Got some test results back

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Regular Member

Date Joined Jan 2009
Total Posts : 26
   Posted 1/31/2009 12:04 PM (GMT -7)   
My doctor called me and left a voicemail with the following results:

Prometheus blood test = neg for Crohn's and UC
Small Bowel Follow Through = unremarkable

He told me to call the office if I was still having issues, so I did, and he called me back and said:

My Dr now wants to give me a 10 day course of Xifaxan thinking that maybe I picked up some bug that I can't get rid of. My symptoms are still lower right quadrant pain moving from groin, to appendix region, to kidney area, and irregular bowel movements. Still no fever.

One thing I wanted to ask him but wasn't able to because we've been communicating through voicemails was, on the day I had my SBFT, I wasn't in any pain at all; is it possible that any inflammation they would have seen from Crohn's would be not apparent on a day I'm not in pain, or does it not work that way?

When the doctor (not my GI doc, but a hospital doc) was giving me the SBFT, he even remarked that "well if this is Crohn's, it certainly isn't a typical presentation." He then asked me if I had done any traveling recently, to which I said "no." He said "you haven't been to Mexico or Colorado?" I said "nope, I've been here in the cold Chicago winter the whole time."

It seems he thought based on my symptoms maybe I'd picked something up?

I can understand Mexico, but what's in Colorado?

So anyway when I called the dr back I was asking about bacterial and parasite tests (stool tests?) and he suggested the Xifaxan. Is it weird to start a course of antibiotics without doing tests first? He said if I still have symptoms after that we'll do a capsule endoscopy (the camera pill).

So here are all my tests and results so far:

- Multiple hernia tests = all negative
- CT scan = mild terminal ileum thickening, increase in number but not size of lymph nodes (normal I'm told)
- Colonoscopy = relatively unremarkable, one biopsy had evidence of granuloma which is suggestive but not indicative of Crohn's
- Upper endoscopy = I have a hiatal hernia
- Prometheus blood test = neg for Crohn's and UC
- SBFT = unremarkable
- Thyroid blood test = thyroid function normal
- Liver sedimentation blood test = liver sedimentation normal

Veteran Member

Date Joined Mar 2006
Total Posts : 1169
   Posted 1/31/2009 1:34 PM (GMT -7)   
Well if you resopnd to the antibiotic itmay well mean that you have been battling a stubborn GI bug, which would be very good news. And it is appropriate to defeethe pill cam until after that is tried. Itis still now entirely impossible that you hjave Crohns either in a fairly mild form or currently not flaring, but that would not explain thepain and bowel habits. As noted in your earlier posts, your doctor seems tobe following a very sensible course here. Also, while it is certainly possoble to see no abnormalities on the |SBFT and still have Crohns, it is not very typical either. The good news from that isthat even if you do have Crohnsit does not appear to have done much damage at this point. Overall all your tests to date are really pretty encouraing. Try the antibiotics and see what happens.
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