Hello, to 73monte, i believe they said it was just one fistula. i had one very large abscess bulging out of my abdomen that had the fistula attached to it. the abscess drained in 3 weeks and looked good, so they put it in the smaller abscess, which is a little lower and then the big one came back with a vengeance.
i think because the fistula wasnt healed all the way , it filled the abscess back up...but that was a chance they had to take i guess. not everyone gets multiple abscesses. he even suggested putting two catheters on me....and i replyed something not very nice.LOL
i just have to keep this catheter on, and do more remicade...i only did two so far and others have had success with the remicade closing off fistulas. since this was my first real full blown flare-up, i probably waited to long to go in(also because i have no insurance)......i didnt know how bad it really was. i guess we all just hope and pray for each other....and thanks for sharing your stories.
gachrons- i think i will probably have to have that surgery soon if the next remicade treatment doesnt work. they are trying to avoid it because they know i already have a mountain of bills i cant pay, but i may have no choice. the antibiotics are giving me bad side effects, the prednisone sucks and as i said, i only had two remicade treatments so far....i just have to be patient. i just hate this stupid catheter. i want to burn it. it has been over a month and i want to go out, and i want to take a real shower and be able to sleep in whatever position i want. anyhow, enough whining. thanks for your reply and i hope all goes well for you. oh, by the way, what kind of B-12 do you take? do you mean pills or injections?