Thought I'd relay a quick update since I left the hospital a month ago. After leaving the hospital on Dec09, I had a couple of 'bleeding' episodes (Christmas day, three days later). My GI doc had scheduled a follow up visit on Dec19, but decided to go on holiday, so he delayed my appointment to Jan06. During this time he had me on a high Prednisone dosage to stop bleeding, which it did. On the 6th, I finally had about 6 hours with GI doc. The high Prednisone they had me on (to stop gut bleeding) (steroid) has driven my blood sugar levels quite high (>500), thus creating low energy problems. So now the docs have: dropped the Prednisone level by 50% to 80mg/day, started me on Imuran for the Crohn's, started me on insulin (short duration 4x/day, long duration 1x/day) to quickly get the blood sugar level down, set up followup blood tests next Wednesday. Now I'm monitoring the ups and downs of the new meds, but energy levels are creeping up, and other things are better (finally had bowel movements after virtually none for a month). I've lost about 20 lbs since I left the hospital, that's enough. While my diet averaged about 2500 cal/day while losing the weight, over the past week my diet has been a stable intake of 2200 cal/day, but I've stopped losing weight, hopefully suggesting some nutrient absorption has resumed, just not enough to turn cartwheels yet. Hopefully this new approach will stabilize the Crohn's and I can get back to normal soon. It appears to be a circle, take Prednisone to stop bleeding, this elevates the blood glucose, requiring the insulin. How soon can I expect the doc to lower the Prednisone? Any one with similar experiences, I'd be interested in what to expect yet. Thanks in advance.
CD for 20+ years
Px now: Pentasa 1000mg/d, prednisone 40mg/d, saligen
Also, immodium 1x/d