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Regular Member

Date Joined Aug 2008
Total Posts : 63
   Posted 11/10/2008 10:26 AM (GMT -7)   
Hi Guys, Just another "quick" one from me to you!
Have any of you told your bosses/co workers that you are on immunosuppresants?
Im starting Imuran and am concerned i could pick up something in the work place without knowing.
Some of my co-workers are always coming into work with colds and flus and never going to get antibiotics for them. Its horrible when they start spluttering and coughing etc!!
Should i tell them if they are ill not to come near me?
Or am i being a worry wort? Should i say nothing and just try to stay away from these people?
Has anyone actually picked up things more easily on imuran?

Regular Member

Date Joined Aug 2007
Total Posts : 23
   Posted 11/10/2008 12:01 PM (GMT -7)   

I work in an office where everyone is constantly sneezing, coughing, or carrying some bug.  I get the flu shot every year and have not gotten sick once.  They all know I am on immunosuppresants so they try to stay away but we all use the same fax, copier, lunch room, etc.  Try to keep yourself as healthy as possible and you should be okay.  When I was younger, I used to get sick all the time.  I have been on Imuran foor three years and have maybe had one cold.  I wouldn't worry too much.  You should be okay!

26 year old female
 Married to the most loving and supportive man
Just Graduted with my Master's Degree in Social Work
Diagnosed with Crohn's in 2004 after my gallbladder was removed 
Been on Prednisone, Asacol, and Remicade
Too many flare ups to count
Been hospitalized five times in the past year (thank you morphine)
Had Bowel Resection October 1st, 2008 (18 inches of small intestine was taken out)
Currently in remission but still taking Imuran
Couldn't do it without my family, especially my mom
Have the greatest doctor in the world and will fight this disease til the end!

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 11/10/2008 5:49 PM (GMT -7)   
Roxette, I have been on Imuran for 4 years. One of the theories about autoimmune diseases like Crohn's is that the immune system is sort of on overdrive. Think of it as hyperactive - going after our bodies instead of just going after foreign things like viruses and bacteria. So giving immunosuppressants actually makes the immune system "more" normal. One problem with immunosuppressants is they can lower the white cells too much which then can put you very much at risk. Your doctor is hopefully testing your blood periodically to keep and eye on that and other effects of Imuran.

I personally have fewer colds than I did prior to Imuran. I think alot of that is being more aware of the possibility of picking up something. My suggestion is to get a good hand sanitizer to keep at your desk. Be "stingy" about letting people use your pen. If they have to use your phone, keep sanitizing wipes to clean the handle and mouth piece. I would have no problems telling others BUT your work environment could be less "receptive" than those lovewtoleaugh deals with. Hopefully others will have other suggestions on how to aboid the office sneezers and coughers.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 11/10/2008 6:44 PM (GMT -7)   
I was on imuran for 3 yrs., and I am on remicade also.  I work in 4 different schools and I have 2 elementary kids, so you can only imagine the germs and bugs that I am around 24/7!   I am the healthiest one in the house, and I very rarely got a cold or the flu.  I wash my hands constantly.  I don't let anybody use my pen nor do I use anybody elses...that includes the pen at the stores that the cashier hands you to sign with....I always get my own pen out of my purse.   So, no its not always true that you will be more sick on imuran.  

Regular Member

Date Joined Aug 2008
Total Posts : 63
   Posted 11/11/2008 1:54 AM (GMT -7)   
Great thanks for all the re-assurance guys. I had a feeling i was being a bit of a worry wort!
Im paranoid about the imuran. I know there are some great stories out there about it and also some crappy ones. Im hoping i dont get too many of the side effects.
Ive just started back on prednisolone and started the imuran also. Last night i got 4hrs sleep and my tummy was very out of sorts the whole night. Feel fine today though;im not even tired! Strange!
I hate having this disease; if you are not coping with the effects of it we are trying to cope with side effects of the meds!
Suppose it could be a lot worse though.
Keep well everyone

Veteran Member

Date Joined Oct 2005
Total Posts : 1250
   Posted 11/11/2008 3:29 AM (GMT -7)   
Roxette, I'm not taking Imuran anymore, but I was on it for about 2 years. I work in a hospital. I never found Imuran to make me "pick up" any extra viruses. As a matter of fact, I noticed no change. I just made sure to wash my hands often, and used my own pen. Good luck! :-)

Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Slow-FE (Iron), Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)

New Member

Date Joined Nov 2008
Total Posts : 2
   Posted 11/11/2008 1:41 PM (GMT -7)   
Hi there, I've been on Imuran (125mg) for just under 10 years. I do get infections very easily, and I keep hand sanitizer at my desk, in my purse, etc. I am pretty open at work about the risk of infection and people generally take it seriously and stay away from me when they are sick. I guess I'm taking my chances being in a large office during flu season, but I think this is the least of my worries on Imuran :)

I try to avoid food cooked by other people (maybe I just have a complex about food poisoning) and I use the "dry" cycle in my dishwasher to sterilize my dishes. My doctor has also advised me to avoid pregnancy because of potential risk to a baby, although there seems to be a wide variety of opinions on this. Avoid kids with chicken pox... I had this when I was young but got it again while on Imuran and it wasn't fun. I also had to take antibiotics as a precaution after dental work because of the increased chance of infection, not sure how common this is but I guess you should tell your dentist you're taking it and let them decide.
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