Appointment done - rsults in

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Regular Member

Date Joined Oct 2008
Total Posts : 245
   Posted 11/13/2008 6:52 AM (GMT -7)   
Hi Guys,
I went to the GI today as you know and finally got some answers. I have been told that I have severe chrons disease. They could see 7 ulser in my desending colon on its own. They did not want to go much more into it because they did not want to hurt the colon. They have put me on 50 mg of steriods to try and bring the disease down abit and they want to do another colonoscopy in January to get the bigger picture. They felt that the colon was to damaged for them to risk going into it more today.
They have suggested that there is evidence to show that I have damage colon on up the track, but they would not risk passing it incase they busted the colon. They want to build it up again and check that damage in january. They suggested that surgery may be needed on that but want to try everything else before they go down that root.
Guys, what a relief to know what is going on. That is a huge weight of my shoulders. I want to thank each of you guys for all your help and advise whilst I was waiting to be DX. You people really are amazing - and I am so glad to have found this site. You where all spot on with your advise. And thanks for keeping me normal.

Regular Member

Date Joined Sep 2008
Total Posts : 150
   Posted 11/13/2008 7:42 AM (GMT -7)   
Wow Im glad you got your diagnosis. Atleast now you can rest easy, well kind of, and you know what is going on, and that you arent crazy and it isnt just all in your head.
So your colonoscopy, showed that?
Wow, my scope didnt show anything, and i also had a small bowel follow through, and it showed nothing as well, this is soo sooo frustrating, im glad you know now:)
take care,
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.

Regular Member

Date Joined Oct 2008
Total Posts : 245
   Posted 11/13/2008 9:00 AM (GMT -7)   
Hi Kelly,
I Have been waiting over 1 year for this DX. When I first had a scope done, it did not show anything other than inflammation and an annual fisser. This time around, my disease has been pretty bad. In fact, it has been that bade I have had three er visits and a million visits to my doctor. Just hang in there and it will come for you in the end.

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 11/13/2008 9:28 AM (GMT -7)   
Sorry you have crohns but I also know how it feels to finally have a doctor find the problem. They tend to make you feel like your crazy when the test results come back and they cant find anything. Hope the meds help you feel better. It took a while for them to find the right stuff for me but when they did things turned around. Hang in there and keep us up to date...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Regular Member

Date Joined Oct 2008
Total Posts : 27
   Posted 11/13/2008 9:55 AM (GMT -7)   
good for you for finally getting a diagnosis.......every little bit of stress relief helps, although the disease itself causes a good bit of stress and anxiety....just gotta stay positive, smile whenever you can, even when looking at the bad stuff, just that little motion of the mouth and cheeks can bring a good amount of healing, lol......on other notes....i also had some pretty intense inflammation when they did my colonoscopy, they started me on 40mg of prednisone and 9 pills of asacol per day....didn't notice any relief for the first couple weeks....hate telling you that its gonna take awhile, but relief should come eventually, everyone's different....they actually had to put me on stronger steroids in the hospital through IV, can't remember the name of it though...and all the antibiotics, and purinethol, and finally the blessing, for me anyway, the Remicade....i guess you gotta go through a bunch of other drugs first before you get to sample the big boy, but remicade saved my life, now with that and the others together, i'm safely in remission for now, and enjoying life will get there too, just hang in there!!!
29 years old, crohn's since december 07, fresh out of the hospital for 2 fistula/abscess surgeries, feeling much better, could it be remission???
currently taking:
asacol, prednisone, purinethol, vicodin, remicade
acidophilus/bifudus probiotic, organic whole food multi-vitamins
"Flow with whatever may happen and let your mind be free. Stay centered by accepting whatever you are doing" -Chuang Tzu

Veteran Member

Date Joined Oct 2005
Total Posts : 1250
   Posted 11/13/2008 10:14 AM (GMT -7)   
I'm so glad to hear your appointment went well and you finally got the answers you needed. I'm sorry about the Crohn's diagnosis, but at least you finally know what you are dealing with. How long do you have to take the 50mg Pred? Do they have you on a taper? Did they prescribe any other meds for you? Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax as needed, Prevacid 30mg, Vit B12, Slow-FE (Iron), Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)

Regular Member

Date Joined Nov 2008
Total Posts : 192
   Posted 11/13/2008 10:18 AM (GMT -7)   
I am glad you got some answers. I was just diagnosed with Crohn's too, but my case is not as severe as yours sounds. Good luck and I hope you get some relief soon!

Regular Member

Date Joined Jan 2008
Total Posts : 174
   Posted 11/13/2008 10:20 AM (GMT -7)   
Hi Conor, I am soo glad you finally got your answers. I am sorry it was so severe as they found. But now at least you know what you are dealing with and finding the right meds and getting some relief is next. yeah!!! Get lots of rest and keep us posted.

