Joint pain. A different location everyday!! Is this Lupas, Arthritis?

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Regular Member

Date Joined Jan 2006
Total Posts : 303
   Posted 12/17/2008 4:27 PM (GMT -7)   
I have posted in other related fourms..Im desperate smhair
Please help me. Im a 30yo male with a significant history of Crohns disease. Is this Arthritis or something more serious?
Crohns -  diagnosed 2005. Small bowel resection in 2008. Been on and off prednisone since 2005. Most recent use of PRED was October 2008. Approx 2 months ago. Ive taken Humira for 2 months with last dose in October as well. I was taken off Humira due to rash on face, and numbness on face.
The only drugs Ive been taking since October is Low Dose Naltrexone, Zoloft, Klonopin. Thats it.
My Crohns is great, but now..........
1. Im being tortured!! I am having the WORST pain in my life in my joints. I cant take Pain Killers due to LDN,  I cant take NASIDS due to Crohns.
2. This joint pain has effected every joint in my body but only effects 1-2 joints at a time... 
3. The pain is ALWAYS worse at the end of the day and through out the night. It is Extremely painful during the night and I cannot sleep at all.
4. By the morning the pain is almost gone, then by afternoon it comes back IN A DIFFERENT SET OF JOINTS. This is really freaking me out.
5. There does not appear to be redness or swelling but it feels like my knee will explode with pressure.
6. Ive had this in my Jaw, hips, knees, ankles, wrists, toes, and fingers.
This is ruining my life. I just lay in pain all day without being able to interact with my family

29 YO Male
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08

Regular Member

Date Joined Jan 2006
Total Posts : 303
   Posted 12/17/2008 4:29 PM (GMT -7)   
Sorry for the yellow...LOL is google spell check.
29 YO Male
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 12/17/2008 4:34 PM (GMT -7)   
What are your energy levels like, Redspot? Are you having flu-like symptoms?

And how are you sleeping at night?
Co-Moderator Crohn's Forum.

Regular Member

Date Joined Jan 2006
Total Posts : 303
   Posted 12/17/2008 4:46 PM (GMT -7)   
ivy6 said...
What are your energy levels like, Redspot? Are you having flu-like symptoms?

And how are you sleeping at night?

Im not sleeping due to the pain. But overall my energy levels are in the dumps.
Sleep deprivation? or something eles. No flu like symptoms.
29 YO Male
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 12/17/2008 5:22 PM (GMT -7)   
I would ask to see a rhuematologist. Your symptoms could be that of quite a few things.

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 12/17/2008 5:45 PM (GMT -7)   
I would second a rhymie visit and make sure you have your ANA checked.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/18/2008 7:27 AM (GMT -7)   
I believe every Crohnie should have a Rheumy onboard. I have to agree with all the above and think you need to get checked out by a Rheumy. There are so many variables, I don't think anyone could give you a definitive answer. Good luck!!!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.

Regular Member

Date Joined Nov 2006
Total Posts : 281
   Posted 12/18/2008 8:58 PM (GMT -7)   
I am completely understanding of the place you are in right now with your joint pain. Are you taking any biologics, i.e. Remicade, Humira, etc? I was having such terrible joint pain that I was convinced that I had broken bones. That was how badly it hurt. Come to find out after 4 (once a month for 4 months) positive ANA tests that I have Lupus and Crohn's disease. My rheumy thinks that the joint pain is more a result of the Crohn's than the Lupus. This pain led my rheumy and GI (working together, thank goodness) to think that I was building antibodies to the Remicade I was taking at the time because it was no longer controlling my joint symptoms. They switched me to Humira before my CD came out of remission too.

I hope that you will find relief SOON. I know how painful it can be.

Currently 3 x per day 1000mgs Pentasa, Entocort (3mgs), Prilosec, multi vitamin, biotin, Lortab, Librax (for spasms) & VSL#3 (for probiotics) or activia yogurt.

Preparing to start Remicade because I am steroid dependent now.

New Member

Date Joined Dec 2008
Total Posts : 6
   Posted 12/28/2008 11:29 PM (GMT -7)   
So sorry to hear about your pain. My son is 10 and has CD.  He was dianosed with Enthisitis which is a common addition to people with CD.  It is similiar to Arthittis, but it is where the tendons meet the ligaments.  He gets it behind his knees and his ankles.  Since he is a kid, we do not give him pain meds but he does get a lot of ice at night, supportive shoes, and the more active he is the better.
Good luck.
If you need more info let me know.

New Member

Date Joined Jun 2009
Total Posts : 1
   Posted 6/29/2009 6:15 PM (GMT -7)   
Curious if the original poster has received any concrete answer.  I am experiencing an almost carbon copy of your descriptions.  Random joints, one or two at a time; much worse progressing to nighttime.  Very painful, hot joint.  Then the next day it's gone and "moves" to another "target" joint.  Example:  My L ankle, right thumb one day....then next day those are fine, but left 2nd toe and R wrist swollen and inflammed.  It even affected my neck for one day, then was gone.  Medrol Dose pack has worked wonders, but will be done in two days.  We'll see what happens then.

New Member

Date Joined Aug 2009
Total Posts : 1
   Posted 8/5/2009 6:35 AM (GMT -7)   
I am new to this site and to crohns, but I am having the same problems with my Joints.  My left hip hurts constantly, unable to sleep on that side at night.   My Dr precribed azathiprine and pentasa, but I still have stiffness and pain everyday. 
Last week I had another starange episode sitting at my desk at work, my blood pressure dropped to 77/53 and I was taken to the er.  Has this happened to anyone else with crohns.  It was very frightening, I felt like I was dying.

