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Veteran Member

Date Joined Mar 2005
Total Posts : 1289
   Posted 1/26/2009 9:15 AM (GMT -7)   
OK I can't believe I'm actually thinking about asking my doc to let me go back on Prednisone to see if it works but I've been feeling pretty bad lately...question is what's the longest time period people have been on Prednisone?  I was on it (starting at 60 mgs and tapered to 0 over 4-5 months I think).  I've been off of it for about 2 months now...Started 6-MP but then got pretty sick with a cold so I stopped taking back on 6-MP for a week...I don't want to wait months for it to work though...
any thought would be appreciated.  thanks!

Regular Member

Date Joined Jan 2009
Total Posts : 76
   Posted 1/26/2009 3:00 PM (GMT -7)   
My doc said it can take 2 months for 6mp or imuran to work and when i was in a flare i was but on imuran and prednisolone and they work well together. The pred works straight away and buys time for the imuran to kick in...worth the wait i think.
26yrs old Diagnosed in 2000 with Crohn's surgery for perianal abscess and fistulas
currently on Imuran 100mg
Worst pain equal to child labor was after eating home made Granola...i can still hear the screams.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 1/26/2009 3:07 PM (GMT -7)   
Prednisone is one of those drugs that most of us have a love/hate relationship with. I have spent way too long on it, but until I started taking Xifaxan I couldn't get down below 20mgs for any significant period of time. Finally I have been able to get down to about 5mg. It works great for most people, but the side effects are not good. So the goal is to be on it for as short a period as possible. If your doctor thinks that it will buy you time until some other meds kick in, then it is worth a shot. It really can be a life saver and if you are sick enough and it gives you back some quality of life, you will be able to deal with the side effects. Plus some of the side effects can be dealt with medically. Extra calcium for bone loss, sleep aids for loss of sleep......

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 1/26/2009 3:11 PM (GMT -7)   
I've been on and off of it since last May...I stayed to 0 mg for a month(or two possibly) during that period, but have been on varying doses for a while.

I hope this next round makes you feel better!!!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."

Becoming undone
Veteran Member

Date Joined Jul 2007
Total Posts : 927
   Posted 1/26/2009 4:33 PM (GMT -7)   
been on it WAY too long...2+ years. Down to 5mgs now(been here for over a month), but the symptoms are getting worse (no energy, BAD arthritis, and all the GI symptoms). Yet starting to get some semblance of my face back so I don't want the higher dose (though I do feel better). Doctor and I both frustrated that I cannot get to a lower dose (body happy on 10mg) and have been on it for soooooooooooo long. My sister also has RA and she too has been on prednisone for over 3 years and cannot seem to come off it as her symptoms seem to reappear.

So...I too am curious if this has happened to anyone else? What is the longest time?

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 1/26/2009 5:29 PM (GMT -7)   
Hi Longest 14 months and I did a five day pred. thing in Dec. and it did help. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Veteran Member

Date Joined Mar 2005
Total Posts : 1289
   Posted 1/26/2009 7:36 PM (GMT -7)   
thanks!!!! i think i'm going to see if my doc is in agreement for a short course for a while...

Regular Member

Date Joined Jan 2009
Total Posts : 21
   Posted 1/26/2009 7:52 PM (GMT -7)   
have you tried entocort? it is more expensive but i didn't have any of the nasty side effects that i had with prednisone.
28 years old, diagnosed with Crohn's  in March, 2007.  Currently taking Humira 2 X month

New Member

Date Joined Jan 2009
Total Posts : 19
   Posted 1/26/2009 11:46 PM (GMT -7)   
Back in the day I was on a low dose (5mg/day) for at least 2 years. I couldn't seem to come down from there. Started on Remicade toward the end of that two year period and was able to get off the preds. Since then I've done the quick taper thing (start at 40, taper 5mg a week) a few times to stop flares that were starting. I've since switched to Humira (remicade stopped working), but may need the preds for a boost with my stupid colon. Have to decide my treatment in the next two days.

Regular Member

Date Joined Jan 2009
Total Posts : 51
   Posted 1/27/2009 4:00 AM (GMT -7)   
Hi, I've only ever taken it for 12 weeks twice starting at 40mg and tapering down 5mg a week. Not sure what will happen if it doesn't help when I get down to the lower doses as azathioprine doesn't seem to be working for me.

Diagnosed with Crohn's disease in Sept 05 aged 24

Resection in Nov 06

Currently taking 125mg azathioprine, 40mg prednisolone, multivitamin, probiotics and omega 3
Previously taken Entocort, Flagyl, Cipro, Pentasa

Post Edited (Caz81) : 1/27/2009 8:03:31 AM (GMT-7)

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 1/27/2009 7:35 AM (GMT -7)   
Maybe your doc can put on a short course for maybe 4 weeks or so, to give the 6mp time to kick in. I just recently did a stint like that. I started at 25 mg and went down 5 mg every 5 days. I quieted things down for me quickly. Good luck!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Mar 2005
Total Posts : 1289
   Posted 1/27/2009 7:55 AM (GMT -7)   
thanks once again! all of this insight is helpful!
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