maintenance Med's and CD

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Regular Member

Date Joined Dec 2008
Total Posts : 63
   Posted 1/21/2009 6:25 PM (GMT -7)   
Hi every one...........

Any one can tell me if maintenance Med's really help CD patients or not? and what these Med's are so I can ask my doctor?

Thanks in advance

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 1/21/2009 6:28 PM (GMT -7)   
It looks like you're already on one, that being pentasa. Asacol is another. I haven't been on enough medications to know all of the maintenance ones, but I'm sure other members will be along to list some.

They do help though. You really need something working in your system against the Crohn's because it's not like it takes a break so neither should you.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."

Mormor Vicky
Veteran Member

Date Joined Mar 2007
Total Posts : 684
   Posted 1/21/2009 6:40 PM (GMT -7)   
I'm on Pentasa only right now. I had run out and forgot to reorder. I had to wait 5 days since it was a mail order prescription for me. After 3 days I was feeling miserable so yes they work at least in my case.
Vicky / 49 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
Daughter (28) also has Crohn's since she was 12.
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor, Lisinopril

Veteran Member

Date Joined Nov 2005
Total Posts : 1340
   Posted 1/21/2009 7:19 PM (GMT -7)   
When I was on Pentasa and another med, I thought it didn't make a difference. Then I was on Pentasa alone for maintenance. Went off for 3 weeks and learned that med does make a difference. I generally think it is always a good idea to be on some maintenance med. Even if you can't feel it, this disease can be causing damage.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.

Veteran Member

Date Joined Mar 2006
Total Posts : 1034
   Posted 1/21/2009 10:27 PM (GMT -7)   
i've been told by GI docs that 5-ASA class drugs (ie pentasa, asacol, colozal, etc) work in UC but are no better than a placebo in crohns. after i heard this independently from 2 GI docs at a CCFA education seminar, i asked my GI about it and he concurred. he said the reason they prescribe these drugs to crohn's patients even with that data is that in some cases is does work and also the placebo effect is real and can be strong in some cases (data on the placebo effect does show that so i cant argue with him there). so this may be something to talk to your GI about.

i was on the 3 5-ASA drugs i listed above for like 14 years and i never felt any of them helped. but like i said, other people will swear by them.

they now use immunosuppressants (6-mp, imuran, methotrexate) and remicade and humira as maintenance drugs. those are powerful meds and kinda scary to think that they are now considered maintenance....
Crazy Harry

Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07

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