New CD dx... and I'm scared.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Nov 2008
Total Posts : 1
   Posted 11/5/2008 5:32 PM (GMT -7)   
I've been reviewing a lot of posts and I desperately want to talk to someone who is going through something that I'm going through.  I got the dx about 3 months ago and I feel like i'm lost, confused, and scared.  I just want to know what lies ahead?  Has anyone tried natural supplements that work?  What meds should I seriously stay away from?  I'm taking lialda right now.

Regular Member

Date Joined Mar 2008
Total Posts : 54
   Posted 11/5/2008 6:04 PM (GMT -7)   
Sorry to hear about your dx.

Make sure you are taking care of yourself.

Everybody is so different . What helped me was to take one day at a time. Keep a journal of symptoms.
Ask alot of questions and read all you can and be informed. Lots of good reading out here.

Be as healthy as you can. Eat right and excercise. I think taking care of yourself is one of your
first defenses. Also, make sure you are getting sleep.

Good Luck remember you are not alone.
Diagnosed 2004 - Chrohns and UC - Currently on no medication.
Multiple other chronic illnesses and allregic to many things.

Wish upon a Lucky Star!

Veteran Member

Date Joined Nov 2005
Total Posts : 1340
   Posted 11/5/2008 8:45 PM (GMT -7)   
Welcome, sorry you have CD too. As LuckyStar said, we are all different. We have different symptoms and different meds/diets work for some of us. Keeping a food journal may help you track what foods won't work for you and helps you come up with a good diet plan. Read some general info (CCFA is a good source) but don't go nuts. There are some rare extremes to this disease that will likely never apply to you, so keep that in mind when you do read things. Also, don't let the posts here scare you. People tend to post more when they are feeling bad, so you see some of the worst here. When people are feeling good they are out leading their lives and check in less often.

Many/most people with this disease lead normal lives with short/temporary interruptions because of the disease. I've been in remission for several years (essentially no symptoms and no inflammation). I had only one real flare after diagnosis and controlled it with meds. Some people here have had decades-long remissions. I hope you will be in that camp.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, but Ive gone rogue and med-free to nurse.

Regular Member

Date Joined Aug 2008
Total Posts : 467
   Posted 11/5/2008 8:50 PM (GMT -7)   
My biggest regret is not keeping a journal of symptoms, foods eaten, chemicals I was close to (Bleach, Gasoline...) and even when I walked by someone with strong purfume. I know most of these really set me off, and prolonged exposure begins GI symptoms, throws me out of remission, and sets of the arthritic symptoms, A journal works great because we Crohnies are all so different
              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!

Regular Member

Date Joined Dec 2007
Total Posts : 298
   Posted 11/5/2008 8:57 PM (GMT -7)   
I was diagnosed about 8 months ago. I was/am disappointed, scared, confused. But you have to find peace and move on. I have things to accomplish and it's not going to stop me.

In choosing which meds to take and when, it helps to find a doctor you can trust . Immunomodulators and suppressors come with their share of risks, but there is a cost/benefit analysis. Become aware of the meds commonly used and their side effects. If your Crohn's is bad enough, I mean if you are at risk of obstructing or anemic, severely underweight, etc. then the benefit will outweight those side effects.

I have had success with enteral nutrition (liquid diet) and Entocort. Both are quite mild. For a while after my diagnosis I kept a journal of food and symptoms. I did not identify problem foods but monitored my progress with meds, and it helped me to feel more "in control."

The supplements I have used are omega-3 fatty acids (organic flax oil, fisol); folic acid; vitamin E; and probiotics, specifically VSL#3 and Primadophilus reuteri by Nature's Way.

Try to take supplements, exercise, sleep enough, avoid stress. It may help but definitely won't hurt.

July 2007 Drug-Induced Liver Injury
January 2008 Crohn's Ileitis
Currently trying... Enteral Nutrition, Flax Oil, VSL#3, Folic Acid, Vitamin E

Post Edited (Illini) : 11/5/2008 9:00:30 PM (GMT-7)

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 11/5/2008 9:12 PM (GMT -7)   
Like others have said:
Keep a journal for the food you eat and its reactions
Keep a journal of how symptoms progress or regress
Cry when you want you(it seriously helps)
Don't under any circumstances or noble feeling of obligation overwork yourself
Be extremely careful with your diet
Chew your food to liquid and drink plenty of liquid itself(preferably water)

There will be extremely difficult times, but nothing you can't survive. You've made it this far and I applaud you for it.

