It took 2 years for me to be diagnosed with Crohn's after having been misdiagnosed with IBS by my family doctor. The disease had to get really bad before the family doctor saw it as something more than IBS. In the meantime, I suffered. It wasn't until I told my family doctor that my bowel movements were waking me up in the middle of the night. That's when I was referred to a GI.
The GI recognized my symptoms immediately to be IBD but just to be sure ran a battery of tests:
First came a Hemmocult to check for blood in the stool.
Second came an Upper GI with Small Bowel Follow Thru. Upper GI results came back fine; SBFT results showed some narrowing in the small intestine.
Next was a Abdominal CT Scan which showed inflammation in the large intesttine.
Based on these tests, my GI schedule me for an Upper Endoscopy, Colonoscopy and the blood test that shows the markers for Crohn's Disease.
Upper Endoscopy results came back fine. Colonoscopy results did not. Ulcers scattered throughout the large intestine. Blood work came back showing a 98.9% cause for Crohn's Diease.
So based on all those test results and the other "extra-intestinal" problems I was having, the GI diagnosed me with Crohn's.
So once I finally got myself to a GI, all the talking and tests took about 2 months. So if my family doctor had thought to send me to a GI sooner, I could have gotten started on the Crohn's meds about 2 years earlier. OR, I should also say, if I'd simply REQUESTED to be referred to a GI. WISHED I'd been more proactive.
Diagnosed in October, 2004 at age 32.
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills, Chromium Picolinate
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date