Hi Guys, regarding crohn's of the throat!

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Regular Member

Date Joined Oct 2008
Total Posts : 245
   Posted 2/4/2009 4:51 AM (GMT -7)   
Hi Guys,
I was wondering if any of you guys have chrons of the throat? I was told I hacve it from mouth to Anus! If so, what effects does it have on you? At this moment in time, I am really struggling with my breathing. I am having to take long, hard, deep breaths to try and get a breath at all. I am waking up during the night gasping for air. Would that be normal of chrons in the throat? All advise would be welcome.
I hope you are all keeping well.
DX November 2008 - after years of searching for an answer
Prednisolone 50mg -Omeprazole 40mg for acid reflux - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic

Regular Member

Date Joined Aug 2006
Total Posts : 443
   Posted 2/4/2009 8:02 AM (GMT -7)   
Breathing problems do not sound typical of Crohn's in the throat. More likely would be pain from ulcers in the throat, although an esophageal stricture (narrowed area) is possible. I'd be much more suspicious of something like asthma, or maybe sleep apnea. In any case, I'd follow up with your doctor right away. Breathing is not an optional activity!

Regular Member

Date Joined Jul 2004
Total Posts : 422
   Posted 2/4/2009 9:40 AM (GMT -7)   
I've struggled with breathing issues but not to the point I'm waking up at night gasping for air...that sounds pretty serious. I'm not sure about Crohn's of the throat. I, too, would think that would involve ulcers in the throat.

But a couple of years ago, I was not able to get a good, deep breath. My yawns were more frequent and I never could finish out a yawn...I'd get stuck in mid-yawn not being able to get that finished-off deep breath. So I went to my Family Practitioner.

They did 2 chest X-rays within a month of each other. The first showed slight inflammation of my bronchioles so they put me on an asthma medication. The drug didn't work after a month and I just knew this wasn't asthma. So the 2nd chest X-ray showed nothing, even though I was still having the breathing problem. So they sent me to have a PFT (Pulmonary Function Test). It was normal. BUT I WAS STILL HAVING THE BREATHING PROBLEM.

I was also complaining of being very tired all the time and having heart flutters...so I was sent to a Cardiologist for an Echocardiogram and Stress Test. Echo was fine. Stress Test just simply showed I was out of shape, which I already knew. BUT, it JUST so happened the Cardiologist I went to see started out as an INTERNIST. I've found that Internists are more detailed and pick up on things that some regular doctors do not. While I was in his office, he called my doctor and asked for them to fax over my latest bloodwork. The Cardiologist/ex-Internist noticed my IRON levels were low.

Guess what kind of symptoms you can have with low iron? Fatigue, racing heart & shortness of breath. I even found a web site that describes the shortness of breath as "yawning alot but not completing the yawn". So I was put on Iron supplements and the breathing issue has been MUCH better...as well as the fatigue and heart flutters.

Get your IRON checked first...then go from there. Hope the breathing gets much better for you...that's kind of important! :)
Diagnosed in October, 2004 at age 32.
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills, Chromium Picolinate
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 2/4/2009 11:35 AM (GMT -7)   
Hi Conor have you been to a Dr. about this? Sounds like you should .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail

Regular Member

Date Joined Dec 2008
Total Posts : 63
   Posted 2/4/2009 11:49 AM (GMT -7)   
I would suggest check with a dactor and have some tests that can diffenitly help to find what is all about.
It is true that Crohn's can be from Mouth to Anus but it take place most of the time by the Ilium.

best of luck for you and hope you feel better.
Age: 28
Diagnosed with CD JAN, 08.
Meds: Prednisone(40mg), Pentasa (4mg), Hydrocodone, prilosec, Fish oil, Multivitamins untill(01/27)
Surgeries: Right now I'm at the Hospital (Hotel) waiting for my Abscesses to be drained then I will have a Laparoscopic Resection Surgery. I’m very excited.
New med's at the hospital: Flagyl (1500mg/Day), levaquin(500mg/Day),Hydrocortisone(300mg/Day) ,Lovenox(40mg/Day) for clotting, regular insulin, dilaudid as needed (1 mg/4 Hr's)
TPN with lipids at night.
Words are, of course, the most powerful drug used by mankind.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 2/4/2009 12:10 PM (GMT -7)   
Your doc would have to look (with an endoscopy most likely) and as far as I know they treat CE of the throat/esphogus with prednisone (steroids), you best get to the doc ASAP.