Regular Member

Date Joined Jun 2008
Total Posts : 167
   Posted 8/5/2009 7:24 AM (GMT -7)   
I had very similar symptoms after being on pred for over a year. The pain was crazy once I was off the pred.
Doctors all thought it was RA or Lupus. But all my blood work was normal. So they treated it as Fibromyalgia. My pain is much better now. I am sleeping better and really the only part that still bothers me are my fingers.
I agree with the others that you should try to get in to see a rheumy. If any doctor can figure it out it will be a rheumy.

Good luck with this. I always find the pain and lack of sleep is the most debilitating.

Dx with Crohn's in 1997 after 5 years of worsening symptoms.
Resection a few months after dx after 1 month on TPN and IV steroids.
Resection October 2008.
Also have severe asthma.
Fibromyalgia (allergic to Lyrica)

Tried: Pentasa, Cholestyramine, Asacol, Humira

Presently taking: now on Remicade, Imuran, probiotics, calcium, B12, nortryptiline.
For asthma I take Advair 250, singulair

Veteran Member

Date Joined Aug 2007
Total Posts : 884
   Posted 8/5/2009 12:32 PM (GMT -7)   
My Crohn's is in remission on Humira but my arthritis has been flaring since mid-January.  I can't stomach many pills and pain meds and prednisone was not doing enough.  My last resort was methotrexate, which I had to stop due to elevated liver enzymes.  Now my rheumy wants to switch me to Enbrel for the arthritis and have my GI treat my Crohn's with something else, which the GI is not happy about.  So, now I'm waiting to see if I have any other options other than to suffer.  I've tried just about all of the arthritis meds and this is proving to be very difficult to treat for me.  But, my arthritis is the same way sometimes - switching joints every day.  I was having swelling in mine sometimes too, though, before getting on the prednisone. 
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 

Regular Member

Date Joined Jun 2009
Total Posts : 354
   Posted 8/5/2009 1:27 PM (GMT -7)   

I just finish going through what you are going through. It went for 8 months. I was on remicade. Doc say it was remicade induced RA. The pain was horrible. Like you couldn't take anything for it due to the CD. So I suffered. I came to realized all lot of crohn's patient get antibodies from remicade and humira. So usualy the doc is to put you on another med to help with the anitbodies (my doc didn't.. I did all the research, and then told her, then she decided to put me back on Imuran and switch to humira) It works. I'm not crippled anymore.

I was recently in the hospital so for 4 days didn't take imuran, the RA came all back went back crippled. so went back took my imuran last 2 days the ra is gone. not crippled anymore.

This all started with the preds (been on 8 different times, but the last time in Oct 08 like you it all got allot worse, remicade helped for awhile)

I suggest you talk to your doctor about MTX, Imuran. These 2 meds that I know of help prevent antibodies.

Good luck!!

25 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Now on Humira and back on Imuran as well.RA pains all gone!

Veteran Member

Date Joined Jan 2009
Total Posts : 832
   Posted 8/5/2009 3:34 PM (GMT -7)   
I feel the same its like I am made of wood :S

I can hardly move and it hurts a lot !
I am also always sleepy and I have a small fever

The joints that are affected are my hips, knees, ankles, toes, elbows, well just most of the parts of me that can move ;)

I always thought it was related to some disease begin active in your body. Now my UC/CD is excellent but my liver is not good I have Auto immune hepatitis and that I think is causing the joint pains.

Why don't you go see your doc if you are in so much pain?
24 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
Crohn's disease in December 2008 Then they changed it to UC in June 2009.
and Autoimmune Hepeatitis in July 2009

Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ ~

Veteran Member

Date Joined Jun 2008
Total Posts : 1058
   Posted 8/5/2009 9:45 PM (GMT -7)   
Like mchaz said - Enthesitis or enthesopathy related to ankylosing spondylitis (AS) - more can be read at: Wikipedia
It is a complication of Crohn's and you may want to recruit a Rheumatologist for help with it. I have a suspicion that it is caused by high levels of TNF from the Crohn's, but that does not solve anything.

Becoming undone
Veteran Member

Date Joined Jul 2007
Total Posts : 927
   Posted 8/8/2009 1:29 PM (GMT -7)   
I think this a common problem. Heck, sometimes, many times, the arthritis is much worse that stomach issues. Sulfasalazine has worked wonders, but I also feel real bad when it is time for my next dose of Cimzia (it runs out about 3-7 days before the next dose).

My Rheummy and my GI also work closely together. Yeah, it seems that the pain is in the bone. But, it is so weird, my Rheummy found that it was the inflammation of the tendons like Keeper and mchaz.

Also, it may seem like its moving, but sometimes it may not be, just the pain is increased in another joint, but the pain that was there yesterday is still there, just not as severe, and therefore seems not to be there. (like if you're in a car crash, bust your femur and scrape the He** out your back, you may not even notice it, cuz the femur hurts like a bleep bleep.) My Rheummy tested my joints, and found tenderness even in the ones that didn't seem to hurt that day (you know, brought more pain, and therefore you noticed, yeah it hurts)

Make an appointment with your doc, cuz after you'll wonder why you didn't sooner.
"The earth laughs in flowers"

Post Edited (Becoming undone) : 8/9/2009 7:20:28 PM (GMT-6)

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 8/9/2009 2:28 PM (GMT -7)   
I think there is a crohns induced bone pain that inflames the tendons, muscles, etc. It does move around but I notice most in the joints that I use the most i.e. my fingers and my weight bearing joints. I have no proof just my opinion.
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I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

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