Just thought I'd post an update on whats happened with me since I last posted.
Well I've just spent another 10 days in hospital, got out today thankfully, was going mad in there.
I only went in for my remicade infusion, but had been so ill the night before, in so much pain, and couldn't go to the toilet, that I was convinced I had a blockage and my bowel was going to perforate.
So I went for my infusion as normal, told them the trouble I was having and they admitted me. Been on Metronidazole and cipro and back on the steroids. Seems to have calmed down abit from when I went in, but not much, still losing loads of mucus and generally its coming out on its own again and I can't control it, which is quite annoying as its sort of not been too bad all week, then today, its back to having it's own mind again.
I was asked about
having the operation to remove my large bowel, but again, I refused that.
So now the plan is to keep me on the Remicade, but getting it next week now, and if it doesn't work, I will be having it every 6 weeks instead of 8, and if that doesn't work, he's going to double the dose and hope that sorts it out. If not, it's back to the drawing board :(
I've been eating normally in hospital and have to say I feel alot more energetic now than I did when I last came out of hospital on the elemental diet. I never did get to see the dietician though, but I'm just going to eat as normally as I can for now to get my weight back up abit.
Hope everyone else is as well as can be expected with this annoying disease.
I'm on a steroid trip at the moment, so just want to clean and eat, which is good because my house needed it when I got back.
37yr old woman UK. Diagnosed with crohns in 95. Currently on 2400mg asacol, 100mg Azathioprine. Been on Remicade once which worked well for me, but they took me off it. Flared up again. Took Humira but it didn't seem to agree with me, but thinking it was now an infection rather than side effects from Humira. Now back on Remicade, had 3 infusions so far and no reactions as yet. Consultant wants me to have a colostomy bag fitted, I've refused and want to try as many options as possible. On Elemental 028 extra diet for 6 weeks.