Tincture of Opium for Diarrhea

no one is upset Love. You actually brought up a drug that I (for one) didnt know about and I'm always grateful to get new information on this board.

I was primarily wondering if you'd tried Lomotil previously and that didnt work? Is the Opium the next step, or a lateral step (i.e. Remicade to Humira)?


Also sorta OT: I was on a day cruise with this woman who had been in some horrible accident and would need a cane for the rest of her life. She was sipping from a prescription bottle of Opium at a rate of once an hour or so.

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33 years old. Diagnosed in 2002ish. 

Taking Asacol, Lomotil TID, and on Remicade since 2004. 

Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 

Great to hear from someone else FINALLY, my goodness! What dose are you taking (or are we not allowed to talk about that on here?). Honestly, it only made me loopy the very 1st time I took it. Then after that nothing. Always make sure you go in between doses. I take 2-3 times a day now. I was desperate and needed some relief. Let me know how it goes. I would love to be updated as I just started as well. NOTHING else has given me ANY relief whatsoever!

What MAYO did you go to? Were they able to help you? I went last Jan (almost 1 year ago) and they were great BUT did not help me @ all. But that is okay, I do not regret going besides the fact that I am still paying off $10,000 due to it!

LOVEPINK

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I have had Crohn's since I was 21 years old and I am now almost 28....

I am currently on Prednisone and have tired literally every drug available.

Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!

Also recovering from a blood clot in my lung and of course the blood thinners really messed up my bleeding from my Crohn's....

Okay I got ya! I take 2-3 times a day and no problems with it! But like I said, I always go in between! I am 25 a day person as well, so good for you. I hope it helps and good luck to you. Going 20-25 times a day IN MY OPINION can be just as bad as taking an opioid, so I think all is fine. We always have to be careful with everything! Keep me up to date with it and how you are doing, could you? If you would like! LOVEPINK

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I have had Crohn's since I was 21 years old and I am now almost 28....

I am currently on Prednisone and have tired literally every drug available.

Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!

Also recovering from a blood clot in my lung and of course the blood thinners really messed up my bleeding from my Crohn's....

LOL Navy that sounds scary, the 18-foot scope, and YES, I think they did that...the single-balloon enteroscopy that goes into the proximal jejunum. Nuts!

Well, good news and bad news on the opium front...I have not had diarrhea for the past 12 hours (!!!) but I have spontaneously VOMITED twice. I don't know what that's about. I took the equivalent of one teaspoon (5 mL) and pushed it through my feeding tube, which goes into my duodenum...I remember when I first took Percocet after dental surgery I vomited and then was able to tolerate it after that, so maybe the same will happen with this stuff? Next time I try (after my next BM) I might halve the dose to see what happens...vomiting 5 minutes before my microbiology exam was not so pleasant!

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Co-moderator - IBS Forum

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