Hi RNdove, and welcome to the forum! I hope your daughter feels much better soon!
I'm just going to add that like Osprey, my son has found relief--complete relief and remission--with diet. We initially started with the Maker's Diet, but then morphed into the Specific Carbohydrate Diet (SCD; name coined by Elaine Gottschall, author of "Breaking the Vicious Cycle"). The diet takes willpower because it eliminates junk and other possible favorites from the diet, but when one feels soooooo much better, they're motivated to stay on the plan.
Our GI specialists did not tell us about
the possibility of dietary control, which disappointed me when I ultimately read about
it on this forum and elsewhere online. Just a few days ago I ran across this list on one of the SCD websites. It's a list of doctors in the U.S. who believe the SCD can make a difference in treating Crohn's and other intestinal disorders. Maybe you will see a name you recognize of a doctor in your area on this list. Best wishes!
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more Specific Carbohydrate Diet (SCD) recipes, too! (cooking challenged)