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Mike from MI
New Member

Date Joined Nov 2008
Total Posts : 6
   Posted 11/29/2008 12:25 AM (GMT -7)   
How do you no when to get surgery with CD thanks mike,   took almost all meds for CD

Veteran Member

Date Joined Oct 2005
Total Posts : 1250
   Posted 11/29/2008 3:23 AM (GMT -7)   
Mike, Welcome to Healing well! I see you have a lot of questions. My first recommendation to you would be to go to the thread at the beginning of the page titled "Crohn's Disease Resources." It contains a wealth of information that will help you. Also, could you provide a little more information about yourself, such as how long you have had Crohn's, your current symptoms, and what meds you are on/have taken? That might make it a little easier for people here to answer your question regarding surgery.

I look forward to getting to know you!:-) Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 12 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)

Veteran Member

Date Joined Dec 2006
Total Posts : 559
   Posted 11/29/2008 4:28 AM (GMT -7)   
Mike from MI said...
How do you no when to get surgery with CD thanks mike, took almost all meds for CD

Where you find yourself frequently doubled-up in pain and heading to the emergency room due to an obstruction.

Obstructions are caused by the build-up of scar tissue on the inside of the intestine. No medication can remove that scar tissue, only surgery (that is, a bowel resection) can get rid of it. There is a tendency to think you're "cured" after surgery, but you are not. Fortunately, medications can reduce inflammation and prevent new scar tissue from building up.

Everyone's different, but some changes in your diet will also reduce inflammation. For me, that means no caffeine, alcohol, spices or milk (regular milk that is, lactose-free milk is OK but soy "milk" is even better).

How do you know when you're suffering from inflammation? Frequent diarrhea is the usual sign.

Crohn's since 1988
3 resections

Post Edited (ozonehole) : 11/29/2008 4:35:43 AM (GMT-7)

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/29/2008 6:15 AM (GMT -7)   
Hi Mike alot of us here have CD in the TI area and as Julie mentioned obstruction is a big key in deciding on surgery .I had mine because the meds weren't working for me.I had a large fis and blockages that caused alot of pain. I also had started to become incontinent .I would say that I let things go too far. I thought the meds would make me better but surgery was the only thing that helped. It took alot of needless problems when had I been more aware I would have decided surgery sooner.

Are you thinking of surgery? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Regular Member

Date Joined Aug 2006
Total Posts : 196
   Posted 11/29/2008 7:25 PM (GMT -7)   
I was diagnosed in April 05 with a 90% obstruction and a perforation. Surgery followed in May 05. I most likely had Crohn's since my early 20's - left to go untreated for 20 years. There were no meds that would have fixed my issues. Afterwards I started 6MP, then went to Remicade.

Humira is probably next for me as I'm reacting to the Remicade.

ski bum
Regular Member

Date Joined Jan 2007
Total Posts : 451
   Posted 11/29/2008 8:53 PM (GMT -7)   
Mike, I elected to have a resection before my situation became an emergency. I never experienced an obstruction (that I know of), never went to the ER and never experienced nausea and vomiting. I had a stricture seen on three small bowel follow thru studies (over a 3 year period) and wasn't getting relief from Pentasa, then Imuran, Entocort and finally Humira. When my pain went from occasional, to nightly, to about 10 hours/day, I chose to have surgery.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08. Back on Pentasa as maintenance.

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