Cramps in hands & feet, unable to balance properly

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New Member

Date Joined Jan 2009
Total Posts : 5
   Posted 1/31/2009 8:26 AM (GMT -7)   
Hi guys & gals,

Just had surgery to correct fistulas, am recovering now after almost 3 months of hospital stay & TPN nightmare.
Anyways, back at home now thank god. But continuing Imuran 50mg, Preds 15mg, remicade every 2 months.
I've been getting this tingling sensation in hands & feet as in subject above and wondering if anyone had the same effect. I did some searching and this might be nerve damage.
Question is which meds is causing it and is this going to be permanent? Cause I don't think I can work when my body is messed up like this.

Julia Hill
Veteran Member

Date Joined Mar 2008
Total Posts : 560
   Posted 1/31/2009 9:08 AM (GMT -7)   
I'm sorry to hear about everything you have been through.  When my B12 is low I get tingling in my hands.  I also had this happen in my legs when I was on remicade.  I saw a neurologist and he did a nerve conduction test which I passed (thank goddness).  I would talk to your Dr. as I know this is fairly common in patients on remicade.  Did any of your fistula's interfere with nerves?  Just a thought!  Please keep us posted.
I wish you well, and I hope you find an answer sooner than later.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 1/31/2009 9:18 AM (GMT -7)   
Hi I had my toes sort of freezing up and curling when on meds but cain't pinpoint which one as often we are on a multi batch. It did stop and now I am not having that problem. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 1/31/2009 9:25 AM (GMT -7)   
I have problems with severe cramping in my feet. I have had cramps that lasted for literally ten minutes without letting up. My fiance suggested low potassium levels so I'm taking supplements for it, and it's really helped.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."

Regular Member

Date Joined Apr 2007
Total Posts : 134
   Posted 1/31/2009 9:44 AM (GMT -7)   
it's the remicade.
22 Female, currently on MTX. Previously on Imuran, Remicade, Pentasa, etc. Ileocolic resection in 2006.

Dave D
Regular Member

Date Joined Aug 2005
Total Posts : 404
   Posted 1/31/2009 10:13 AM (GMT -7)   

Prednisone does that to me. I get cramps in unusual places like my hands and fingers, and my feet around the instep. When I get down or off, the cramping stops.

Dave D

Retired male in late 60's. Perforated Colon in 92. Diagnosed as Ulcerative Colitis in 93. Uncontrolled flareup in 97 dictated J-pouch surgery. 04 Capsule endoscopy diagnosed as Crohns not UC. Emergency surgery in 05 to remove lodged camera capsule. Biopsies positively diagnosed Crohns at that time. 12/06 Unsucessfully tried Naltrexone(LDN). 2/07 developed scleritis of the eye, tearing and detaching the retina. Treated with high doses of Prednisone. 6/07 Thought eye was healing and started taking Entocort counting on the residual (non-systemic portion) as treating the eye. Wrong. In October eye was not stabilized. 11/07 Started Remicade to try and reduce the ocular inflamation of the Scleritis since I had been requiring more and more Prednisone to keep the eye quiet. 12/07, retina tares and detaches again. Started Remicade every 4 weeks plus 20mg of Prednisone per day. Six months and seven infusions later, good eye is back to 20/14. Bad eye is 20/70. Had cataract surgery on June 05 on bad eye. Eye returned to a correctable visionary level of 20/50. 11/08 had reaction to Remicade; trying to keep going with Imuran and Pred. Need corrective eye surgery and fitted for prism lense to correct that eye from turning out.  Life looks fairly good (literally) today.
Married with 4 grandkids.

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 1/31/2009 6:00 PM (GMT -7)   
Are you on flagyl?

Regular Member

Date Joined Jan 2009
Total Posts : 64
   Posted 1/31/2009 6:10 PM (GMT -7)   
prednisone does that to me.

New Member

Date Joined Jan 2009
Total Posts : 5
   Posted 2/1/2009 7:22 AM (GMT -7)   
Thanks for all your replies. I thought Imuran was the culprit, but looks like even potassium can cause the numbness as well...sigh...I was on flagyl few months ago when I was in hospital but stopped since long ago. I've been having this numbness and sharp pain since 2 months ago when I was in hospital, this numbness / sharp pain is 24/7, not 10 minutes! Sometimes, I'm amazed how I managed to get to work. Hopefully, I hope I can find out the cause by supplementing vitamins and reducing the medications.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 2/1/2009 7:27 AM (GMT -7)   
I would mention this to your doc. It could be the Pred, or could be from the Flagyl even though you took it months ago.

Good luck,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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