Dear Neighbor MikeB,
IMHO, Arthritic and neuro issues are often Crohn's related. A few ideas come to my mind ,that could complicate or even cause your pain regardless of the stenosis diagnosis. First, from personal experience I know that soft tissue inflammation (in the gut) can also put pressure on neuro pathways, It is my understanding that in theory when the sciatic nerve passes through or occupies the same area where your Crohn's inflammation resides, then you can have nerve pain and inflammation similar to what you describe in your post. The inferior gluteal artery ( aka sciatic artery) also passes near your intestines, and can cause numbness and crawling pain (like when your foot goes to sleep, then the feeling comes back X 10), when the inflammation, swelling, and bloating put pressure on the artery, and restrict blood flow. Another possibility would be Crohn's arthritis, which is often associated with a specific genetic predisposition that was thought to be independent of genetics otherwise related to Crohn's Disease, and now appears to have bearing on which of us Crohnies have arthritic symptoms. If you have time to research this just Google HLA-B27 Crohn's. This type of reactive arthritis can cause fusing of the spine, hip , and sacroiliac joints. I would guess that this kind of fusion could be one possible mechanism that could narrow the neuro passages as well. I am just a layperson making guesses, and I am sure there could be a dozen more explanations, but I wanted you to be aware of the possibilities I have began to explore, because you seem to like to take charge of your own health decisions. I have most of the issues you describe, and have never been on Pred.
Never go faster than your guardian angel can fly!
Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!