For those of you that haven't seen some of my other posts regarding my daughter (Holly), I'll just give a brief recap of what we've been going through of late.
She just spent 10 days in Hospital after being diagnosed with and abscess with a small fistula on her small intestine. Crohn's has become active as well. It was drained and she was placed on antibiotics. She was released for the Hospital on Christmas Eve, and continued oral antibiotics,(Flagyl), and after having IV prednisone, she went to oral prednisone at home. They want to start Imuran, but she will have to have the Chicken Pox vaccine towards the end of the prednisone taper first.
I guess that wasn't such a "brief" recap was it?
I've been doing alot of research about what she's been going through. I'm incredibly concerned about this abscess healing, as I've had some replies, and read that they are very difficult to deal with. Most of the info. that I've found is on Perianal fistulas/abscesses. I really don't know if there's alot of difference. The Perianal, sounds more serious.
Currently, she is back to school and her sport, (figure skating). So far, she is having some of the typical Prednisone effects. She's very hungry for sure. The one not so typical thing is, that she's immensely tired. I'm not sure if it's that she's still recuperating from 10 days in the Hospital, or whether it's the infection/abscess recuperation time. I've never seen her this tired, accept for the week before she was first diagnosed. She's had no fevers and her BM's are very normal. No diarrhea of constipation. She says she feels discomfort in her side when she runs or skates, but no real pain. Perhaps still tender from the draining.
For now we just wait, as her next appt. if Feb 2nd. They will do a SBFT at that time. The GI feels that the abscess/fistula will close and heal. But I get the immpression that it's a 50/50 thing.
The waiting, wondering and worrrying has been extemely difficult. I think I'm getting worse instead of better. By far the most confounding thing about this disease is the indefinite prognosis. My wife says I have to start thinking more positively, but I'm a harsh realist. I think in terms of definites.
I don't want to dwell on my issues with this, as I know "Nanners" will certainly give me a firm scolding.
Just kidding of course, she's been a tremendous help.
Anyway, Thanks for looking. Tomorrow's another day. Hoping for good things for all.
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Initially, 9 weeks of Prednisone, currently taking 2000mgs of Pentasa.