Is the SCD a crock?

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Regular Member

Date Joined Oct 2008
Total Posts : 29
   Posted 11/3/2008 10:42 AM (GMT -7)   
I was looking at some of the foods you can eat and they look terrible.  Lettuce and nuts are really hard on your guts and if you have partial small bowel obstruction you are forbidden to eat them.  I can't see any benefit for me trying this diet unless I want to go back to the hospital with a bowel obstruction.
My Crohn's is in my jejunum and terminal ileum.  I'm still iffy about Celiac although I tested negative for it.  I went on a gluten free diet anyway just to see if I notice an improvement.
The blood test tested neg for celiac as did the biopsy.  My biopsy actually tested neg for Crohn's as well, but the IBD-7 panel tested positive.
I'm going to try to get a second opinion.  Any idea what the new Dr is going to do?  Is he going to want to do another endo/colonoscopy?  I have to travel almost two hours to see him. 

Veteran Member

Date Joined Feb 2003
Total Posts : 1811
   Posted 11/3/2008 11:07 AM (GMT -7)   
Well, if you've read the book then you'll know that you can't eat the lettuce and the nuts until you reach a certain point. And of course if you have a partial obstruction then you SHOULDN'T eat them. Are you really asking if it's a crock or not? Why don't you search the SCD posts and you will see who has had success on the diet. I for one had GREAT success and I know that it is NOT a crock. If you're willing to try it, you have nothing to lose. You can find out if it works for you or not.

As for your question about the 2nd opinion - I doubt doc #2 will want to run a 2nd set of tests. He'll just look at the first set and draw his own conclusions.

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 11/3/2008 1:40 PM (GMT -7)   
I think it works for some people and for others it does not.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Regular Member

Date Joined Apr 2008
Total Posts : 227
   Posted 11/3/2008 2:44 PM (GMT -7)   
Some reports are that it works up to 85% of the time. Similarly, Lutz in "Life Without Bread" reports that carbohydrate restriction (to no more than 72 grams/day) is effective around 85-90% in maintaining remission at the three year mark. Paperwork from the Ebringer group in the UK have shown a good reason to believe that starch intake (which is forbidden with the SCD) has a direct effect on the growth of certain bacteria which in turn cause the pain and suffering in Crohn's as well as ankylosing spondylitis.

I've been on the SCD since 19 December, 2007. After two months, the bleeding stopped. Within 3 months, I had put on 13 pounds. On Tuesday, I got my blood panels back; in the absence of iron supplementation, all my blood values were normal except for two trivial exceptions that were just barely out of bounds. I have been free of medications since January (against the advice of my physician). I have returned to going caving- strenuous trips that last for hours- and exercise at least 5x/week.

So, yeah. It works for some people.

Regular Member

Date Joined Feb 2005
Total Posts : 455
   Posted 11/3/2008 7:02 PM (GMT -7)   
Please people...if you haven't read the book or did any research..dont try will end up right back here complaining how it doesn't work. I used to talk to people that werent getting any results, and I could always pick one or more things that they didnt even know was illegal that they were using daily.
SCD since 01, remission since 01, occasional Arby's breaks :)

Regular Member

Date Joined Mar 2006
Total Posts : 310
   Posted 11/3/2008 7:07 PM (GMT -7)   
I read the book a couple of years after diagnosis and tried the diet. It did not work for me, but there are some specific foods included that really give me trouble, so I was not too surprised. However, I have heard here and elsewhere that it works for many people. What worked better for me was simply trial and error, eliminating those foods that give me problems and being sensible about portion sizes and meal choices. As a caveat, I will add that my disease is considered to be mild, and although I've had my share of flare-ups, they've been minor compared to what many patients with more severe disease experience. To me, diet is as individual an aspect of disease management as any other aspect of it, and you have to work to find what will be best for you.
Dx Crohn's Disease 1996
Have taken Prednisone, Pentasa, Rowasa, and Asacol
Currently on Asacol 2400 mg daily to manage remission

Veteran Member

Date Joined Oct 2008
Total Posts : 1343
   Posted 11/3/2008 9:56 PM (GMT -7)   
From what I've read, the amount of scarring will also affect how well the diet works. If you already have a bunch of narrow spots, and it's due to scar tissue rather than inflammation, you won't be able to eat more advanced foods.
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