Sierra update & a couple ?'s

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Regular Member

Date Joined Feb 2008
Total Posts : 132
   Posted 11/14/2008 10:42 AM (GMT -7)   
Sorry that I haven't been on my laptop is broke, my husband left his home today =) Just thought I'd let you all know that Sierra is doing great! Wednesday was her first full day of school. She did good, needed a nap when she got home but otherwise it went well. She seen the surgeon again on Tuesday and he said she was looking good! Her fatigue should start getting better. He said after a blood transfusion them cells die of 2-3 wks after and your body takes over. Basically she is at a low right now but should be elevating from here! She was able to start driving again too!

The surgeon said she should be able to eat whatever she wants now but her specialist says she should still avoid foods that are harder to digest like raw veggies, nuts, popcorn, seeds, anything with skin, etc.
-What do you all think, after surgery do you maintain the same diet or eat what you want?
-Could she have some things in moderation?

During the visit I discussed whether I should write a letter to the hospital concerning her care. He said absolutely and he would back us on it. He said he would be more than happy to go to administration on our behalf but we would have solider ground if I wrote a letter. He said the things that transpired were very disturbing to him and that the nursing staff needs to be able to differentiate between a child recovering from rsv verses a child that just had acute surgery. He also said that he feels from a medical aspect tat her warning signs were overlooked and resulted in an unnecessary traumatic situation.

I would love to share this letter with all of you and get any input you might have. It is a bit lengthy.
-Can I do that if I don't include any names or would that be against the rules?
32 yr old Dx w/UC in 2001 - some what controlled by diet. I take multi-vitamins & probiotics.
Mother to 16 yr old daughter dx w/CD 9/07- she had surgery for abscesses 11/07, ileocolectomy/resection 10/08. She is taking multi-vit, iron for anemia, probiotics, bentyl prn, prilosec 20mg-x2, 6 mp 50mg-x3

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/14/2008 10:58 AM (GMT -7)   
Hi Lil -momma Glad to hear Sierra is back to school and thumps up .I stay away from the foods you mentioned as a percaution. Not sure about the rules but it would be interesting to know about the letter. Certainly feel better care should have been given to her. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 11/14/2008 1:34 PM (GMT -7)   
I bet you can copy and paste as long as there is no identifiable information for you or the hospital.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

Regular Member

Date Joined Oct 2008
Total Posts : 377
   Posted 11/14/2008 3:12 PM (GMT -7)   
Glad she's returning to normal after her surgery. Soon she'll be just like every other teenager with those few precautionary an allergy.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2007.
Pentasa (and much mental screaming)

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 11/14/2008 4:17 PM (GMT -7)   
Glad to here Sierra's life is going so well. Good luck with your letter writing (always a hard thing for me to do)
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