I've had Crohns disease since I was 10 years old. It wasn't officially diagnosed then, but looking back on the hell I went through, theres no way it wasn't. I was diagnosed officially when I was 18. Doc said it was the worst ileum he'd even seen. I was put on Pentasa, Remicade, Imuran, Endocort, Prevacid, Bentyl, and Zelnorm.. until it was pulled. I was on the max dose of everything. Crohns has just gotten to me. The disease was so horrible to me between the ages of 18-23 that I didn't know how to deal. I was constantly tired, constanly running to the bathroom, I had terrible stomach pain, I felt hopeless. I finally went to my doctor and told him that I can't do it anymore. I can't take 20 pills a day, I just can't deal. I had a bowel resection in Dec. 07. I starting having crohns symptoms again in July.... I went on vacation with my friends and insted of taking shots of liquor.. I was taking shots of Pepto Bismol. My crohns has reoccured... just 7 months after surgery. I'm back on Endocort. I just want to scream. I find myself resenting my body alot for what it has put me through. I take alot of my anger out on myself by exercising until I literally feel like I could throw up. I'm mean to myself and shouldn't be. I do have a councilor and she's a big help. I guess I'm just wondering if anybody else feels like this? How do you cope when crohns takes over or your having a flare up or pain? I guess I just need some support... any ideas on anything?
-Heather, 23 yrs. old
- Crohns disease since 1995, offically diagnosed in 2003.
- Bowel resection in Dec. 07, Crohns reoccured July 08.
- Medications - Entocort 3mg.
- Emotional wreckage... to great to even begin.