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Regular Member

Date Joined Oct 2008
Total Posts : 114
   Posted 1/8/2009 9:44 AM (GMT -7)   
Sorry, I haven't been more active on this board. The last three months of 2008 were not the best for my household. I spent 3.5 weeks in the hospital during October & November trying to figure out why I was having diarrhea so bad that I was going every 20 minutes, 24 hours a day. I ended up having two abcesses around perferations of my large intestine. The removed about 2 feet of my large intestine and 10-15% of my small intestine. This also left me with a temporary colostomy. I got out of the hospital from that episode and wasdoing well for about 2 weeks, then I vomitted blood one morning. They put me back in the hospital and did an endoscopy and found that I had developed a major erosion of my esophagus from gastric reflux. I was in about 3 days that time.
Then the week before Christmas, my doctor did an xray of my abdomen and saw a "prominent spleen." I left on vacation the next day. The office called me while we were visiting family and told me what they saw and that he wanted to do a CT scan when I got back. My wife's grandmother had been fighting cancer for about 3 years and finally passed away on Christmas Eve morning. So Christmas was a little down this year to say the least. After we got back home from the trip to Iowa, I scheduled the CT scan. The doctor's office called me on Friday (Jan. 2) and said that I needed to be admitted to the hospital because they found fluid development in my abdomen on the CT and with my history of abcesses they did not want to take any chances. They planned to do a CT guided needle drainage of one of the fluid developments, so I went down to the CT and they took the initial pictures. The radiologist came in and said I have some good news for you. He said the development seems to have shrunk some on its own, so I am not going to do anything with it. He said that this probably means it was just some edema from surgery or something (surgery had been almost 8 weeks earlier, so I doubt that). I was discharged from the hospital the next day. They did put me on Cipro just in case. The only thing that has me concerned now is that I noticed two "masses" in my lower abdomen that I am keeping an eye on. One is on the lower right and the other is under my colostomy opening. They pretty much disappear when I am laying down, but when I stand up they are visible. The are moderately hard but not tender to the touch. I am going to keep watching them and mention them the next time I am in to see my doctor.
Again, sorry for not posting sooner. I hope everyone had a great Christmas and New Year! I did get some good news in December, I was able to start back to work in my athletic training room at Lyon college after the first of the year. I have really missed this place.
Diagnosed with Crohn's in July 2005. 2 Bowel Resections in 2008.
Currently taking Pentasa 1000 mg 4X/Day, 6MP 100 mg/day, multivitamin, Lopressor 100 mg/day (Blood Pressure), Reglan, Nexium 40 mg/day, Percocet for pain, Lomotil, & Phenigren PRN

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 1/9/2009 5:03 AM (GMT -7)   
Hi Thanks for the update and hope you have some better health on the way. Hope the work goes good for you it's great when you can find a job that you like. Keep in touch. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 1/9/2009 7:34 AM (GMT -7)   
Whew you did have a few crazy months there!!! Hoping the new year brings better times for you.

Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Oct 2008
Total Posts : 377
   Posted 1/10/2009 11:50 PM (GMT -7)'ve been through a ringer eh? It can only get better I say. Those two hard they seem to harden more after eating? I found that I would get this weird hardness in an abscess that resulted in a fistula that erupted out of a drain site. It was very gross and haha, turned out to be fecal matter which was nasty which is why I was wondering about how those knots feel before and after eating. I don't know about everyone else here but I could feel a difference after eating.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa (and much mental screaming)

Trying to hang in there until January so I'll have some insurance and can visit a rheumy, neuro, GI, primary, pain control, and possibly a shrink so I could stop crying and living in my own lil pity party. :-P

Regular Member

Date Joined Oct 2008
Total Posts : 114
   Posted 1/13/2009 8:17 AM (GMT -7)   
The knots have decreased. The one on the right has disappeared entirely. The one on the left doesn't really change other than standing and laying down.
Diagnosed with Crohn's in July 2005. 2 Bowel Resections in 2008.
Currently taking Pentasa 1000 mg 4X/Day, 6MP 100 mg/day, multivitamin, Lopressor 100 mg/day (Blood Pressure), Reglan, Nexium 40 mg/day, Percocet for pain, Lomotil, & Phenigren PRN

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