Posted 1/11/2009 2:05 PM (GMT -7)
I felt the same way when I was first diagnosed. My doctor sent me home with asacol and prednisone and I, not knowing anything about anything, mistook the instant results of the prednisone to mean that I was better and able to eat most anything I wanted!
The main thing is either keeping a food diary of what you have eaten and how you feel that day OR just taking care to remember.
Try staying on a diet of gentle foods that you know won't hurt you and then gradually add new things to see how they affect you. Many members stay on a low-residue diet(you can search it in google and get the basic outline), and a lot of us are trying the SCD i.e. Specific Carbohydrate Diet developed by a biochemist named Elaine Gotschall along with other doctors. You can visit her website at http://www.breakingtheviciouscycle.info/ if you can't afford the book which, by the way, is called "Breaking the Vicious Cycle."
It has helped me tremendously! Though I make a few variations of my own here and there with foods I know will not bother me.
Also, try finding some good probiotics. I take solgar's advanced acidophilus and then an another tablet containing lactobacillus reuteri. You may experience some gas and bloating initially when taking probiotics, but this is normal and should disappear pretty soon as your body adjusts to having new, beneficial intestinal flora.
As for multivitamins, try to find some with calcium, folic acid, vitamin b, and so forth. Many of us try and find vegetarian capsules that are sugar, dairy, and/or gluten free.
You might try eliminating gluten from your diet as well. Many of us have seen good results from it! I make sure to keep away from that as well as refined sugars, caffeine, chocolate, wheat, high lactose dairy(yogurt should be fine depending on the person however and is VERY GOOD for your gut), and junk food in general. Also, drinks with high fructose corn syrup or carbonation, food additives, preservatives, and so forth are good to avoid. There are a lot of good organic juices out there that taste wonderful and are much better for you! And tea without caffeine, peppermint and chamomile teas specifically, are soothing mentally and for your gut.
Unfortunately, eating well and putting the things in your body that you need is slightly more expensive than going for the cheap, immediate gratification foods. But, taking into consideration the benefits of eating well, it should save you much more money and unnecessary grief in the long run. I know it's a lot, but I think the main thing to come to terms with after dealing with a disease of this nature is that big changes MUST be made. I know someone else who disregarded most of this and ended up having to get a colostomy bag due to the damage caused by ignoring his body.
In the end, you just have to try different foods, slowly, and see what affects you negatively and what affects you positively. Finding good probiotics and multivitamins is another good step. Also, finding a good source of exercise helps! Maybe a little bit of walking every day or some yoga.
And last but not least, keeping a positive attitude. It's not always possible, but something like this definitely takes a lot of practice. And even then it's not as if we can keep it all the time. You just have to try and find the silver lining in things and concentrate on that. It's really difficult not to think about all of the negative aspects that come along with this disease, but, as I said, it takes practice...and if you do then you'll notice a difference soon :)
I'm sorry if I wrote too much, but I strongly believe you can feel better with different changes! I'm not saying it's a cure of any sort, but any change for the better counts right? I hope some of this at least helps...
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Prednisone 20 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."