Not sure if Ides is referring to me. I spent the last 10 weeks in misery. The first 7 battling what all my doctors thought was a sinus infection. I did 2 complete rounds of antibiotics, started 2 more, but had to stop due to reactions. I took several rounds of high doses of steroids, no real improvement. In this time, I had an ENT actually look into my sinus's and say they looked awful. It was only after a sinus CT that the ENT finally said that she thought it might be a migraine and not a sinus infection. Don't even get me started on the next 3 weeks of ineffective doctor's treatment, including hospital stays. Finally, I found a new doctor who had me better the next day, and actually pain free within 5 days.
So, Yes, I agree, THEY don't know everything. And we have to be our own advocates. But if the steroids are working for you, it could be sinus or it could be CD or it could be migraine too. Have they looked at your sinus, done a CT and/or an MRI to see what is going on. I know when I first started coming here, there were quite a few people who had chronic sinus issues, so I think it is something that tends to go with CD.
CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.
Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....