47 years old, Been sick with CD since 1985!
2 Bowel Resections 1986 and 1995
5 + Hemorages where I landed in the ICU because of fast blood loss
Dr put me on Remicade 15 months ago and I was already feeling better on it when I started
Now for the past 6 weeks my CD is back and worse then ever
Pain, Cramps 15+ visits to the washroom a day (No blood yet)
Not responding to 60 mg of predinsone and losing around 2 pounds a week
Strong enough to work. Weak enough to feel lousy at work.
Developed a bad cough which they though might be a side effect of the Remicade but all lungs are clear so no infection. Took Zantac and cough is 98% better!
In any case, Dr is thinking of doubling the Remicade which I am concerned about, 500 mg once every two months to once a month!
My son asked me yesterday can you die of this?