surgery over - results scary and sad

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Regular Member

Date Joined Oct 2008
Total Posts : 63
   Posted 12/9/2008 12:59 PM (GMT -7)   
well, the surgery is over. Turns out it's cancer. I'm so scared. I just hope they removed it all. I don't typically ask for prayers but he's only 34 years old and we were just about to start a family. So, please send good thoughts.

Thank you for everything

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/9/2008 1:03 PM (GMT -7)   
Prayers going up as I post this. Please keep us posted on how your hubby is doing. May I ask for his first name, I like to pray for people by name.

God Bless you both,
Gail *Nanners*
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 12/9/2008 1:08 PM (GMT -7)   
I'm so sorry for you both. I will be keeping you and your family in my thoughts and prayers.

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Veteran Member

Date Joined Aug 2007
Total Posts : 990
   Posted 12/9/2008 1:27 PM (GMT -7)   
I will keep him in my prayers, and prayers for you as well.
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more Specific Carbohydrate Diet (SCD) recipes, too! (cooking challenged)

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 12/9/2008 1:31 PM (GMT -7)   
(((((((((((((((((((((((emrose and hubby))))))))))))))))))))
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Regular Member

Date Joined Oct 2008
Total Posts : 63
   Posted 12/9/2008 2:09 PM (GMT -7)   
his name is justin and we are in portland or. Thank you so much for your prayers. It means so much to us. I am just telling myself that we caught it in time and they removed everything. I just told him the bad news and He is very confused. But just trying to deal with he pain management now. I will let you know. Again, thank you very much for your support... I'm still in awe and totally shocked that my husband actually has (had!?) cancer. I'm just glad we opted for surgery otherwise we wouldn't know!

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 12/9/2008 2:13 PM (GMT -7)   
I'm really sorry about this news..I can't even imagine how shocking it is...but it's good that they found it so if anything needs to be done he can get well. You'll both be in my thoughts. I have faith that you two can pull through this!!!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 12/9/2008 3:37 PM (GMT -7)   
Hi thinking of you both hoping they got it all and that his recovery is a good one. How are you doing? Must have been a shock but best they found it take care and drop a line when you can. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Aimee =)
Veteran Member

Date Joined Jun 2004
Total Posts : 1020
   Posted 12/9/2008 3:53 PM (GMT -7)   
I'm so sorry. I am saying a prayer that it was all removed and won't return. Please update us.

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 12/9/2008 3:54 PM (GMT -7)   
Oh, emrose. I am so sorry.
Co-Moderator Crohn's Forum.

Regular Member

Date Joined Jun 2008
Total Posts : 167
   Posted 12/9/2008 4:19 PM (GMT -7)   
I,m so sorry to hear this news. My thoughts and prayers are with you!!
Dx with Crohn's in 1997 after 5 years of worsening symptoms.
Resection a few months after dx after 1 month on TPN and IV steroids.
Resection October 2008.
Also have severe asthma.

Tried: Pentasa, Cholestyramine

Presently taking: now on 45 mg prednisone, Tylenol 3, Cipro, Flagyl, probiotics, calcium, B12.
For asthma I take Advair 500, singulair, arieus

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 12/9/2008 4:28 PM (GMT -7)   
So sorry and I hope they got it all as well, sending you both tons of ((((((((((((((((HUGS))))))))))))) and best wishes of course. Please keep us posted.

My bum is broken....there's a big crack down the middle of it! LOL :)

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 12/9/2008 4:42 PM (GMT -7)   
emrose and justin - I am sorry about the news. However, I am very grateful that they decided to do the surgery and discovered the cancer. I am hopeful that it is early stage.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 12/9/2008 4:58 PM (GMT -7)   
Healing Well has been very succesful in the prayer department lately. Hopefully we can keep it up! I will be praying with everyone else.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

Regular Member

Date Joined Nov 2008
Total Posts : 24
   Posted 12/9/2008 5:18 PM (GMT -7)   
Prayers for you all.

Veteran Member

Date Joined Jan 2003
Total Posts : 6143
   Posted 12/9/2008 5:30 PM (GMT -7)   
good luck.. and good wishes.

Regular Member

Date Joined Nov 2008
Total Posts : 22
   Posted 12/9/2008 5:35 PM (GMT -7)   
My thought and prayers are with both you and Justin. Take Care and let us know how you are both managing.

Veteran Member

Date Joined Nov 2005
Total Posts : 1340
   Posted 12/9/2008 5:46 PM (GMT -7)   
Thinking of you and Justin
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.

Regular Member

Date Joined Oct 2008
Total Posts : 63
   Posted 12/9/2008 6:12 PM (GMT -7)   
thank you all so much. It brought tears to my eyes to read this thread and all your responses! We just talked to the surgeon. She said the liver, kidneys, and other organs looked good and she's confident she got it all. Next step is to make sure it wasn't in the lymph nodes. She said everything indicated crohns - his age, symptoms, tests, etc and that it was a 99.99% chance that it was crohns and a .01% chance that it was cancer. I never would have thought this would happen! And they think he's been living with cancer for years!! When you look at our wedding photos you would never guess it!

Thank you for letting me vent and share my feelings. This has been a crazy emotional roller coaster and you guys have been a wonderful community of support.

ski bum
Regular Member

Date Joined Jan 2007
Total Posts : 451
   Posted 12/9/2008 7:48 PM (GMT -7)   
I'm so sorry emrose. I'm sending good thoughts and prayers (hugs too) out into the universe for you and Justin.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08. Back on Pentasa as maintenance.

Veteran Member

Date Joined Sep 2007
Total Posts : 565
   Posted 12/9/2008 7:52 PM (GMT -7)   
sending healing thoughts your way. take lotsa care *hugs*
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 12/9/2008 7:53 PM (GMT -7)   
Im so sorry too emrose. My thoughts and prayers are with both you and Justin.

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 12/9/2008 8:36 PM (GMT -7)   
I'm sorry too... Just wanted to add my thoughts and best wishes (((hugs)))

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

Regular Member

Date Joined Jan 2008
Total Posts : 174
   Posted 12/9/2008 10:26 PM (GMT -7)   

sending you and your hubby prayers and lots of get well wishes.


Regular Member

Date Joined Jan 2006
Total Posts : 312
   Posted 12/9/2008 10:42 PM (GMT -7)   
Very sorry to hear that. All of us dread that result as well. How large was the tumor they removed? Good thing you did indeed do the surgery. Next step is staging.  Not seeing any mestastic tumors is a biggie. If its not in the lymphs you're probably good to go.  In the meantime, do whatever you can to help him recover from the nasty, but life saving surgery.

Best of luck and keep everyone updated!

Post Edited By Moderator (Ides) : 12/10/2008 3:42:34 PM (GMT-7)

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