My bum is broken....there's a big crack down the middle of it! LOL :)

Regular Member

Date Joined Jan 2009
Total Posts : 64
   Posted 2/4/2009 2:37 PM (GMT -7)   
I get frequent, numerous, and sometimes quite large canker sores in my mouth and throat, very painful. I think that is what you would get from Crohn's in the throat and mouth. Not sure though, I agree you should call the Dr. in case it is something very serious.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 2/4/2009 2:43 PM (GMT -7)   
I am going to throw this out there as another possibility. Could you possibly have developed anxiety related to your Crohns? Do you feel you are stressing alot about it? Because anxiety can cause these symptoms also. And I know alot folks develop anxiety and depression because of all we have to live with with having Crohns. Just another thought. Hope you get this figured out soon.

Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Dec 2008
Total Posts : 103
   Posted 2/4/2009 3:23 PM (GMT -7)   

Hi there.  I have had esophageal flare ups.  I don't recall any serious difficulty breathing.  I did pant going up and down stairs, but didn't feel the sensation of gasping.  Just pain in the esophagus.  I agree with kittikat and Nanners.  I had nearly the same experience as kittikat, flutters, some shortness of breath, fatigue, and after lots of tests, did have some low iron and was in a flare- but didn't realize it.

As nanners stated, I had a lot of anxiety over my health.  It took me years to understand and realize that I suffered anxiety and depression.  I did have all the same symptoms earlier described with my anxiety attacks too.  Lexapro has completely relieved me of my panting, racing heart, and the fatigue related to anxiety.

Best to you.  With the cost of healthcare, maybe a blood test would be the best place to start before you go through further tests for asthma, cariac, EDG.  They should probably be done though, at any rate.

God Bless,


DX in 2000, (Mild to Moderate)  take Pentasa, Omega- 3's, Caltrate, Lexapro, Multivitamin AVOID WHEAT AND DAIRY.
Daughter age 15 dx with Crohn's on 12/22/08 (Moderate to Severe):  Prednisone, Nexium, Pentasa, 6mp, Caltrate, Omega 3's, yogurt , teen vitamin

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 2/4/2009 4:55 PM (GMT -7)   
I also have crohns of the throat and when it expanded from 1100-1400 to 1100-1600 I was having similiar symptoms. First go see the doc about it asap, karaphate helps but what I think helped the most was sleeping on my recliner untill stuff calmed down.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Veteran Member

Date Joined Oct 2004
Total Posts : 2088
   Posted 2/4/2009 5:09 PM (GMT -7)   
I have also had a fair number of Crohns symptoms involving my upper GI tract. Duodenal ulcer, very painful oesophagus (possibly related to stricture or inflammation of gall bladder) numerous mouth ulcers, and most classic symptom of all (according to my dentist, who was very excited) the Crohn's Disease cobblestone mouth (where the roof of the mouth looks like it is cobbled, supposedly nothing else causes this). But although Crohns can cause asthma and I have heard that it may cause loss of breathing function in up to 30% of all CD sufferers, I've only ever had breathing problems in two situations; when my gut is doing badly and bleeding on a regular basis I often find myself breathless going upstairs ( 2 floors), gasping when I reach my front door; and on occasion when on antidepressants that were known to sometimes suppress the autonomic (automatic) breathing reflex. That was when I kept waking up gasping for air because my body had quite literally forgotten how to breathe and wasn't doing it deeply enough or sometimes at all. Very unpleasant, and surprisingly hard to consciously adjust the depth of breath to take in and out - really a full time concentration thing !
IMHO, what Kittikat said certainly seems to make sense to me, although of course if you are suffering from anxiety then that could be the reason. If you are not suffering from chest/rib pains I'd guess more likely anaemia, if you are then more likely anxiety. But either way, worth mentioning to your doc, you need good sleep ! yeah
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