Sorry that I haven't been on my laptop is broke, my husband left his home today =) Just thought I'd let you all know that Sierra is doing great! Wednesday was her first full day of school. She did good, needed a nap when she got home but otherwise it went well. She seen the surgeon again on Tuesday and he said she was looking good! Her fatigue should start getting better. He said after a blood transfusion them cells die of 2-3 wks after and your body takes over. Basically she is at a low right now but should be elevating from here! She was able to start driving again too!
The surgeon said she should be able to eat whatever she wants now but her specialist says she should still avoid foods that are harder to digest like raw veggies, nuts, popcorn, seeds, anything with skin, etc.
-What do you all think, after surgery do you maintain the same diet or eat what you want?
-Could she have some things in moderation?
During the visit I discussed whether I should write a letter to the hospital concerning her care. He said absolutely and he would back us on it. He said he would be more than happy to go to administration on our behalf but we would have solider ground if I wrote a letter. He said the things that transpired were very disturbing to him and that the nursing staff needs to be able to differentiate between a child recovering from rsv verses a child that just had acute surgery. He also said that he feels from a medical aspect tat her warning signs were overlooked and resulted in an unnecessary traumatic situation.
I would love to share this letter with all of you and get any input you might have. It is a bit lengthy.
-Can I do that if I don't include any names or would that be against the rules?
32 yr old Dx w/UC in 2001 - some what controlled by diet. I take multi-vitamins & probiotics.
Mother to 16 yr old daughter dx w/CD 9/07- she had surgery for abscesses 11/07, ileocolectomy/resection 10/08. She is taking multi-vit, iron for anemia, probiotics, bentyl prn, prilosec 20mg-x2, 6 mp 50mg-x3