Update on a month post-hospital flare up

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New Member

Date Joined Dec 2008
Total Posts : 19
   Posted 1/9/2009 8:28 PM (GMT -7)   
Thought I'd relay a quick update since I left the hospital a month ago. After leaving the hospital on Dec09, I had a couple of 'bleeding' episodes (Christmas day, three days later). My GI doc had scheduled a follow up visit on Dec19, but decided to go on holiday, so he delayed my appointment to Jan06. During this time he had me on a high Prednisone dosage to stop bleeding, which it did. On the 6th, I finally had about 6 hours with GI doc. The high Prednisone they had me on (to stop gut bleeding) (steroid) has driven my blood sugar levels quite high (>500), thus creating low energy problems. So now the docs have: dropped the Prednisone level by 50% to 80mg/day, started me on Imuran for the Crohn's, started me on insulin (short duration 4x/day, long duration 1x/day) to quickly get the blood sugar level down, set up followup blood tests next Wednesday. Now I'm monitoring the ups and downs of the new meds, but energy levels are creeping up, and other things are better (finally had bowel movements after virtually none for a month). I've lost about 20 lbs since I left the hospital, that's enough. While my diet averaged about 2500 cal/day while losing the weight, over the past week my diet has been a stable intake of 2200 cal/day, but I've stopped losing weight, hopefully suggesting some nutrient absorption has resumed, just not enough to turn cartwheels yet. Hopefully this new approach will stabilize the Crohn's and I can get back to normal soon. It appears to be a circle, take Prednisone to stop bleeding, this elevates the blood glucose, requiring the insulin. How soon can I expect the doc to lower the Prednisone? Any one with similar experiences, I'd be interested in what to expect yet. Thanks in advance.
CD for 20+ years
Px now: Pentasa 1000mg/d, prednisone 40mg/d, saligen
Also, immodium 1x/d

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 1/9/2009 9:27 PM (GMT -7)   
Well I'm glad that you are doing better! But did I read correctly that at one point they had you on 160 mg of prednisone a day? That is an outrageous amount in my opinion - and yes, it can drive up blood sugar/glucose levels. I think we have had a couple people develop drug induced diabetes while on prednisone. I have not - prednisone only drives my blood pressure up. One time had to get treated for a hypertensive crisis due to prednisone increases. The drug can be a blessing but also a curse.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 1/10/2009 4:03 AM (GMT -7)   
Hi I had my bloodsugar go up on pred, but was able to get off it before I needed to get meds for it. Glad to hear your bleeding has stopped and your eating again and not loosing weight is great. I think you will probably put some weight back on soon.Hope the Imuran keeps you feeling better .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 1/10/2009 8:22 AM (GMT -7)   
I agree with Ides I think you have been on outrageous amounts of Pred. I never allow them to put me on more than 30 mg. Everytime I get above that I start having hypertensive episodes and other problems. Glad you are starting to feel better though.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 1/10/2009 10:43 AM (GMT -7)   
glad you are doing a little better. You dont need to cut cartwheels but for your name sake, dont get swine flu...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

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