what would you do?

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Regular Member

Date Joined Mar 2005
Total Posts : 61
   Posted 11/20/2008 11:28 AM (GMT -7)   
I am currently on Imuran and have been taking 150mg for about 4 years now. I have not had a flare since then and have felt pretty good. I am curious as to weather to stay on this or try not taking this anymore. Before taking Imuran, I was taking Asocol, which did not work for me. I know that taking the Imuran long term is not to good for you. I was wondering if anyone else has been in this type of situation. Im curious as to weather to stay on this or try no meds. Please let me know and thank you for your responses.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 11/20/2008 11:36 AM (GMT -7)   
Has your doctor told you you can't stay on this long term? I've been on 6MP, Imuran relative, for a decade or more. If it is working for you, why would you upset the apple cart? My feeling on the matter is that CDers need to be on some sort of maintenance meds, this one seems to be working for you, so why switch?

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Veteran Member

Date Joined Nov 2005
Total Posts : 1340
   Posted 11/20/2008 11:42 AM (GMT -7)   
I was on 6mp for about 5 years. I was in remission in the first year and stayed on it w/ Pentasa for maintenance. I went off over a year ago to have a baby and my GI is fine with me staying off of it. I'm continuing Pentasa alone for maintenance (with a little break, see my sig line). Pentasa did not work alone on a flare but seems to help me maintain the remission. When I stopped the 6mp was I was constantly afraid I'd get sick again, but now I'm feeling alright with the decision. I'd go right back on it if something came up.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.

Regular Member

Date Joined Mar 2005
Total Posts : 61
   Posted 11/20/2008 12:11 PM (GMT -7)   
We had talked about the possibility of going off the med. We both agreed, "don't rock the boat" if you don't need to. I would be nervous of going off the drug then getting a flare. I want to keep the scaring to a minimum. I just wanted some input from others regarding this. I appreciate your responses.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 11/20/2008 12:19 PM (GMT -7)   
I agree with Zanne on this one. Why upset the apple cart if you don't have to??? A little story for you. I once enjoyed a 20 year remission drug free. Would I do it again, NEVER!!!! Why??? Because my remission ended with an emergency resection that was very painful and traumatic for me. So for me, from now on I will always take some type of maintainence med. Good luck!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 11/20/2008 3:35 PM (GMT -7)   
I've been told that going off Imuran increases the risk of your reacting to it later, if you do have to go back on it in the future.
Co-Moderator Crohn's Forum.

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