Old Crohnie w/ New Questions

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Regular Member

Date Joined Sep 2003
Total Posts : 217
   Posted 12/18/2008 9:53 PM (GMT -7)   
Hi all some of you long time posters may remember me from along time back when I use to be here more often. Now w/ a 21month old I don't have much pc time (or really want me pc time lol). I'm not really for sure what is wrong w/ me but figure it is my crohns. First I thought it might be something else but the old tale tale times of Crohn's has really hit this past week. So my questions.
I had a CT scan today however my dr wont be back in the office until Jan 5th. I can get the results myself tho but wont know what they mean really. Does anyone know what the results will actually say if I have active crohns again?
Also, I had severe crohns for years before finally having a resection back in 98 (2ft removed 18in ilieum and 6 in colon). I never had neasuea. This time it is awful and actually was the first symptom (I should mention that I have been in remission for years but still had usually 3 sometimes 5 bm's a day but was not the water D sorta normal poo but not any pain w/ it). Now I'm up to about 15 trips today and 3 imodium down the hatch. Not really stopping it but since my dr is out I'm having trouble getting any lomitol. So, do a lot of yall deal w/ this neasea? The other day it was actually to the point of setting on the pot pukin in the trash can (sorta like a bug but it was more dry heaving and no fever just like a 99.9). I did get some phenagrin earlier in the week from him tho and that has help a lot. I should have asked him for the lomotil then but it wasnt near this bad and didnt anticipate it getting this bad this fast (or him not being in the office for that long! especially since he ran a CT scan to get w/ my gyn before surgery on the 29th).
I have been having belly pain for about 3 months. I have been having gyn problems from a rare complication from a c-section (endometriosis has made its self a happy home all in the scar they have done surgery once back last dec and this december are going to try to cut out all the scar and cut over into "healthy" tissue in order to finally get all this mess out of me). I was starting to freak out that maybe I had ovarian cancer or something b/c of the stomach pain and a lot of pain down lower than Crohn's ever has been plus the neasuea. But now w/ such an increase in the D I figure it is more likey a Crohn's flare b/c surely ovarian cancer would cause you to start have D 15 times a day in just a week I would think that it would be a more gradual process (my pelvis was scaned in the CT scan too tho so if there was something like that going on that should pick it up). I think my pain started from taking large amounts of Ibepropehn and naproxen b/c I developed paracarditus at the end of Feb. It took 6 months for the fluid to go entirely away. We rotated 2 weeks on 2 weeks off. I was very concerned and talked to the GI but he said that I had to take the treatment for the paracarditis that it trumped the risk of a Crohns flare.
My last question is I use to always deal w/ the pain by staying laid up in bed w/ 2 heating pads. I just can't do that w/ my son. I always told the dr I didnt need pain medications when he would ask me but I feel that I might need them to help me with the pain with such a yougin that can get into so much nowadays! I worry about getting addicted to pain meds and wonder what has worked for others and if you have ran into actually becoming addicted to them. I found some hydorocodone (10 mgs) back from previous surgeries but they were from 2002 and 2004. They didnt seem to help much at all like I didnt take anything so maybe they just dont work after so long or something?
Thanks in advance for any of the questions you maybe able to answer and/or just taking the time to read my post! Tara

Veteran Member

Date Joined Apr 2004
Total Posts : 2284
   Posted 12/18/2008 10:00 PM (GMT -7)   
I always get a copy of my test results and while they are in dr.ease, I can still understand what they say. I would get the results and you can also WebMD to find out what different terms mean. Just my thougts.

We can respond to irritation with a smile instead of scowl, or by giving warm praise instead of icy indifference. By our being understanding instead of abrupt, others, in turn, may decide to hold on a little longer rather than to give way. Love, patience, and meekness can be just as contagious as rudeness and crudeness.
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Dx'd with Crohn's at age 12. Symptoms since age 5, RLS, Depression, Anxiety, and down right feel yucky some days.
Learning to live with this Disease rather than be its victim after 36 years.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/19/2008 8:28 AM (GMT -7)   
Wow Tara you have been thru it, haven't you!!??? Well I will tell you before my last resection when I first flared my main complaint was nausea. Come to find out I had another stricture. Don't want you to freak out, because sometimes strictures can be treated medically. But I would do as Randy suggested and maybe get a copy of the report and then try to look up the words on the net to maybe get an idea of what they saw. Does sound as if your Crohns is flaring and I am pretty sure it did so because of the Ibruprofen type meds you were on. Thats what did it to me last time. I sure hope you get some answers soon and get feeling better too.

Gail *Nanners*
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 12/19/2008 10:42 PM (GMT -7)   
Just wanted to say Hi and welcome back. Sorry you are having trouble. I am not much help, I dont do pain meds except when passing kidney stones and i'm usually in the ER for that. Hope someone has a better answer for you . Randy has some good advice too.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 12/20/2008 2:38 PM (GMT -7)   
Hi Haven't got much to add other then hang in there till you can get some answers and probably after your operation things will start to look up. You must be busy with your little one they sure are busy little people at that age. I used to watch a lot of cartoons and have my bed for a bit of a play area so I could lay down when I wasn't well. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail

Regular Member

Date Joined Sep 2003
Total Posts : 217
   Posted 12/20/2008 3:06 PM (GMT -7)   
Was just going to post a short update. The CT scan revealed a 1inch cyst on my ovary. I had a pelvic u/s already scheduled the next day. That quickly turned into a tvus b/c they saw something suspucious w/ my right ovary (I of couse did not know the CT results yet). They too found a 1 inch cyst or mass or something anyways. The tech said it could be a complex cyst or maybe an endometriomai. Of course I am worried about the worse b/c things don't seem to usually be minor for me haha. I called my GI and that is when he told me the results of the CT he said the rest of the ct was all clear so im trying to tell myself atleast if it something c word related it hasnt spread. He told me that it was not cancer and he would call over to the ppl that did the u/s and talk to them over there to see what they thought they saw and if I had something to worry about he would call me back. He never called so I'm trying very hard not to worry. He wants me to go back on the dreaded steriods even tho I hate them but I have to call him the day after my surgery b/c he said I did not need to take them before the surgery. Hope you all have a great weekend!

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 12/20/2008 8:56 PM (GMT -7)   
Try not worry about it. Th e worring won't help your Crohn's...
Think Happy thoughts!!!!
Best Wishes!

Regular Member

Date Joined Nov 2003
Total Posts : 134
   Posted 12/30/2008 11:13 AM (GMT -7)   
Hi there. I'm sorry you're having so many troubles. I've also been having some weird symptoms, back pain and nausea. I recently started on Humira and thought maybe it was due to that.

You mentioning the 1 inch cyst makes me wonder, though. I've been having all sorts of female issues over the past 5 years since my diagnosis. Extremely irregular and often bleeding. My GYN has done all sorts of tests, saying I'm not going into early menopause (I'm 40 now). I have tried different birth control pills to try to help, none have worked thus far, although I am on a different kind at the moment and have only been so for 2 months. I recently had a vaginal ultrasound which showed a 1 inch cyst, which they assured me would go away on its own. Over the last 5 years I have had different ultrasounds which always show a small cyst, but I've been told not to worry about it. My GI did a scope in the summer, which didn't show any active disease, even though the last few months my bowels have been acting up from watery D to constipation. My blood work all came back within the normal range 3 weeks ago as well.

I wish you well and hopefully your situation can get cleared up.

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