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Cyborg Ninja
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Date Joined Jan 2006
Total Posts : 660
   Posted 1/30/2009 8:48 PM (GMT -7)   
I'm 24 with Crohn's and my vitamin D has been low for a year. Last tests (over a year old) showed Crohn's limited to the terminal ileum. I was anemic for a long time but not anymore. My platelets are a little low too but not dangerously so. They've been abnormal for at least a couple of years. I don't know the cause for either of these. I know about the difficulty of absorbing B12, but vitamin D? Where is that absorbed in the intestine? I guess inflammation could affect platelets. Cause of anemia was obvious. Do any of you have these issues?
Current DX: Graves' disease, Crohn's disease, gallstones, scoliosis, syringomyelia

Rider Fan
Veteran Member

Date Joined May 2008
Total Posts : 1445
   Posted 1/30/2009 9:21 PM (GMT -7)   
Yes I'm low in D. Not sure how to get it up except to treat the disease.
Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. 8mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 1/31/2009 5:01 AM (GMT -7)   
Hi Yes it is absorbed in the intestine and is stored in fat. It can be toxic and a person needs about 600 international units a day unless a Dr. suggest more. I take a supplement a day. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 1/31/2009 5:48 AM (GMT -7)   
Poor absorption of D is a CD problem. I was low in D last year. I felt a 1,000 years old -- hard to decribe -- my muscles were sore and stiff, and I felt fatigued all the time. My doctor started me on D supplements and I started to felt better in a couple of weeks. I'm fine now.

Were your last tests a year ago? Maybe its time for another and your doctor can help you get the supplements you need.
Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

Veteran Member

Date Joined Aug 2007
Total Posts : 990
   Posted 1/31/2009 7:11 AM (GMT -7)   
Vitamin D is absorbed through our skin (it’s nicknamed “the sunshine vitamin”) and converted by the liver and kidneys to its useable form. It’s likely that no supplement that any of us can take by mouth—including foods w/supplementation like milk-- is as good as the real thing. To get the real thing, experts say to get 15 minutes of unprotected sun exposure on our skin each day for light-skinned people, much longer for dark-skinned people. There are a few natural sources of vitamin D: eggs, beef liver, cod liver oil and fatty fish like herring, salmon, tuna, sardines.

If you live in North America, with the possible exception of the extreme south, you cannot get sufficient vitamin D from the sun in the winter due to the sun's angle. During the spring/summer/early fall, one can boost their levels by getting outside during prime time!

If your test levels are showing that you are low, they may be critically low! Quest Labs just came clean and admitted their test results for vitamin D have been inaccurate—usually showing a person’s levels to be erroneously high. Here is the article from the NY Times. Please read!:

The FDA is now admitting that their recommendations for vitamin D have been far too low. Studies are ongoing to determine what the correct amount of supplementation should be, but it appears it may be somewhere between 1000 and 5000 IU per day (through the winter months, at least). I’ve heard Dr. Mehemet Oz say he takes either 2000 or 3000 IU a day, and if you are going to supplement, be sure you're getting D3.

Here’s what Wiki says about toxicity: The exact long-term safe dose of vitamin D is not entirely known, but dosages up to 250 micrograms (10,000 IU) /day in healthy adults are believed to be safe.[13], and all known cases of vitamin D toxicity with hypercalcemia have involved intake of or over 1,000 micrograms (40,000 IU)/day[29].
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too.

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 1/31/2009 7:21 AM (GMT -7)   
50,000 IU of vit D a week here
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 1/31/2009 7:40 AM (GMT -7)   
CN, you also get vitamin D from sunlight. We tend to hide from it these days with all the skin cancer scare but you can get a few minutes of sun without sun screen and it will help the D problem. Just dont over do it.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Cyborg Ninja
Veteran Member

Date Joined Jan 2006
Total Posts : 660
   Posted 1/31/2009 11:20 AM (GMT -7)   
Well I did start to get a deficiency when I moved up North from Florida, but I am paler than a ghost and frankly I should have enough vitamin D to supplement you all no matter where I live. I was deficient when I was working outside everyday at a zoo in the summer.