  • 41 yr old farmwife!! and mom of boys 11 and 9
  • resection surgery Feb. 2008
  • Pentasa, Entocort (when needed), cipralex,probiotic,fibre supplement

Regular Member

Date Joined Oct 2008
Total Posts : 377
   Posted 11/13/2008 10:37 AM (GMT -7)   
Aww man. Sucks that its going to take awhile but at least you're diagnosed. That can help with half the problem. You know you're not crazy, you know that there's a definite issue and now you can work on it as well as prepare for all the issues that arise ahead.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)

Regular Member

Date Joined Sep 2008
Total Posts : 76
   Posted 11/13/2008 10:45 AM (GMT -7)   
Hi Conor,  glad you got diagnosed.  Its very frustrating.  I was going for years not knowing what was wrong with me, they told me I had an ulcer at one stage.  To be honest I was beginning to think , or should I say they were making me think that it was all in me head.  good luck and at least you are not alone.  We will just have to keep up our Irish sense of humour  ha ! ha!  God Bless :-)

Regular Member

Date Joined Sep 2008
Total Posts : 150
   Posted 11/13/2008 10:52 AM (GMT -7)   
thanks conorconan, take care of yourself, and get better
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/13/2008 1:52 PM (GMT -7)   
Hi Conor I too was DX with severe crohn's and noe in remission. Pred. was my first start to better health. It will make you a little mental at times but helps. Hang in there. Wow seems you were smart to keep pushing for a DX. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Regular Member

Date Joined Oct 2008
Total Posts : 245
   Posted 11/13/2008 4:08 PM (GMT -7)   
Hi Guys,
Sorry for the delay in responding. WWE was in town and I had bought my son and nephew tickets in April, so I had to go. Boy, the are some big lad them wrestlers. LOL...
Thanks for the support guys. I really am greatful. I have been put on Presdnisolone 50 mg for 1 month. If they do not work, they will be moving me onto another drug that effects the immune system, closes it down or something. The frustration is finally over anf I can now start to work on getting this thing sorted out.
I called my GP to advise him of the outcome. He called to my house this afternoon(that was a shock) to discuss the whole disease with me. He is appointing the surgery's Nutriton expert to me to get me on a diet that will help it as well.
I am upset that I have this disease, but none the less, I have it and will have to deal with it. I just hate the fact that they have advised that if the pils given do not help by January, I will face surgery to take away the diseased parts.
Again Guys, thank you all so much for your support, you have been brilliant with your advise and help. KEANO, if I ever loss my Irish sense of humour, it will be a sorry day in my life. LOL...

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 11/13/2008 8:10 PM (GMT -7)   
Hi Conor,
Glad your Dr.s visit went well, but sorry to hear you have this DD.
Hopefully the pred will do its magic (my love/hate drug) and the imflammation will settle so they can have a better look at you.
Did your writing a list help with the Dr.s visit?
Take care

Regular Member

Date Joined Aug 2008
Total Posts : 63
   Posted 11/14/2008 1:53 AM (GMT -7)   
Hi Conor, Wanted to say sorry to hear you defo. have this stupid disease. But id say it is a relief to finally be able to know what is going on with your body. This is the start of a long road for you. I was only diagnosed last April when in a bad flare; i thought as soon as i had a diagnosis i would be on the road to recovery. Unfortunatley im still flaring and it takes time for the docs to get your medication right. Im learning about this disease every day. Wishing you all the best for the future and stay well :)

Regular Member

Date Joined Oct 2008
Total Posts : 245
   Posted 11/14/2008 2:07 AM (GMT -7)   
Hi Sdyneyjo and Roxette,
SdynetJo, I had my list ready to shoot them all out, and all my symptoms had already been sent by my GP. LOL.. I had questions writen down and the doctor answered them without me having to ask them. lol..The two doctor a mae and a female where amazingly good with me and where really caring. They really toook good care of me and my needs. They came in and set down with me in recovery and had a cup of tea and spoke to me for about 1 hour about this disease and what it does and how the conteract it.
Roxette, thanks for the advise. I am hopeful that I can get the scope carried out in January and they can discover that I am cleared up. LOL.... Well, us Irish are massive dreamer. I will be just glad to get a few days pain free if I can. Although, this morning, I had some bad bleeding and pain. LOL... Ohhh the fun we have with this disease.
Keep the faith folks.

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 11/14/2008 2:28 AM (GMT -7)   
I am glad you got dx, but sorry you have this darn disease. I might suggest a sbft and a pill cam before your next scope, because I have to wonder how much is in the small intestine and that is not able to be visualized.
Just realize that pred might make ya a bit nuts for a while, but I did ok with 80mg for three years.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Regular Member

Date Joined Oct 2008
Total Posts : 245
   Posted 11/14/2008 8:45 AM (GMT -7)   


Thanks for that. I have heard that there ae alot of side effects on these drugs. That I am not looking forward to. I took my first dose this morning, and touch wood, everything has been fine up until now. Are they really that nasty?

How is your mother? And how are you getting on? Did you get someone to go to your appoitment with you?

Regular Member

Date Joined Feb 2008
Total Posts : 132
   Posted 11/14/2008 12:48 PM (GMT -7)   
Glad to hear that you finally have some answers, sorry for the outcome =( Hopefully, you can start the road to better days via meds and or even surgery if that's what it takes. Prednisone is very nasty but when it works. It stinks to have to take a med to make you better that has horrible side effects. I'll be thinking of you and will certainly keep you in prayer.
32 yr old Dx w/UC in 2001 - some what controlled by diet. I take multi-vitamins & probiotics.
Mother to 16 yr old daughter dx w/CD 9/07- she had surgery for abscesses 11/07, ileocolectomy/resection 10/08. She is taking multi-vit, iron for anemia, probiotics, bentyl prn, prilosec 20mg-x2, 6 mp 50mg-x3

Regular Member

Date Joined Oct 2008
Total Posts : 245
   Posted 11/14/2008 1:48 PM (GMT -7)   

Hi Lil,


Thankyou. I have read about thsi drug and it does seem reather nasty. My GI doctor has said that if they are in anyway, shape or form to contact them and they will change them. Her word where this disease is nasty eough without any treatment making my life worse. LOL... He the fun will start.

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