The really only true thing about crohns is what everyone says and is obvious if you read any of the threads on here. WE ARE ALL DIFFERENT and therefore crohns is different for each of us.
Like you I feel I am a mild case as compared to many others on here. So my 2 cents as it pertains to what I have learned about my crohns. I liked the idea of a food diary, but then I learned that what I could eat today I can't eat tomorrow and what killed me when I ate it 3 months ago hasn't bothered me the last 10 times I ate it, so I gave up on the diary....but that doesn't mean it is a bad idea....it just doesn't work for my crohns. I do a mix of organics, regular foods and SCD based recipes. I still fail in my quest from time to time but for more than 50% of my intake I am eating healthier food. And that seems to help my crohns.
I don't take anything for the big D because even a 1/4 tab of imodium AD clogs me up for days and then I feel sick from the back-log. But that is me and my crohns.
The only drugs I take now are listed in my sign off. I try very hard to stay away from drugs and am currently trying to manage my disease by curtailing the intake of processed foods and sugars. I also am getting back to exercising. A few other steps is that my wife and I got rid of all of the plastic food containers in the house and now we only use glass to store leftovers in and to re-heat in the microwave. I got rid of all of my pre-coated cook ware and only use stainless and copper to cook in. Time will tell if that helps me deal better with my crohns.
Obviously, in a not too subtle way i am trying to drive home th point of how IMO we have to own our own disease and treatment because we are all so different...this darn disease is affected by diets, our other health issues, our physical well being, our attitudes, our economic situations, and just about everything enviromentally. That is why IMO it is so different for each of us.
The biggest affect on my disease I believe has been my medical treatment. Until I took control of it, learned and continue to learn about it, found a doctor who would listen to me and only suggest treatments rather than insist, I was doing very poorly. My crohns has progressed in some ways and not so much in others. I am able to travel almost weekly, I still work full time, drive over 40,000 miles a year, cook gourmet meals for friends and family, do volunteer work, and generally enjoy life. I let this disease, my crohns, affect my life (because it will no matter what we do) but I do not let it run my life. I let people know if they ask that I have it and let it go at that...if they want more information then I share some but not all of my issues.
I still set goals for myself that sometimes include my crohns and sometimes does not. My greatest success has been my promise to myself that I do let it get me down...I never let it keep from trying to do something (go shopping, take my wife on a date, travel....what ever) if after trying to get a project done or trying to go somewhere I find that I just can't do it without causing myself harm or ruining things for those with me then and only then I will postpone my efforts...but at least I try before canceling anything.
and the last thing about me and my crohns...I never let myself get embarrassed or feel less of a person because I have an accident, or pass gas, or i have to stop every 5 minutes to go to bathroom.....this disease hits us at one our most private issues....poop, rectum, body functions...and well....I decide a long time ago that I had to get over my pride and just be open about things....have great sense of humor. My last colonoscopy....my wife drew a coin slot on my left cheek and then wrote on my right cheek "deposit 25 cents , place eye to to the view finder and see the wonders of the world" (with an arrow pointing you know where). the nurses and doctor laughed very hard and then asked if they could take a picture of my rear....what could I say but sure.
good luck.....you can handle this.
dx IBS 1999 UC 2000 CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose one shot every week. Also nightly dose of mesalamine.
Surgery Nov 4th, 2008 removed 30 inches of small bowel.
Crohns is currently active and has been since April of 2005
52 yrs old