"A study of young Crohns Disease patients (ages 5-22) found low vitamin D (defined as serum concentrations of 25-hydroxyvitamin D < 38 nmol/L) in 16 percent of 112 subjects. Interestingly, the low levels did not significantly correspond to low bone mineral density (BMD) or dietary intakes. Factors associated with hypovitaminosis D included winter season, African-American ethnicity, extent of glucocorticoid medication, and disease confined to the upper gastrointestinal tract.168

Levels of serum vitamin D considered "low" have been inconsistent from study to study. Another study considered low plasma 25- hydroxyvitamin D to be less that 12 nmol/L. In this study, plasma vitamin D levels were examined in 37 Crohn's Disease patients and levels were found to be significantly lower in patients with active disease compared to those with inactive disease.169

Studies on vitamin D status have also examined active vitamin D levels. Recent research found circulating levels of 1,25-dihydroxyvitamin D were high in a large percentage of Crohn's Disease patients (42 percent of 138 subjects) compared to UC patients (seven percent of 20 Ulcerative Colitis patients) and were positively associated with disease activity. Low levels of 25-hydroxyvitamin D result in low serum calcium that in turn stimulates parathyroid hormone and a subsequent rise in 1,25- dihydroxyvitamin D levels to enhance calcium resorption from bone. High levels of active vitamin D were associated with significantly lower BMD in Crohn's Disease patients compared to Ulcerative Colitis patients, independent of glucocorticoid use. The researchers examined colonic biopsies of patients with Ulcerative Colitis and Crohn's Disease and found higher levels of 1alpha-hydroxylase in Crohn's Disease mucosa. This enzyme converts 25-hydroxy- to 1,25-dihydroxyvitamin D. Thus, it appears over-expression of this enzyme in the inflamed mucosa may be a cause of low BMD in Crohn's Disease.170"
Current DX: Graves' disease, Crohn's disease, gallstones, scoliosis, syringomyelia

Regular Member

Date Joined Jul 2007
Total Posts : 239
   Posted 1/31/2009 11:45 AM (GMT -7)   
I was diagnosed with low vitamin D after months of blood tests. It took an endocrinologist to look for it. After about 10 days of only 2000 IU vitamin D, I felt like a new person. Fatigue and sleepiness was so much less, concentration and focus were better, muscle aches were gone. I had been blaming things on CD, but I kept looking with other doctors because deep down I felt there was another problem. So glad I kept looking. I live in Indiana, and I'm very fair skinned so I slather on the sunblock every morning. Now I try to uncover my arms for a while if I'm outside, just a few minutes here and there. I'm not taking the supplement anymore (vitamins are hard on my stomach :( . I go get tests again next month, and I'm hopeful the levels will still be up, I've been trying to get vitamin D through milk more. I just wanted to let you know that vitamin D deficiency, if that is the problem, is a real problem that can be fixed. Good luck!
diagnosed w/Crohn's 11/06. 34f with 2 boys, a lovable dog, and a wonderful husband. <S>150 mg Imuran</S>, bentyl, entocort, vicodin as needed, Humira, metoprolol for orthostatic hypotension and heart palpitations. Bowel resection 9/07. Active disease back, darn it 8/08. 11 year old son with IBS-C, on Bentyl.

Cyborg Ninja
Veteran Member

Date Joined Jan 2006
Total Posts : 660
   Posted 2/2/2009 8:18 AM (GMT -7)   
Do you know if you had difficulty absorbing it, kimberlayn? I'm worried that's my problem, rather than not getting enough through my diet. I take a fish oil supplement and I read that fish oils have vitamin D in them, but the bottle of it doesn't have that labeled.
Current DX: Graves' disease, Crohn's disease, gallstones, scoliosis, syringomyelia

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