pain management and crohn's

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New Member

Date Joined Jan 2009
Total Posts : 7
   Posted 1/31/2009 10:29 PM (GMT -7)   
they have me on neurontin which is hilarious i cant even see straight :) it does help however with the nerve pain but my pain comes from after a meal and is from the intestine to all of my colon!!! the last GI doc i saw said no pain meds at all. i have autoimmune response white count over 20,000 and diarrhea but he keeps telling me i am constipated:) wishfull thinking i take hyocyamine .125 x2 x4 per day and was on tramadol non narcotic worked but sedated all of the time and really didn't help when it hurts it hurts!!! and i am now too sensitive to it rash along with the pain now thats funny bowel movements are so painfull and non productive i have gotten to be a pro at sleeping on the toilet !!! movements are in the middle of the night lost 30# now taking perc but hey guess what ? i have been through a lateral sphinterotomy from colorectal DR treating me for fissure repair but hey i have IBD hmmm. he sure was quick to cut i had 4 times back in the O.R. because i hemorrhaged after surgery was still in so much pain after 4 surgeries and he still didnt figure it out. not to mention i had abscesses afterwards so it is going on 3 years now and he labled me a pain pill junkie because 2 sphigmoids showed no problems but at that time i was having an episode in the intestine, bleeding never quit still am going to be in pain but i want to stop the pain meds all together without a withdrawl. the last flair i am getting over has lasted 4 months. please if you can help while i wait for my blood test to come back which has been over 2 months now, to get meds to take care of autoimmune disorder.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 2/1/2009 7:11 AM (GMT -7)   
GI's are notorious for not prescribing pain meds. I suggest you see your family doc and get them to prescribe pain meds or at least refer you to a pain mgmt clinic. I am so sorry you are hurting so bad, please do keep us posted on how you are doing.

PS: Just fyi the board is a little slower on the weekends, so don't be hurt if you don't get alot of responses till Monday.

Hugs and Good luck,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Jan 2009
Total Posts : 64
   Posted 2/1/2009 8:21 AM (GMT -7)   
I read a book which really helped me with pain management without using meds. I don't like using meds so I try to avoid them as much as I can. Obviously I do use meds for pain management sometimes, (and it sounds like you are in a lot more pain than I am) but whenever possible I use the techniques I learned in the book. It is mostly using breath and meditation to learn to tolerate pain and also to decrease it. It is a pretty large book, I have to admit it was pretty intimidating to pick up and read! (I am a very slow reader...) It was helpful, though. The details are below, it is a pretty popular book so your library should have it. This author also has CDs if you aren't into reading a large book.

Jon Kabat-Zinn, Full Catastrophe Living: Using the Wisdom of Your Body and Mind to Face Stress, Pain, and Illness

Isn't it frustrating when Dr.s completely ignore or contradict what you are telling them??? To say you are constipated when you are telling them you have diarrhea must be infuriating! That stress must only add to the pain! I hope that you find something that works for you! My Dr. is pretty good (thank god!) and my family Dr. gave me a prescription for massage so my insurance will cover it. That has helped too, so if you have insurance you might want to try that.

Good luck!

Texan with Crohn's
Regular Member

Date Joined Dec 2007
Total Posts : 362
   Posted 2/1/2009 9:11 AM (GMT -7)   
dossman -

Greetings. Nanners is correct, you can probably forget about GI docs assisting with pain management. I did. I see my PCP for nausea and pain management. When I told him of my encounters with GI docs on this subject, he just rolled his eyes. Some days are pain and nausea free others are horrible... like right now. Better go get a phenegren before I start throwing up. :) Welcome.

New Member

Date Joined Jan 2009
Total Posts : 7
   Posted 2/1/2009 9:16 AM (GMT -7)   
thanks you guys:0 day three no cramps bowel not grinding and no pukey Praise GOD
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