As for extra supplements, a good multivitamin with iron and folic acid definitely, omega 3 tablets, vitamin c if you're on any sort of immunosuppressant, and I take bee propolis for a natural supplement which seems to be helping.


Overdoing it will do you in. It nearly did me. Light exercise is fine but stop when your body tells you to.

And of course, don't let other people bring you down. Especially those who aren't going through this. They have no idea what they are talking about so keep that in mind, keep no ill will, and, and always vent when you need to. If there aren't any people in your immediate area then feel free to vent here. There will always be people here to support you.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 11/5/2008 11:33 PM (GMT -7)   
Probiotics are a good first step in the right direction, IBDers tend to have bacterial over-growth so we need to replenish the friendly bacteria since over-growth of bad bacteria can exacerbate our symptoms...

as mentioned above, a very healthy diet daily (no junk foods, processed foods, animal fats, refined sugar, artificial sweetners, caffeine, as those can also exacerbate symptoms) and exercise in some form is better than nothing at all, even while flaring...

exercise promotes not only good over all health, physically and mentally but helps the bowels function properly as well, pilates, aquasize or a variety of yoga, even cardio and weight bearing exercise because those can help keep your bones stronger and healthy and can help stem off osteo and arthritis issues which are extra intestinal manifestations that can occur with having an IBD.

A lot of people with crohn's still lead very normal and functioning lives so try not to let your DX get into your head too much, it can do a number on our emotional/mental self as well, though regular exercise and a great diet can aid with those issues as well.


My bum is broken....there's a big crack down the middle of it! LOL :)

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/6/2008 4:59 AM (GMT -7)   
Hi Welcome to Healing Well this is a great place for support. I get B-12 shots once a month as alot of us have low B-12. I also take a vitamin to make sure I am getting my nutrients. Did you get diagnosed with mild crohn's? It is a bit mind boggling at first but I read alot here that helped. I also follow low roughage diet that helps. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Texan with Crohn's
Regular Member

Date Joined Dec 2007
Total Posts : 362
   Posted 11/6/2008 5:18 AM (GMT -7)   
Greetings Twitch.

Glad you found this wonderful place. Here you will find the support you need to get through the rough days. Denial, anger, resentment, depression, confusion, sadness, weakness, pain, nausea, pooooooo... no matter what come here and throw it all out. These folks are GREAT!!!

Like everyone is saying, keep a journal. Since you are new to this, you do not yet know what your body will or will not take. I take a multivitamin, 2 - 4 dissolvable B12s, 1 acidolophilus and 2 - 3 Omega3 suppliments per day. I found out the hard way NOT to test the foods that us cronies are told to stay away from.

Establish a good relationship with a doctor, whether your PCP GI, whoever is treating you. Listen to your body, it will tell you when you need rest, extra nourishment, an ER visit, etc. Everyone IS different and this DD (Darn Disease) can make you quiet loony from time to time... but that's okay.

Good luck. Stick around.

PS: The search box up top, us it for all medications, symptoms, etc. The CD forum covers everything and you will find a post about anything you have questions on via that box. I guarantee it.


wink wink :-) :-)

Regular Member

Date Joined Mar 2006
Total Posts : 310
   Posted 11/6/2008 8:08 AM (GMT -7)   
Welcome Twitch, I hope you and your doctor can figure out what will work best for you. It is scary after initial diagnosis, but taking it a day at a time, you will learn to manage your illness in a way that works for you and be able to move forward in life. Keep posting here whenever you have questions or concerns... we've been there and we are here to help.

Take care,

Dx Crohn's Disease 1996
Have taken Prednisone, Pentasa, Rowasa, and Asacol
Currently on Asacol 2400 mg daily to manage remission

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 17, 2017 9:01 AM (GMT -7)
There are a total of 2,906,427 posts in 318,957 threads.
View Active Threads

Who's Online
This forum has 158298 registered members. Please welcome our newest member, Naheedzzz.
347 Guest(s), 7 Registered Member(s) are currently online.  Details
Wings of Eagles, Kent M., Water Jaguar, deborahscinder, Progressing, PA_grandma, beatUC