Crohn's and other issues

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Regular Member

Date Joined Sep 2007
Total Posts : 75
   Posted Yesterday 4:56 PM (GMT -7)   
Hi all,
I recently moved from Dallas to Pittsburgh. I have been going to a new GI. She has ordered several tests since she more or less wants to start from the beginning with my treatment.  I had resection surgery in Oct. 2007 because of several stictures that I had. I had some of the small intestine removed close to end of it. This, from what I understand, is where a lot of the nutrients that the body needs is absorbed. I come to find out that I am low on iron, b12 and calcium.  I have started taking B12 shots. I had a DEXA bone density scan and it came back that I have Osteopenia. I have been taking a new multi vitamin with Iron. I am looking for more information. Are there others out there that have the same issue?
Also, I have been taking Pentasa for the past several years. I recently had a colonoscopy and a cat scan on the small intestine. It looks like the inflamation is starting again. She wants to put me on 6-MP. I have to go through a series of blood tests to determine the correct dosage. Does anyone have information on 6-MP
Thanks in advance.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted Yesterday 7:11 PM (GMT -7)   
Hi I like the calcium with vit D . Not much help with the med question but I am sure others will be aong to gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 12/12/2008 9:48 PM (GMT -7)   

I am not taking 6MP but I am on Imuran, which I understand, is closely related to 6MP.

Before I started the Imuran, my GI did a blood test to see how quickly I would metabolize the drug.  I believe they figure the dosage based on how quickly your body breaks it down and uses it.  They discovered that I am a slow metabolizer, for example, so I am not able to have higher doses of the drug.  I would guess they would look for the same thing with 6MP?

I hope that helps somewhat.  Best of luck!


Regular Member

Date Joined Apr 2008
Total Posts : 195
   Posted 12/12/2008 10:45 PM (GMT -7)   

Hi timmy, I havent yet had any surgeries. . . knock on wood :) I have been diagnosed with osteopenia for 4 years now due to a prolonged treatment of prednisone. . . 2 yrs straight of it which i was told by a doctor is a really bad thing to be on for so long. He also said the longest someone should be taking it is 6 weeks. It kind of surprises me that i hear many people being on it for years and years. Anyways that was off the topic lol. I started 6mp while i was on prednisone and weaned myself off pred. I was taking 6mp going on 7 yrs. I can't say it ever really worked for me, but everyone is different. I found I had the biggest mood swings on 6mp, it was like I was a b*tch from hell :(. I had told my G.I. that i wanted to find something esle to try, but he wanted to give it a little bit longer because he was "Sure" it was going to help. I have recently started taking methotrexate and have found it had helped me for a bit and has started to taper in its effectiveness and I am soon to be taking the IM of the methotrexate :( Also more off the topic sorry :) Well for supplements when i found out I had osteopenia I was prescribed Didrcal. It's a form of Calcium that isnt over the counter. It is used for older people with osteoperosis. It comes in a box with a ton of pills. Some open the bones to help the absorption of the calcium and the others are a high dose of calcium. As for the iron my doc suggested, that if i can handle it, taking the liquid iron because it is much more easily absorbed than the pills, also more effective. B 12 is a good idea. I also have  a b12 problem because i am gluten intolerant. I just buy a bottle of it on its own, but for you since you have had part of your small bowel removed a b12 shot is more appropriate, more chance of it being aborbed into the blood. A multivitman is also good.

6mp is a drug that has to be monitored for sure. I was getting my blood drawn once a month to make sure my white blood cell count was normal. Your immune system can crash if things go wrong. I know that is usually prescribed to cancer patients because it subdues your immune system. Taking this drug makes you more susceptible to other illnesses so being super careful about washing your hands and stuff is big must. Well thats all i cant think of for now sammy. Hope things go better for you :)


Age:22/6"1'/146lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal, 6mp
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Methotrexate as of October 2008
Problems:Fissure and Tags on rectum, blood clots, Chronic UTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s found a 6th G.I. crossing my fingers
Procedures: 4 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)

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