Crohn's Colitis advice

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New Member

Date Joined Jan 2009
Total Posts : 1
   Posted 1/10/2009 5:33 PM (GMT -7)   
I am a 45 yr old male and I was diagnosed with Crohn's colitis fifteen years ago.

With the exception of fistulae that I got when the disease was rampant in me five years ago. I don't suffer from any symptoms. Here are some things I can tell you about IBD.

I treat my ailment like a wheat allergy

I take fish oil

I go on long walks

All medications I have tried did more hurt than good

Pred, Asacol, Pentasa, Imuran, budesonide etc. are all dangerous pharmaceuticals that only treat symptoms

Flagyl kills everything in your gut. This is not good, but IBD people have limited options. What I tried to do was take 1500 mg (500X3) for 14 days and then repopulate my gut with healthy bacteria. I used something called VSL#3 to do this. I am still on it. I don't know if this is what healed me, but I don't see a need to get off of it. I started out taking six capsules per day which costs an insane amount of money. Now I take one capsule in the morning with a glass of water and a low dose of fish oil and 2-3 ripe bananas. I take a 40 minute walk and this seems to protect my gut.

I normally have one large BM about first thing in the morning and that is it!! I was going to the bathroom 15-20 times per day with painful, bloody diarrhea. I had horrible cramping and urgency for years with or without asacol. I don't need to run to the bathroom anymore.

I don't sell anything. I hate the fact that VSL is so expensive and I'm not sure if the high doses are necessary. I know that bananas feed healthy bacteria in the gut and I kinda live off RIPE bananas.

I was once a 130 pound, anemic, inflammed mess that didn't want to live anymore. I am now a very muscular 180 pounds (5'11'') and I LOVE MY LIFE!!!!!!!!

Foods to eat

There are free resources online about eating wheat free. Just start doing it and it becomes easy to do.
Ripe bananas
Natural meat products unprocessed. * fatty meats irritate the bowel and cause or aggravate hemorrhoids.
well cooked veggies, yams, sweet potatoes
natural foods that are soft textured
eggs cooked in olive oil

Remember that one wheat laden meal can be in your system for days, and will set you back. Use discipline.

I just found out by looking at my anus with a mirror that I have what appears to be a fistula. I think I got it from an abscess I had over five years ago. I was wondering why I had to wipe for so long in the morning and never seemed to be clean. I think that the abscess I had was so massive that it couldn't help on its own. The inflammation is gone and it appears healed on the outside, but I will have to go to a colorectal doc to see about getting a plug placed in because I travel a lot and don't always have my removable shower nozzle that thoroughly cleans my undercarriage.

Remember that you are not diseased and you are not a victim. The lifestyle changes I made were all simple healthy things and I thank God for the life I am living now. Never give up!! I was near death twice and hospitalized four times because of experimenting with medications and diets.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 1/11/2009 11:25 AM (GMT -7)   
Hi Welcome to Healing Well glad you are doing better .This is a good place for help and support. Let us know how you make out with your fistula. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Dave D
Regular Member

Date Joined Aug 2005
Total Posts : 404
   Posted 1/12/2009 3:33 PM (GMT -7)   
Great story! I wish it was that easy for me.
BTW, I made my own bidet and have a portable I bought for about $120 wich I use when I travel.
Dave D
Retired male in late 60's. Perforated Colon in 92. Diagnosed as Ulcerative Colitis in 93. Uncontrolled flareup in 97 dictated J-pouch surgery. 04 Capsule endoscopy diagnosed as Crohns not UC. Emergency surgery in 05 to remove lodged camera capsule. Biopsies positively diagnosed Crohns at that time. 12/06 Unsucessfully tried Naltrexone(LDN). 2/07 developed scleritis of the eye, tearing and detaching the retina. Treated with high doses of Prednisone. 6/07 Thought eye was healing and started taking Entocort counting on the residual (non-systemic portion) as treating the eye. Wrong. In October eye was not stabilized. 11/07 Started Remicade to try and reduce the ocular inflamation of the Scleritis since I had been requiring more and more Prednisone to keep the eye quiet. 12/07, retina tares and detaches again. Started Remicade every 4 weeks plus 20mg of Prednisone per day. Six months and seven infusions later, good eye is back to 20/14. Bad eye is 20/70. Had cataract surgery on June 05 on bad eye. Eye returned to a correctable visionary level of 20/50. 11/08 had reaction to Remicade; trying to keep going with Imuran and Pred. Need corrective eye surgery and fitted for prism lense to correct that eye from turning out.  Life looks fairly good (literally) today.
Married with 4 grandkids.

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