Giving up food :(

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Regular Member

Date Joined Jun 2006
Total Posts : 321
   Posted 2/4/2009 9:15 PM (GMT -7)   
I hated my life a lot less when I only pooped out of one hole. I don't know why they thought keeping the fistula opened full time would be a good is it going to heal when I'm pooping through it! The pain doesn't last terribly long but its SO bad. The last few days I hadn't been able to go because of the Vicodin but I ran out last night and my BMs are starting to get back to normal. I had so much stored up in me I guess from eating whatever I wanted since Friday. All I had today was a PBJ and some tortilla chips and I've gone 4 times. I'm afraid to eat because normal for me is anywhere from 3-10 times a day. I will DIE if I have to go 10 I have to take showers after because it hurts too much to wipe and I don't think I have that much hot water lol.

I don't want to starve or get crazy malnourished. I just don't want to eat ever again :( Do you guys think a liquid diet will help? I've never really been on one so I don't know if the BM frequency would be the same. I know a lot of you have had fistulas (esp Bartholin's), how did you guys deal with this?

Edited for clarification: My main concern is reducing the # of BM because while normally 10 per day is whatever...right now even once is excruciating. I am pooping out of 2 places, one of which is raw and should never have anything go through it ever. Plus for some reason when my muscles retract from going to the bathroom it is the worst pain I have probably ever felt and it lasts for about 15 min every time I go.
"Be ashamed to die until you have won some victory for humanity" ~ Horace Mann

Post Edited (MissCris) : 2/4/2009 10:30:49 PM (GMT-7)

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 2/4/2009 9:36 PM (GMT -7)   

hi misscris I am so sorry u are dealing with this at the moment. I cant help with the fistula cause thankfully I havent had that problem before but Im sure someone will be along soon to help out. I just wanted u to know your not alone, I also poop numerous times and lose control of my bowel constantly which is so depressing so I also have a huge fear of eating these days but even drinking a cup of tea makes me run to the toilet at least 3 times soon after, so to help keep my nourishment I do drink sustagen which I dont feel it makes a huge difference but at least I know im getting some vitamins in my body. If I were you I would go back to the GI and let him know how much this fistula is impacting your life, surely there is something more they can do for you. Please keep us posted and hope u find some great advice soon


Regular Member

Date Joined Apr 2008
Total Posts : 289
   Posted 2/4/2009 10:14 PM (GMT -7)   
Normal for me IS pooping about 12-15 times a day. 0_o My butt has got super-sore before. Usually when I've had diarrhea like water. The tissue paper is just not enough to remove the acid from my skin. When I notice my BMs getting liquid-y, I switch from TP to damp/wet baby wipes to clean all of the fluid off my skin. I have noticed less burning-butt from the D times if I am able to do that.

I know what you mean about wanting to give up food! At several points through the years, I didn't want to eat because I knew it was going to be painful when it came out. Well, "stuff" is always going to 'come out' no matter what I do, so I have kept on eating. I am also very careful about what I eat and when I eat it. Eating or drinking seems to "wake up" my guts and I have to have a BM very soon after, so if I have to leave the house I will not eat before I leave. I wait until I've run my errands and returned home. If I pick up food to bring home, or p/up some fast food for my husband, I don't even so much as take a nibble or a sip until I am in the driveway and close to my bathroom. Eating out, my husband knows we need to stay at least 15-20min after I've eaten to be sure all the pottying is done.

When I've had 'accidents' in my pants and didn't want to do the whole-body shower, I'd clean as well as I could with TP then run a shallow bath and only wash my 'nether' region. You could probably do the same thing after BMs with a sink full of warm water, soothing soap and a soft wash cloth. That would get you clean and not use too much time and hot water.
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.

Veteran Member

Date Joined Aug 2004
Total Posts : 1169
   Posted 2/4/2009 10:53 PM (GMT -7)   
as 78silvanniv---for years my normal times[pooping]were 10 to 12 times daily for years---i tried ensure,gatorade,any juice and even frozen yougurt in the ensure as a shake
soft scrambled eggs--mashed soupy potato---then 2 yrs. ago my family doctor ask me to try ''cymbalta''i tried the first 30days on the low dose with all my crohns meds,too like
carafate,asacol,aciphex,water-pills,coreg[highblood preasure meds]centrum a to zinc vitamins daily--i had also had imuran,remicade,predisone,so many more i forgot the
names--since i have had active crohns since 1994---but after the30 day trial of cymbalta[blue-first 30mgs. capsules then] the 60mgs. i feel great---still take alot of the crohns meds but
alot i don't have to take--i know we are all different with crohns but sometimes there is something that will least were we can eat out without running for a bathroom
i have been on cymbalta 2yrs now---better life now----this is no ad for cymbalta just ask your family pc or even your gi---hope this helps just one--god bless....
crohns since 1994--diabetic--

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 2/4/2009 11:24 PM (GMT -7)   
I'm so sorry for what you're going through, have you and your doc discussed remicade? It's suppose to be very helpful with fistula healing and what about TPN? I hope you find relief very soon, doing a liquid diet on your own would be short lived, even though you'd still be getting nutrients of sorts, chances are you will end up with headaches from not enough nutrients, there are no easy answers so talk to your doc about the remicade and TPN.

My bum is broken....there's a big crack down the middle of it! LOL :)

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