about eight years ago, I paid $600 to see a top NYC specialist too. And, quite frankly, I am thinking of seeing him again. He didn't take insurance so I was forced to pay out of pocket. In his words, he was there to give me his "pearls of wisdom" of which I think he did. I left knowing more about the disease, more hopeful, and felt like I had other options that I didn't even know about at the time. (Based on his visit, I was put on Cipro which actually put me in remission for five years.) I went with my mother and sister and we all felt that it was definitely worth the trip. (ps - I live in the Boston area.) So, in short, do I think $750 is a lot of money... um, yes! But, would I do it again. Definitely!
39 years old female, Dx'd 2000 Crohn's Colitis in entire colon
Allergic to Asacol/Pentasa/6MP/Immuran and many others
Past meds that worked: Cipro, Prednisone
Just stopped Humira 1/1/09
Started Remicade 1/15/09 ... and waiting for it to work
Daily: Folic Acid, Vitamin C, Fergon Iron Supplement, Omega 3, Multi-Vitamin