It was 6MP (mercaptopurine).
I was doing well on my dose and my GI decided to double the dose. I was still doing well, doing VERY well symptom-wise, but I began to feel slightly nauseated. I didn't think much of it, because I figured it was just a side effect. As I weaned down off of a high dose of prednisone, I began to feel more and more nauseaous. Eventually, the nausea would crop up at very odd times. Sometimes the smell of food would trigger it, but many times I would be sitting on the couch and watching TV, then with no warning, I'd have to vomit. I began to keep a bowl near me.
My husband had made comments about
how pale I was, and then all-of-a-sudden he made a comment about
how 'tan' I looked. I thought that was odd, because I had been spending almost NO time outdoors with the horse at all. I just kept feeling worse and worse. Very "ookie".
I called my GI and she gave me an anti-nausea prescrip. I began to have trouble keeping those tablets down so she gave me another one that just melted under your tongue. That still didn't work. She then had me go in for a bloodtest. She called me that afternoon and told me to stop all meds, I had jaundice and had to come in right away for an MRI to be sure my bile ducts weren't blocked. They weren't, so it was a med-induced jaundice. I don't remember what my liver values were, but they were high and it took forever for them to go down. I wrote about
it somewhere, but I can't recall where.
*If you need me to, I'll try to search for it. (it wasn't here, it was at a different BB)
The waste in the bloodstream (turning me yellow) was also sort of 'poisoning' me and it made my body react by becoming very itchy. I scratched so hard I put bruises along my 'scratch paths' on my chest, belly, upper arms, lower back, buttocks and thighs. NOTHING alleviated the itch. Oatmeal baths before bed allowed me to fall asleep, but it was maddening.
Not something I want to go through again.
Surprisingly, that fall, one of my CATS developed hepatic lipidosis, which is basically a cat jaundice. I was able to nurse her through the illness, though I very nearly did lose her. But I think my understanding of how she was feeling, helped considerably with my treating her and her convalescence.
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry.
I'd much rather laugh.
2001 Dx'd with UC. No remission. 5/2008 surgery, removal of 6" of left side colon. Dx changed to Crohn's. Remission for 8-9wks after surgery, symptoms returning after resuming 6MP.