Is anybody else being driven mad by people who constantly harrass you to do more, oblivious to the fact that you are doing a lot already?
I am not too strong at the moment, but I'm making an effort to go out and be with people several times a week. Some days I'm crying with pain and fatigue, but I still make myself leave the house if I possibly can. One person asked why I don't go out more, and *understood* when I explained: to go out is a huge sacrifice of energy, can only be accomplished when the gut allows me, and even on a good day is taxing enough that I need to spend the rest of that day and the next crashed out on the couch, so I need a lot of quiet recovery time between jaunts.
Everyone else - argh - gives a version of:
a. It's all a matter of attitude. If you tried hard enough, you'd be able to get out (would they be seeing me at all, if I didn't maintain a good attitude and get out of the house as often as I could?), or
b. There are people worse off than you (particularly aggravating, as I know that, and I wasn't even complaining about
my life, just saying how happy I was to be able to get to this particular social event), or
c. So what if I go out x times a week? I should be doing y and z as well.
Normal people spend their days at home, watching tv, if they have a virus. Those of us who have a chronic illness get up, get dressed, cook, clean, exercise, work, go out, even on bad days. And the "normal" people dare to lecture us on attitude??!!
Thanks. I just had to get that off my chest. Is anyone else being driven mad too?
Co-Moderator Crohn's Forum.