New to forum, really need crohn's help!

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New Member

Date Joined Dec 2008
Total Posts : 2
   Posted 12/30/2008 8:27 AM (GMT -7)   
My name is John, and I'm 22 years old.  I was diagnosed with Crohn's almost 2 years ago.  I've had some flare ups, and an abccess, which I had drained.  Pretty much the first year with it was really rocky.  I was on prednisone, Azathorpine, pentasa, entacort, and a few others.  I would spike high fever, vomit, intense stomach pains, the whole nine yards.  Once they found the abccess and i got that taken care of, I started to feel better immediately. My stomach pains disappeared, no fevers, no nothing, almost remission I guess.  For almost a year I've felt pretty good.  I take 3 azathorpine a day, 8 pentasa, calcium, and a multivitamin. Now onto the problem.  I've had ZERO appetite for like 6 months, atleast.  My doctors don't seem to be worried about it, but it's easy for them to say, try never being hungry ever.  I mean I eat just to eat, but I never have an appetite.  I havent had any symptoms of a flare, like high fevers or anything like I had before.  I've had loose stool on and off for a month, and I told them that.  But my doctor doesn't seem to be worried.  I have crohn's in the elium by the way.  I'm 6 foot tall, and way around 145 to 150 pounds.  I weighed more in high school when I didn't have crohns then I do now.  But it's impossible to put weight on if you never hungry.  Is there any type of appetite stimulant out there for me?  Anyone else have zero appetite?  The doctors don't think it's a huge problem, but it's really bugging me.  I want to be hungry lol.  Sorry for such a long post lol. 

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/30/2008 8:34 AM (GMT -7)   
Hi John and welcome to Healingwell. You will find alot of wonderful and supportive folks on this board trying to live with this dd (darn disease) too. As for no hunger, I would suggest maybe adding some Ensure or Boost to your diet. That will help to get more balanced nutrition in your diet. You might also try adding protien shakes to your diet. The one the hospital made for me was a glass of milk, Vanilla Instant breakfast, and a scoop of vanilla ice cream. If you are lactose intolerant, you might try the lactose free milk or Rice Milk. Good luck and welcome!
Been living with Crohn's Disease for 33 years.  Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium.  Resections in 2002 and 2005.  Also diagnosed with Fibromyalgia and Osteoarthritis. Currently my Crohns is in remission.

New Member

Date Joined Dec 2008
Total Posts : 2
   Posted 12/30/2008 8:41 AM (GMT -7)   
Thanks Nanners for such a swift reply. I've been on Boost and Ensure, I go on and off of it, sometimes I get really sick of it haha. I mean it is a great source of nutrients, but I still want to have a healthy appetite and eat regular food along with the supplements.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 12/30/2008 9:00 AM (GMT -7)   
What about your B-12 has that been checked? Are you on vitamins that can help stimulate the appetite. I pretty much am always hungry unless I am very sick. What about geritol have you tried that? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Veteran Member

Date Joined May 2007
Total Posts : 1284
   Posted 12/30/2008 11:16 AM (GMT -7)   
Hmm... You could try locking yourself in a room, eating only jello for a few days, while watching the Food Channel... That will get your appetite back... *lol* Maybe. :)
I guess the reason the doctors aren't worried is because you don't have a dramatic decrease in weight....

I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.

Post Edited (Celey) : 12/30/2008 11:19:11 AM (GMT-7)

Veteran Member

Date Joined Aug 2007
Total Posts : 990
   Posted 12/30/2008 2:09 PM (GMT -7)   
Hi JBone and welcome to the forum! Sorry you've had a rough go, but glad things are better now! Your doctors probably don't see your loss of appetite as a huge problem because one of azathioprine's main side effects is loss of appetite. In other words, I suppose they expect it. I imagine it is tough to put weight on with no appetite.

You might consider reading "The Maker's Diet" by Jordan Rubin. The smoothies he recommends would definitely help, plus they would add beneficial probiotics to your intestines! He also explains why high quality fats--among other things--are crucial to our health.

Good luck to you and keep us posted!
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more Specific Carbohydrate Diet (SCD) recipes, too! (cooking challenged)

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 12/30/2008 5:05 PM (GMT -7)   
You could smoke Pot, that would give ya the munchies...
Just kidding!!
I would keep drink Boost or Ensure for a while and hopefully your appetite will return...

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