Negative scope

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New Member

Date Joined Oct 2007
Total Posts : 9
   Posted 11/2/2008 1:43 PM (GMT -7)   
I am amazed.  I have now had 2 colonoscopies 18 mos apart and they are both normal.  This is despite having a scope initially showing definitive ileitis.  My symptoms persist (fatigue and abdominal pain) despite 75 mg of 6MP, 9 mg of Entocort and Pentasa.  Endoscope = remission but Symptoms = active disease.  My GI wants me to decrease my entocort but I am little worried given my continued symptoms.  Anyone else have a disconnect between symptoms & scope findings??

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/2/2008 2:16 PM (GMT -7)   
Hi Just want to stop in and say that is great you must be doing good and hope your remission last a long time. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Veteran Member

Date Joined Mar 2006
Total Posts : 1169
   Posted 11/2/2008 2:30 PM (GMT -7)   
A colonoscopy only looks at the colon and the last fee inches of the terminal ileum. It cannot visualize the rest of the small bowel, and an upper endoscope can only see the duodenum and the top few inches of the small intestine. It is entirely possible to have active disease in the middle ofthe small bowel with symptoms and still dislpay nothing from a colonoscopy. You might talk to your GI about a capsule endoscopyor even a small bowel follow through study to look there.
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