pain managment question....

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Regular Member

Date Joined Jul 2008
Total Posts : 113
   Posted 10/28/2008 8:47 AM (GMT -7)   
Okay, what i really wanna know is, when ur really in remission does the abdomnial pain and bloating discomfort really go away for the most part? i have vicodin right now for the pain and tylenol 3...i only take maybe one a day when im having severe discomfort..tylenol doesnt do anything for me anymore..what im really worried about is if my doctors will prescribe me more once im all out...does anyone have problems with that? doctors denying them pain killers? im just so worried they're gonna think im a druggie! i feel like i have to hoard my pills cuz im so scared im gonna be in so much pain and have nothing to take cuz i ran out and my doctor wont give me anymore...are doctors really big jerks about that stuff???

Regular Member

Date Joined Mar 2006
Total Posts : 310
   Posted 10/28/2008 8:53 AM (GMT -7)   
Not really... I still have abdominal pain and bloating from time to time, and I'm considered to be in remission. Mainly it happens as gas pain or when I eat something that I shouldn't have eaten (live and learn, right?). I also have problems with joint pain. As for whether or not the doc will give you more, all you can really do is ask... some docs are more flexible about that than others. Tylenol helps most of the aches/pains that I have but sometimes takes a while to kick in and do anything.

Veteran Member

Date Joined Jul 2005
Total Posts : 733
   Posted 10/28/2008 10:27 AM (GMT -7)   
Tylenol is a non-steroidal-anti-inflamatory drug (NSAID's for short). My GI says that NSAID's are a big no-no for my crohn's, and I think he's right. When I'm in pain, I get ultram. He only gives me 30 at a time, and requires me to check in with his nurse for refills, but he's never denied me a refill. Betsy's right - some docs can be more difficult than others, but most GI's know the pain must be dealt with. You have a right to a certain quality of life that should not involve large amounts of's nothing to feel guilty about. Set aside a few pills for an "emergency" and then make your doc refill those scripts.
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Currently running on Humira and Hope.
(miscarried at 13 weeks, now waiting to heal before trying again)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson

Regular Member

Date Joined Mar 2006
Total Posts : 310
   Posted 10/28/2008 11:16 AM (GMT -7)   
Yes, it sounds like pain management is very much an individual thing... I'm not allowed to take aspirin b/c it can cause intestinal bleeding, and I try not to use the Tylenol too much although it does help if I take it. Quality of life is definitely an issue with Crohn's and your doctor should be active in your pain management and concerned about your well-being. Ask for what you need.

Regular Member

Date Joined Oct 2007
Total Posts : 208
   Posted 10/28/2008 12:16 PM (GMT -7)   
Tylenol is NOT an NSAID. Crohnie's have no OTC options except Tylenol. Asprin, Advil (ibuprophen), Exedrin, all of those are NSAIDS. Problem is, Tylenol usually doesn't cut for the pain.

Pentasa- 1000mg/2x 1/08; Percocet
Remicade 1st infusion 7/24/08
Ultram ER 200mg; Prilosec 40mg; Xanax-ANXIETY; Cymbalta 60mg
Entocort 9mg
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Currently on a Low-residue diet as of 11/26

I'm so tired, when will this get better?

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 10/28/2008 12:25 PM (GMT -7)   
I get my pain meds from my family doctor not my GI. I never have any problems getting refills.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined Aug 2007
Total Posts : 79
   Posted 10/28/2008 12:44 PM (GMT -7)   
I haven't had a flare since last spring but I do still have a considerable amount of pain. For me it's mostly joint pain... for some reason those bother me more than the gut pain. I have been trying to limit narcotic painkillers and my doctor gave me some Darvocet. It works pretty well- really helps me get a good nights sleep. Tylenol by itself is not terrible effective for me.

I do always keep a few of the "good stuff" vicodan on hand for those really bad days. Especially when my migraines come. I don't know which is worse some days the migraines or the crohn's. And I swear they are related because they both flare up at the same time.
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