Positive Latent TB test

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Regular Member

Date Joined Sep 2006
Total Posts : 241
   Posted 11/3/2008 11:25 PM (GMT -7)   
Here we go.  I was on Remicaide the past year.  I tested negative for TB before I started.  My new doctor wants to put me on Humira.  I took the TB test three weeks ago and tested positive for Latent TB.  So it is not active.  So, according to Center for Infectious Disease office, I have to take the medication for 9 months.  My doctor won't treat me for the flare that I am in for the next two months.  He did call in a script for "abdominal discomfort" but hello??? 7 pounds in the last week lost because I am afraid to eat.  Any words of wisdom or prior experiences?  My daughter had a positive test but since her chest x-ray, like mine, was fine, she is not on any meds.  Please help!  Especially Lynn.  Thanks everyone

Veteran Member

Date Joined Jan 2003
Total Posts : 6131
   Posted 11/4/2008 2:24 AM (GMT -7)   
where do you live? have you been around homeless or immigrant populations , im sure the health dept already asked you, but just curious.


Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/4/2008 5:31 AM (GMT -7)   
Hi Is your daughter going to be treated as well. Maybe the treatment will also help your CD some of us do good on antibotics. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail

Regular Member

Date Joined Jan 2006
Total Posts : 315
   Posted 11/4/2008 7:40 AM (GMT -7)   
Latent TB is very different from active TB.  Latent TB is not contagious and is not dangerous to others.
In 2004, I was diagnosed of latent TB and was cleared of active TB.  I do not know how long I have had latent TB.  It could be 10 years or 30 years.  In 2004, my doctor recommended me to have my latent TB treated.  But I refused, because the medicine has side effects to my liver and takes too long.  Latent TB could only be brought active when one's immune system is severely comprised, for instance, when Remecade is administered.  My father has latent TB all his life.  He is in his 70s.

Diagnosed with CD in 1994;

In 1994 I was treated with Pentasa of no avail.  Have being treated with Chinese herbal medicines for over 10 years.

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 11/4/2008 10:24 AM (GMT -7)   
I had a positive PPD back in college.  My entire family tested negative, so who knows where I was exposed.  I took INH for a year and now get chest xrays on regular basis.  The do  regular blood tests to check liver functionality.  And it is a scary drug, but with Crohn's it's so important to be treated so that you can use the TNF meds.  Latent TB and TNF blockers are a scary combo.  Maybe you can use the dreaded steroids for the couple months until your doc says it's safe to start a TNF-alpha med?  You really don't want TB on top of Crohn's...  I know it's not what you want to hear, but once the TB goes into active phase (which is not unlikely on the TNF drugs) you then expose many others which get latent...
Not that you want to try Tysabri, but I was told that it does not carry the high risk of TB activation.
Good luck!!!

--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08 STOPPED Tysabri 10/3/08,
--currently taking budesonide suppositories, 3mg at night.  Doing well with this so far.
--single mom to 11-yr-old girl

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