Iwas dx'd with crohns sveral years ago but I am sure it was active for most of my life....just one of those shadow illnesses that lightly brushes you from time to time and makes you wonder what is going on....it wasn't until I was in my 40's that it really came on full blast....and in my mind (and in my dr's mind as well) it was mostly active in the large intestine. There was never any indication that it was in my small bowel.
In the last two or three years there were a few times when I felt "backed up" and had some very mild pain ....I really didn't give it much thought and even wondered if it was associated with the crohns. i did not mention it to my doctor. Then in April of this year (2008) it was the morning of our sons wedding and I was performing the ceremony....the night before my wife and i had catered the rehersal dinner for 70 people in our own home and i did most of the work (cooking and presentation). I was under lots of stress so i ate very little and drank almost no alcohol. The morning of I woke up hungry as heck and ate a big breakfast....by noon of that day I was feeling terrible....for the next 4 hours I was thought I was going to die or that my stomach would rupture. I was nausea...and constanly had the feeling that I needed to go to the bathroom. I had a fever and my sight was blurring. I made it to the wedding and about 15 minutes before the ceremony...I was fine. Good to go (and i did about an hour later) I performed the ceremony, stayed for the entire reception, ate a little bit of food but mostly just sipped water.
I did not know until about two months ago what I had gone through. I really thought i had food poisining. It never occured to me that it was my crohns, leats of all a blockage. then it happened again and again...each time i would be in lots of pain and with about 4 hours it would pass and i would be fine. I finally called my doctor and told him what was up (I also posted the symptoms on here and with in a few hours many folks here had me dx'd with a blockage....this is what really got me to call my doctor)
I went in to the see the doc (in late september) and told him i thought i had a blockage....based on what he knew about my medical history as it pertained to the crohns he was very surprised that I would think this...he said he dobted it, but asked why I thought so...so i described evrything, in cluding the high pitch sounds coming from my gut, the cramps above my belly button, the nausea, the vomitting of bile...he then agreed it was likely and he set up some tests....
before the first test I had an attack so severe I went to a local ER and was admitted for emergency surgery on a blockage (seen by a contrast Catscan)...by the next morning things had passed and they canceled the surgery and sent me home. I live 50 miles from my gastro so he was only invloved by phone. everyone agreed surgery is a last resort.
i did some tests and then I was scheduled for the pill cam on Novemebr 3rd. November 2nd i had the mother of all attacks. We called my doc and drove the 50 miles to his hospital. Another scan showed a major block...emergency surgery scheduled...5 hours later just before going in...I get better. So this time everyone agrees that i still need the surgery ...but they wait 36 hours so they can prep me with anti-b's and fluids. They find almost 30 inches of hard, narrow affected small intestine and remove it.
The biggest lesson here for me is that the worst part of crohns is the silent part of crohns. My doctor and the surgeon both think that this was something that had been festering for years...maybe a decade or two......while we were watching the large colon....we never suspected the small intestine was in bad trouble....
my answer to this is to have the pill cam done as often as possible or at least a barium contrast.....lesson learned for me.
BTW....the only change in my diet is that I cheww my food much better now and I have at leats one day a week where only eat liquids....no major solids....cream soups, teas, protien drinks.....that kind os stuff...
dx IBS 1999 UC 2000 CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose one shot every week. Also nightly dose of mesalamine.
Surgery Nov 4th, 2008 removed 30 inches of small bowel.
Crohns is currently active and has been since April of 2005
52 yrs old