Phew ! I really feel for you in this predicament ! Love and guilt are a dire combination to deal with. And of course, you may never have a clear cut answer as to what the right decisions to make are.
It strikes me Jennifer that as there are so many different treatments for CD, each of them varying according to which individual is being treated - and even often dependent on what has just suddenly stopped working for them - then there is a simple question that you need to be asking your doctors.
Why are they so sure that in this instance 6MP is such a good way to go - what supporting evidence do they have for this theory ?
It may be that they are following a proven protocol, which was set up following rigorous analysis of patient history outcomes. Or it may just be that this is just this particular practice's personal "recipe" based on individuals professional experience - in which case, all that may mean is that they haven't met up with all the different outcomes that are possible using different therapies. Heaven knows, there are enough drug companies working on doctors, sponsoring conferences, publishing carefully selected results....
To answer your last question, I wouldn't say I have beaten Crohn's using diet alone, but I certainly manage it. I have had three years of gradually improving health, after about
twenty of deteriorating.
Two flies in that ointment; the doctors have just recently said that it was never Crohns (not due to a change in circumstance, just they can't find a note of the diagnosis !) and the reason I'm back on the forum after a long absence is partly that my gut is playing up again. Not nearly as badly as 99% of the people online here, but still, the old grumbles are just about
Typically you don't cure Crohns, the symptoms just go into remission for a variable length of time.
I will say one thing though. For most of human history, every form of medical science worldwide has emphasised the overriding importance of good diet in battling illness. If your daughter is on any therapy that sidelines the levels of nutrition she should but likely cannot have at present, then IMHO that needs to be addressed as a matter of urgency. Don't forget that doctors, being experts, are likely to overemphasise the importance of those things they know most about
, simply because they are not privy to the whole picture. Rather like a mortgage lender complaining about
not meeting his sub-prime lending targets....
I don't think I'm doing that with those comments about
diet, but how can I be sure ?)
There is of course another aspect to this. It is your daughter's body; if she is old enough to have a strong opinion, then perhaps she is mature enough to take responsibility for her own health, which is after all inevitable some day. And with such a complex situation, who can gainsay her wishes ? We're all on a learning curve with CD.
Best of luck !