A few post surgery ?'s

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Regular Member

Date Joined Feb 2008
Total Posts : 132
   Posted 11/1/2008 9:29 PM (GMT -7)   
Hi all, it's needy lil me again =) I have a few questions that I hope are not foolish......
A quick update on my girl, she seen her specialist Wednesday. He agreed that she should stay out of school for another 7-10 days then see him for a follow up on the 11th. However, as I said before she is very anxious to get back to her life and was able to talk him into letting her start half days on Monday, as tolerated. If that goes well she can resume full days on the 12th after seeing him the 11th. In the mean time, he said she needs to use a wheelchair at school due to the amount of walking. The blood loss is a bigger concern, I guess. Cross your fingers that her first day will go well. His final count was 1 & 1/2 ft they removed. As I said before her blood work didn't show active disease.

So my question's are:

-How do they differentiate between active and inactive disease? Does that mean she is in remission?

-She has been having bowel movements again and it's diarrhea, does that ever subside or is it from surgery and will get better?

-She should continue avoiding foods that bothered her before, right? And those that are harder to digest?

Hope everyone's doing as well as they can!
32 yr old Dx w/UC in 2001 - some what controlled by diet. I take multi-vitamins & probiotics.
Mother to 16 yr old daughter dx w/CD 9/07- she had surgery for abscesses 11/07, ileocolectomy/resection 10/08. She is taking multi-vit, iron for anemia, probiotics, bentyl prn, prilosec 20mg-x2, 6 mp 50mg-x3

Regular Member

Date Joined Oct 2008
Total Posts : 33
   Posted 11/1/2008 10:20 PM (GMT -7)   
Hi lil momma

I have had Crohn's for 14 years and had three resections and an adhesiotomy, along with many complications. I haven't had a solid bowel movement in 16 years.... altough many people I know with Crohn's have formed BM's in remision. Remission can be a subjective condition, though if your daughter is feeling generally well, likely it's remission. Absolutely she should avoid foods that have caused symptoms in the past. I've found that for me it is impossible to strictly follow any kind of diet. I love food!! I know that if I eat certain foods I may have a hard time for a few days, but it will pass. I refuse to let this disease completely control my life. Knowledge is power and I am in control. The best advice I can give you is to tell your daughter that no one knows her body better than she does and it will tell her when the Crohn's is active or not. Good luck to you and to your daughter! No advice works for everyone. Ultimately, your daughter must pay attention to what her body is telling her and go from there. There is always hope!

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/2/2008 5:37 AM (GMT -7)   
Hi lil- Momma The blood tells if the body is going into a fighting mode I guess is one way to put it. Alot of people have D at first until things get improved .I'd go easy on the digestive track for awhile and still do,I stay away from foods that bother me. See Sierra is going back to school .Wishing her all the best on her first day back . lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail

Regular Member

Date Joined Jul 2007
Total Posts : 239
   Posted 11/2/2008 8:28 AM (GMT -7)   
I am so happy for Sierra that she gets to start back at a normal life! As normal as it can be for her! I had D after surgery for about 6 weeks, and my doc said that was normal.
diagnosed w/Crohn's 11/06. 34f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bentyl, entocort, vicodin as needed, Humira, metoprolol for orthostatic hypotension and heart palpitations. Bowel resection 9/07. Active disease back, darn it 8/08. 11 year old son with IBS-C, on Bentyl.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 11/2/2008 9:28 AM (GMT -7)   
Yes it is normal to have D after surgery for a while, how long will depend on Sierra and how her healing goes and what she eats. I too would recommend she stay away from foods that bothered her in the past for a while. Gradually, as she feels better, she can try a small amount of something and see how it goes. I would do this on maybe a Friday afternoon, when the ramifications won't cause too much disruption to her school work, if you know what I mean. I have been known to have a salad on a Friday night when I was really craving one, knowing that I would pay for it on Saturday, but I didn't have any place I had to go, so it was worth it to me to satisfy my craving. If her blood work is looking good then most likely she doesn't have active disease going on. This is something that as she gets older she will be able to get more of a handle on herself. Basically. just knowing when things don't feel "right".

I'm so glad that she is on the mend and on her way to feeling better.

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

New Member

Date Joined Nov 2008
Total Posts : 17
   Posted 11/2/2008 10:22 AM (GMT -7)   
I had a foot and a half of my intestine removed this summer...and I still have chronic diarrhea...doc said that with the part that was removed (end of ileum and part of colon) that it's normal to have diarrhea as I will absorb less water, digest less fat, etc...she also said I will need B12 shots...

Even after my surgery, I still have some active crohns(not in remission) so I had to start humira injections a month ago...

I have found that even foods that bothered me before surgery are generally ok for me now, as long as I stay on a low fat diet...too much fat, I get diarrhea and cramping...if I eat lots of oatmeal in addition to normal foods, I am good.
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