, no energy; anxiety thru the roof and belly just sucks. :(  My daughter Jayla is taking senokot every other day cuz she is constipated really bad I just know she going to have something like me and THAT'S MY BIGGEST FEAR!! So, I just had the CT scan of my stomach on the 12th I'm having a colonoscopy and you know just down hill from there. I really want him to find something so they can fix it. My crohn's has been uncontrolled for years and i'm on disability for 5 years. Something has to change!! im losing my mind, now. Any input. Yall are more help than doctors. THey suck! I dont take any meds for crohn's side effects so bad i'd rather deal with symtoms. Meds for the pain and anxiety and acid reflux that's it! Oh lets not forget anti-depressant that's not working. I just need advice how do you deal with crohn's and IBS???

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 10/26/2008 3:28 PM (GMT -7)   
Welcome to HW
I am so glad you have fopund us
Yes it does hurt to hear our kids say we are always sick
I have had to have Cait ( teen ) clean me up after an accident an that took alot of kahoonas on
her part

I was so embarrassed
BUT she broke that by saying
"now Mom do we have to start potty training 101 with you "
Smartmouth she is
But a joy ............the best in my life
And the ppl and help support and understanding you get from all here
Again welcome and
DO stay with us
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                    Donate at  www.healingwell.com
Moderator @ Alzheimer's,Co Mod @ Anxiety/ Panic,Co Mod @ Crohns 
                                    FIGHT the FIGHT with all YOU HAVE
               Look For The GOOD,Even At Your Lowest
     Listen To Your Heart,Look Inside Yourself,Understand You

New Member

Date Joined Oct 2008
Total Posts : 11
   Posted 10/26/2008 3:49 PM (GMT -7)   
Thank you!! You know when you're sick nothing makes a whole lot of since...

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 10/26/2008 9:10 PM (GMT -7)   
Hi Kriste,

Our children take their cues from us. Be very careful how you feel about yourself . . . because it can really confuse your children. Make sure that you have dignity and respect for yourself, in spite of your disease. I know that can be really hard . . . but its really important. A sense of humor will work wonders too.

Our kids do see a lot . . . and the deal with some difficult situations . . . but it seems they become really special in the process. Even my grands are special because of or in spite of having helped me while I'm ill. They really "get it".

They learn how to make lemonade when they are dealt lemons. Not so bad . . . really.

If you continue to struggle with this process it would really be beneficial to get some professional help to work thru these difficult issues. Lord knows it can be overwhelming at times.

Glad you found us.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 10/27/2008 3:11 AM (GMT -7)   
Hi Welcome to Healing Well and glad you joined us. Does your daughter drink lots of fluids sometimes it's a matter of adding a banana or something that helps get the BM's going. Glad to see your getting some testing done for your crohn's .One thing I found to help with IBS was to go to the bathroom as soon as I felt I needed to have a BM. My problems have been better but it did take 2 surgeries and some meds to get me to where I'am at now and some diet changes. Keep in touch and let us know how things are going. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 10/27/2008 6:34 AM (GMT -7)   
Hi and Welcome to HW. All of us enjoy this site.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis

New Member

Date Joined Oct 2008
Total Posts : 11
   Posted 10/28/2008 6:30 PM (GMT -7)   
Thank everyone so much!! It is much easier to talk with pep that know what it feels like and what I'm going through. Looking at pep with these diseases is you cant look at me and tell I'm even sick so lot's of pep think it's just in your head and i keep telling them NO IT'S IN MY BELLY!! My daughter is add/adhd so she's on meds. Hopefully, that's why she constipated It's devastating to think i could of giving her these problems. I wouldn't wish crohn's or IBS on my worst enermy. When you're down--- You're down. And my body is just down feeling. But thank you to everyone who has helped

Regular Member

Date Joined Oct 2008
Total Posts : 33
   Posted 10/28/2008 6:38 PM (GMT -7)   
Just joined this forum myself today and am finding lots of useful info. I've had a bad time of it over the yers but Remicade has been a wonder drug for me. Keeping my fingers crossed that it continues to work. Hang in there! And I agree... a sense of humor even throught the pain makes a big difference!

New Member

Date Joined Oct 2008
Total Posts : 11
   Posted 10/28/2008 7:03 PM (GMT -7)   
My problem is I'm now allergic to EVERYTHING 3 rounds of Remicade and I broke out in hives and bad allergic reaction. Pep without these problems have no clue of what we go through on a hourly basis. or our families. Good luck with the Remicade but if you start to break out in hives--- Get off!!
I'm not as strong as I used to be!!!

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 11/2/2008 7:39 AM (GMT -7)   

Welcome wowkriste!

I sure hope you start feeling better soon!

I honestly do not understand how someone can be diagnosed with Crohn's and then have a doctor change it to IBS...I can see having both, but once you have Crohn's, I think you always have it (sadly).  I personally would be annoyed with the doctor that told you that!  I hope you are able to find a GREAT GI doctor soon!

I have a 9 year old son who has also seen me sick.  It breaks your heart, really! 

My son has also had problems with constipation.  He is a very picky eater...I don't know if maybe your daughter is, but I hope and pray she does not get Crohn's! 

I have had others tell me "it is all in my head" and "gee you look just fine, you cannot possibly have Crohn's"
 and I find that sooo irritating!  I am a big believer in "don't judge someone till you have been in their shoes." 

Best of luck with everything and keep us posted! 

Take care,


Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 11/2/2008 11:38 AM (GMT -7)   


A little bit into my diagnosis when meds starting helping my kids were starting to sit on my lap and one asked if he was hurting my tummy. then i realized how many times I made them get off my lap cause it just hurt too bad. Now I am more under control and they can cuddle with me more. it will get better. I did not realize how much my disease had an effect on them until that moment. There were many times I asked one to run upstairs and get my shoes cause I was so nauseous I could not stand the thought of climbing stairs again.

I hope you get some relief soon... just treasure the good days. I know I have learned to!



Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica



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