Paniced, Scared, Confused

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New Member

Date Joined Oct 2008
Total Posts : 19
   Posted 1/6/2009 6:11 PM (GMT -7)   
Hi everyone,
I first want to thank all of you for your support when I first joined the site while my doctors were trying to find a diagnosis. And now I am calling upon you all for a little ray of hope. My doctor called me this morning, she had consulted with one of the colleague about my case. Seeing as I have had constant upper right abdominal pain, bloody bowels, cramps, distension and fullness even on all my meds. My last appointment she noticed that a small little lump had gotten much larger. It was 1 cm now its 10cm. She sent me for a CAT and it shows excessive lymph nodes more on the right where the lump is than the left and they may be surrounding a mass. During her consult she now feels that I don't have Crohn's and that I have non-hodgkins lymphoma. My neutrophil levels are very high, and inflammation enzymes are super high, on top of low kidney function. Thursday I have a biopsy but I'm TERRIFIED!!!
Does anyone here with Crohn's have a lump on their neck or similar situation? Thank you for any responses in advance!!! Best Wishes, Bri
26 year old female Veterinary Technician. Going through the diagnosis process since August. Gall bladder removed for malfunction 11-20-07

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 1/6/2009 6:17 PM (GMT -7)   
We did have somebody here a few months ago in a similar situation, broach, but s/he is an irregular poster.

I am so sorry for what you must be going through. *huge hug*

Co-Moderator Crohn's Forum.

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 1/6/2009 7:08 PM (GMT -7)   
I'm sorry to say I haven't had your symptoms, but would like you to know you have my thoughts & best wishes.

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 1/6/2009 9:16 PM (GMT -7)   
broach, I am sorry about the news you have received. I certainly understand why you are frightened and confused. A small percentage of non-Hodgkins lymphomas generate in the intestinal tract. We have one member that does have Crohn's and then developed NHL, I believe in his terminal ileum. After surgery to remove the mass, he under went treatments and the last I read is doing well.

The symptoms of NHL effecting the intestinal tract can be very similar to Crohn's disease. While the news you received is not something anyone wants to hear, it sounds like the doctor has done a great job of getting to the problem early on. Please let us know how the biopsy goes. We will all be thinking of you.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 1/7/2009 3:43 AM (GMT -7)   
Hi I do know someone who did not have crohn's that had a lump on the neck and it was removed and then the thyroid was removed .Hang in there and hopefully your Dr. will get things figured out soon .The fact that you are getting things done right away is a good thing. Keep in touch. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 1/7/2009 3:46 AM (GMT -7)   
Just wanted to add that the person is doing good now. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Regular Member

Date Joined Nov 2008
Total Posts : 192
   Posted 1/7/2009 8:30 AM (GMT -7)   
I just wanted to wish you good luck at your biopsy!
Diagnosed with Crohn's Disease; Meds: Entocort & Asacol; female in late 20s.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 1/7/2009 9:36 AM (GMT -7)   
Please know that I will be praying for good results from your biopsy. We are always here for you!

Giant Hugs,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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